This is my Brain Awareness Week (BAW) photo which illustrates what we need to aim for in our brain science efforts: “Self Sufficiency.”
If you recall, one of the primary themes of the Terminator movie series was the Terminator’s wherewithal to correct its own body breakage & malfunctions. For more than 50 years, Western Medicine has been surgically putting in a wide array of medical implants from bone screws and plates, to heart valves, CNS shunts for hydrocephalus, and neurostimulators for Parkinson’s Disease and seizure disorders. The most problematic of these are CNS shunts, which I have been living with for 20 years.
Over the last 20 years, I have worked feverishly to educate medical science of the needs for self-sufficiency and home diagnostics & solutions to keep the shunt and individual functioning. But medical science in nearly every branch, from FDA to device mfrs to practicing physicians, have remained oblivious to the needs of the patient, and what is technologically possible today.
In 1997, after petitioning the Food & Drug Administration on widespread oversight and needless failures with many CNS shunt devices, I designed and patented a home monitoring system for hydrocephalus and CNS shunt users based on non-invasive methodology which I named, the DiaCeph Test. When I introduced it to scientists at the University of California at Irvine (UCI), I was heralded as a pioneer and visionary by Dr. Eldon Foltz, a long-time practicing neurosurgeon & researcher in hydrocephalus. And when I showed my concept to NIH, they fell in love with it and urged me to find a credentialed university scientist or physician to write the NIH grant application. Later, however, UCI would inform me they would have to own everything, or it wouldn’t be possible for UCI staff to write the grant. I was given no other alternative other then giving it to them, which didn’t make any sense. So I continued to show my DiaCeph system to companies and others in the field, all to no avail. Back then, it was going to be a stand alone software device where we’d be seeking insurance reimbursement, a Medicare code, and industry distribution.
Today, however, the DiaCeph Test could be an app for a mobile phone! The future is now and we need to grasp it! We need to develop cost-effective neuro-technologies for common disorders of the brain, take mind-body modalities, music therapy, mobile apps & AI technology to the next level!
In support of my Terminator 3 BAW photo, I added the caption, “How is your Implant functioning?” I added this from years of frustrating experiences w/ CNS shunt implants where one is left w/ a malfunctioning CNS shunt implant, yet limited to no means to get it fixed. It would seem the age-old saying applies here, “IF you want something done right, do it yourself!” So goes the Terminator! — with hydrocephalus association and national hydrocephalus foundation.
20-year hydrocephalus survivor
Inventor & Neuroscientist
Drum Circle Facilitator
Newport Beach, CA