eWeather HD App helps manage Barometric Pressure related Migraine Headache

eWeather HD App for Managing Migraine Screenshot

This blog discusses how to use “barometric pressure” forecasting with the eWeather HD app and data from weather web sites to manage barometric pressure triggers in migraine headache, headache, arthritis, hydrocephalus, Ehlers Danlos, and autoimmune disorders. This blog has considerable self-help information and tips for managing migraine and headaches.

My biggest new discovery comes from a study I undertook in 2017 with the MigraineX ear plugs used in the management of headache, but also in sound suppression. I found that insertion of MigraineX ear plugs before, and even after a harmful sound exposure has occurred, can lessen the associated headache, irritability, cognitive, and SPD complaints by 50% or more. So I carry my MigraineX ear plugs with me all the time to manage sound exposure & associated SPD complaints. They are particularly helpful amid noise from construction, machinery, malls, restaurants, theatre halls, and more. They sell for about $12 on Amazon and many drug stores.

I have also been undertaking new barometric pressure monitoring now with my Samsung phone’s built in barometric pressure sensor. The built in sensor can display sharp short term changes in pressure that weather sites often do not display. Most newer high end smart phones have this sensor built in. But you need to download an app to get the display. For this, I currently use the uBarometer Pro. I have been able to correlate these short pressure changes as triggers of pain and headache.

I also include a brief review of the Migraine Buddy and Headache Diary Pro apps.

eWeather HD was originally introduced as an Android app by Elecont Software, then offered as an IOS app. As IOS came later, there was a delay in IOS weather alerts & notifications. With the eWeather HD Sept. 17, 2017 IOS update, alerts & notifications we’re fixed.

Over the last several years, Elecont has adopted some of my recommendations, which has allowed the eWeather HD app to function more as an mHealth tool in managing pressure aggravated disorders.

I offer FREE eWeather HD Google Promo codes for Android users who email me thru this blog. It is a $4.95 value. iOS versions are less at $2.95 on the Apple Store, and I do not receive download codes.

UPDATES

Sept. 19, 2017 UPDATE:

New Update for eWeather HD app for Apple/IOS Devices including Weather Alerts & Notifications. I am told by Elecont Software that the Sept. 17th 2017 update includes fixes that will allow “Alerts & Notifications” to function on Apple/IOS versions of the app. I had received numerous inquiries here from IOS users, and spoke with the Elecont developer. I am told these features are now available with the app. As I do not personally own an IOS device, I am not able to test this out and provide screenshots. If any IOS users would like to do so and email me the screenshots, I will add them to this IOS installation and user instructions here. SEE blog section here “How to Set up & view eWeatherr HD on IOS Devices.

April 27, 2017 Update includes:
In my April 21st update, I wrote that I thought on-screen or Task-bar Notifications were likely possible on iOS devices, not having seen the app run on an iOS device (of which I don’t own). Then on Tuesday of this week, I attended an iOS developer event to deliver a demo on the eWeather HD app. There I was able to explore the app as it appears on iOS devices, and learned why it does NOT get Alerts or On-screen Notifications. It has to do with Apple’s “Apple Push Notification” service, or APNs, for network notifications on iOS devices. My apologies for not understanding this issue sooner. I will be speaking to the developer Elecont as to fixes for this issue. I explain in more detail how the iOS version of the app is used in my section below on eWeather HD for iOS Devices.


April 21, 2017 update includes:
1. eWeather HD Barometric Pressure screenshots showing the “Notifications” I use on my Android GS3 phone in managing my headaches. NOTE: I do not use the audible alert option. From my experience, audible alerts might only be necessary in users with visual impairment who are unable to view home page Notifications. As I do not own an IOS device, I am uncertain of the specific screen Notifications available on IOS versions. However, I will encourage the developer to make my recommendations here as standard options available on all their versions.
2. Discussion of Barometric Pressure Notifications currently available for IOS versions of the eWeather HD app. SEE my discussion in the IOS section.


Jan. 11, 2017 update included:
1. How to select notifications & alerts for changes in barometric pressure related to migraine headache, with screenshots, and
2. My personal preferences for barometric pressure indicators on my eWeather app


Oct. 19, 2016 update included:
1. Screenshots and new instructions on installing the app from Google Promo codes.
2. Discussion and review of several top migraine apps.
3. Discussion and links from new Excedrin migraine and weather information.
4. Updated information on the role that sound/noise and sensory processing disorder (SPD) plays in migraine headache.


Management of Migraine and Headache thru Weather Monitoring

Migraine headache can get you out of your routine
Migraine headache can get you out of your routine

Weather changes with a sharp drop in barometric pressure can often trigger a migraine headache in pressure sensitive individuals with a history of neurological disorders such as hydrocephalus, post tumor, Parkinson’s Disease, PTSD, sensory processing disorder or SPD, and person’s with a history of anxiety attacks and migraine. The sharp drop in barometric pressure during weather change often acts as a trigger of migraine. Weather apps and web sites can provide advanced warnings of changes in barometric pressure, so affected individuals can adjust their activities and medications. I’ve found the eWeather HD app to be the most convenient as it forecasts barometric pressure both 24 hours ahead, and the past 24 hours, in a easy to read graphic format. The app highlights steep rising and falling of barometric pressure, and can alert you via its icon on the taskbar of your phone.

I am a migraine sufferer today as a result of 24 years and 12 CNS shunt surgeries for hydrocephalus. In this blog, I discuss a real migraine headache event, and how I used the eWeather HD to help me better through it. Had it not been for the Elecont eWeather app, I likely would have been down for the entire afternoon. And as of May 2016, I give away Google Promo codes from the eWeather HD app developer for a FREE app download for Android devices, a $4.95 value. To obtain a Google Promo code, email me your request to the address at bottom.


Stephen Dolle in Knots of Love Bennie for persons who have underwent brain surgery or chemotherapy.
Stephen Dolle in Knots of Love Bennie for persons who have underwent brain surgery or chemotherapy.

My name is Stephen Dolle and I am a neuroscientist and author of this blog. I write and consult on mHealth, brain health, and the disorder hydrocephalus. I also live with hydrocephalus, and regularly suffer migraines, and have been an eWeather HD app user since 2012.

My mHealth app experience spans a 1997 design of an application for hydrocephalus (DiaCeph Test) to run on a PDA, which unfortunately I was not able to get funding for. However, I continue to provide a number of FREE monitoring forms and instructions so individuals and families can do their own monitoring. Since 2009, I’ve been providing Hydrocephalus Monitoring & Consults to patients affected by hydrocephalus (link to blog & services is below). I am also a CNS shunt device scientist. I can also provide consults to mobile app developers and others wishing to develop mHealth apps. My DiaCeph Test today could be made into a mobile data app with sufficient funding and/or partners.

Hydrocephalus Monitoring & Consults

Since 2012, I’ve also been applying my mHealth expertise to migraine care and weather monitoring of migraine headaches using both weather apps and web sites. I have also evaluated mobile apps for pain management monitoring. Since 2014, I found the eWeather HD app the best mobile app tool for monitoring barometric pressure weather triggers, and in 2016 I reached out to the developer for free downloads to give away to my blog followers. Migraine headaches are also very common in hydrocephalus, which I have been living with since 1992. So these eWeather HD efforts also benefit my own health.


Drum circles help to reduce stress and stimulate the brain for optimal function in the workplace

I also put on drum circles in Orange County, California, as a therapy for medical conditions, and for events, icebreakers, and organizations interested in team-building (like drumming in the workplace pictured above). Medical conditions and organizations I’ve helped include: National Hydrocephalus Foundation, National Parkinson’s Foundation, cerebral palsy/autism, drug & alcohol addiction, Alzheimer’s disease, movement disorders, sensory processing disorder (SPD), schizophrenia, weight loss, and general health & wellness. I also write blogs on drumming and movement topics, including, drumming for basketball and football. Drumming can improve one’s intolerance to sound and stress, which are common triggers of migraine headache, and stress also plays a key role in sensitivity to noise in sensory processing disorder (SPD). Drumming, exercises, and yoga also help offset cerebral hypotension, the mechanism most often responsible for migraine headache. My blogs below detail how drumming aids wellness, stress reduction, and migraine disorders.

Drumming for Workplace Wellness

Drumming Therapy in Cerebral Palsy and Autism

Stephen Dolle facilitates a drumming for wellness workshop at a private home in Orange County
Stephen Dolle facilitates a drumming for wellness workshop at a private home in Orange County

eWeather HD Weather Images of Hurricane Irma (Sept. 2017)

I have added some eWeather HD screenshots taken of Hurricane Irma that struck Florida in September 2017. From California, I was able to get forecasts and share weather information with friends in Florida affected by Hurricane Irma. The radar images & pressure graphs are striking. The primary limitation of must weather apps and web pages is that their radar is based on land, and it can only scan out over the water about 100Km. So you have to either get NASA satellite images, or wait for the storm to be within 100Km of the mainland. Enjoy my pics.

Image shows Hurricane Irma as a massive storm covering most of the state of Florida.
Note the steep drop in the forecasted barometric pressure for Tampa, Florida, indicating the severity of the storm & timeline of its arrival over Tampa.
Radar image shows Hurricane Irma passing over Tampa, Florida, where the rear portion of the eye has weakened – thankfully leading to much less damage for Tampa.
Radar Image shows Hurricane Irma as a massive storm over Florida with many different local & regional weather alerts.

How to Use the eWeather HD App for Management of Migraine & Headache

The Elecont eWeather HD app is an excellent mHealth tool & mobile app for managing migraine headache. I have been using the app since about 2012, while also using several online weather sites. As Elecont made updates to its app, by 2014 it became my weather site/app of choice.

The app provides up to 24-hour advance display of changes in barometric pressure, which you can use to help manage your migraines and headaches. Knowing this weather data in advance, can allow you to make key changes in your schedule, medication, exercise, and hydration to possibly head off a migraine attack. Moderating exercise, hydration, and medication other tips is discussed further in this blog.

This section’s screenshots are from the app on my Android device. There are some differences with the iOS version, specifically, with Alerts & Notifications not yet being available. In my UPDATES at top, and here in my discussion sections, I detail how you can use the app on both Android & iOS platforms.

For Android devices, you have (3) ALERT options for how you get notified of changes in barometric pressure. Below are the Android screenshots for setting up ALERTS in the eWeather HD program. (For Apple/iTunes devices, you can view changes in pressure via the red-alerted barometric pressure graph in the app, and via display of the pressure graph icon on your phone’s taskbar & widget if set up).

  1. VIEW GRAPHS: View the graphs by clicking on the app or widget on your home screen. The program is configured by default to turn the barometric pressure graph “red” when there is a rise or fall of more than 0.20 Hg (I think). The default graph will look like the graph in the screenshot just further below. This shows the pressure for the last 24hr in Hg. The far right edge of the graph is current time, and the far left edge of the graph represents 24hr earlier. To see the next 24hr forecast, press the tiny round red “in” button in the top right corner of the screen. Press it again, and it returns to the current 24hr graph. Scroll the screen to the “right” to see an hourly all weather forecast, and scroll to the right again to see the 10 day weather forecast. Scroll again and it comes back to the home screen.
  2. VIEW ICON: View the pressure graph “icon” in either the notifications bar on the top of your phone’s screen, or in the lower right corner of Elecont 2×2 widget screen. I have both set up. The icon is a tiny display of the graph. When the pressure is substantially rising or falling, it will turn to red and be sloped accordingly.

The screenshot below is the default view on the opening screen of the eWeather HD app on Android devices. eWeather HD App panel displays a forecast graph of the previous, current, and next 24 hour period of barometric pressure.

The eWeather HD Android app Barometric Pressure Graph includes Current, past 24 Hours, and next 24 Hours, the data of which is a useful Health Monitoring Tool for Migraines, Headaches, Arthritis, and other Medical Disorders.

eWeather HD App panel displays a forecast graph of the next 24hr period of barometric pressure
USE OF NOTIFICATIONS/ALERTS: You have the option to receive an “audible alert” or “notification icon” when the change in barometric pressure exceeds the pre-set range within the app.
I personally do not use the audible alerts. Also, I am told audible alerts are not yet available in IOS versions. I personally use the notification icons available in three (3) places on my Android phone, which I identify below & share via screenshot:
1) Icon in lower right corner of 2×2 widget on my home screen;

Since I took the home screen screenshot below, I revised the “widget” display, weather data, and colors on my Android phone. I’ll share a new screenshot on my next update.
2) Task bar Icon at the top of my home screen;
3) List of Icons for eWeather HD & other phone functions on the Task Bar (top of phone home screen). The barometric pressure Notifications turn red when there is significant change in current, past 24 hours, or forcasted pressure. The colored Icon is readily seen on the screen. Users with visual impairment may require the app’s audible alerts. In addition, several times a day I click on the eWeather HD app widget, where a large view of the barometric pressure graph appears. Click on the “in” button in the top right corner, and the graph alternates between U.S. Provider & Foreca.com pressure graphs.

eWeather HD Android app home screen Icon Notifications of Barometric Pressure Graph, which is a helpful tool in Health Monitoring of Migraines, Headaches, Arthritis, and other Medical Disorders.
The eWeather HD Android app features multiple Task Bar Icon Notifications, including, of Barometric Pressure which is a helpful in Monitoring Migraine, Headache, Arthritis, and other Medical Disorders.

To set up customizable icon & audible alert notifications in the eWeather HD app, go to the OPTIONS panel. Press the “open menu” button on your phone within the eWeather HD app and scroll down to “options” near the bottom of the list. This is where you set up weather and barometric pressure alert information for both your task bar & home screen widget. First, select the “Alerts” option near the top of the options panel (not pictured in the screenshot below as it’s a long panel).

UI Panel options in the eWeather HD App.
UI Panel options in the eWeather HD App.

Click on the “Alerts” option near the top of the panel, and check the boxes like in the screenshot below.

eWeather HD App options panel to set up alerts
eWeather HD App options panel to set up alerts

Next, go to the main OPTIONS panel and select the “Status Bar Notification” in the lower portion of the panel. Select “Pressure Changes” like in the next screen.

eWeather HD App options panel status bar notification
eWeather HD App options panel status bar notification

Then check the appropriate boxes under “Pressure Changes” and select whether you want to receive an “audible notification” like in the screen below.

eWeather HD App options panel option to select pressure changes
eWeather HD App options panel option to select pressure changes

This concludes set up of alerts & notifications for Android devices. For help with the eWeather app widget, see “frequently asked questions” section under “About” on the OPTIONS panel.

To obtain a Google Promo code for a FREE download of the eWeather HD app for Android on Google Play, email your request to the address at bottom.


How to set up & View eWeather HD app on IOS Devices

New Sept. 17, 2017 Update for eWeather HD app for Apple/IOS Devices:

In this update, the Weather Alerts & Notifications feature that had not previously been operable, I am told is now available. After numerous inquiries here from IOS users, I spoke with the Elecont developer. So these features are now apparently available within the IOS versions of the app. I do not personally own an IOS device, so I am not able to test it out or provide screenshots. But if any IOS users would like to do so, leave a comment on your experience with this, and also include if you took screenshots – email them to me. And I will add them to the IOS installation and user instructions here.

While most of the eWeather HD app features and displays are quite identical on Android and IOS devices, audible Alerts & Task-bar (on-screen) Notifications were not previously available on iOS devices. I attended an iOS developer event and was able to see and understand the iOS issues with the app. The alerts & on-screen notifications had to do with Apple’s “Apple Push Notification” service, or APNs, which is the centerpiece of their network notifications, and involves additional security coding that has not yet been submitted for the iOS version. Apple has very strict requirements with their platform. Comparatively, on Android devices, I believe notifications & alerts are more “locally controlled” on the device and do not require the network security features. So, I encourage IOS users to get this most recent Sept. 17, 2017 update and explore the new alerts & notifications functionality.
As I have stated repeatedly, I do NOT use the AUDIBLE alert feature for barometric pressure changes on my Android device. I watch the on screen widget & visual icon on the top of my phone’s task bar. When a rapid rise or fall in pressure is predicted or already occurring, both the visual alerts and the barometric pressure graph turn RED. When I see this, I open up the app and study the graph. If you have been using the app – then you likely know what types of rise/fall in the graph will trigger a specific level of headache or other complaint your tracking with the app. As always, there are other contributing health factors that can worsen or less a migraine or headache. Your personal user experience becomes an invaluable part of your preparation and management of complaints triggered by the changes in barometric pressure.
You can purchase iOS versions of the eWeather HD app via the links below:

Purchase eWeather HD app for IOS devices at the Apple/iTunes store, follow the links, installation screenshots, and link to Elecont’s customer support page:
Apple iTunes Store: eWeather HD App
Elecont eWeather “Customer Support” page for Apple iTunes Installation
As of my update on 9.19.17, the developer had not updated the above forum page on the addition of Alerts & Notifications – and I asked that they do so.
Below are Task Bar & Widget Notifications available on my own Android device. I do not use the audible alerts as I explain below.
Notification icons that I personally use on my own Android phone include (SEE my screenshots of this in my above Android discussion):
1) Icon in lower right corner of 2×2 widget on my home screen;
2) Task bar Icon at the top of my home screen;
3) List of Icons for eWeather HD & other phone functions on the Task Bar (top of phone home screen). Barometric pressure Notifications turn red when there is significant change in barometric pressure. The colored Icon can readily be seen on the screen. Users with visual impairment may require audible alerts. In addition, several times a day I click on the eWeather HD app widget to view the barometric pressure graph. Clicking on the “in” button in the top right corner allows the graph to alternate between U.S. Provider & Foreca.com.

When task bar icons notifications become available in the IOS version, I suspect it will be set up from within the OPTIONS panel, very similar to how it is on Android. On Android, you press the “open menu” button within the eWeather HD app, and scroll down to “options.” Next you look for the option called “Notifications,” and then select the weather data you’d like displayed in on-screen notifications. Again I only use Task Bar Notifications, plus a home screen Widget with Icons I selected from within the options panel.
I will post new UPDATES on this ALERTS & NOTIFICATIONS iOS issue at the top of this blog, as well as discussions here, on fixes for alerts & notifications. The program screenshots below were kindly shared by an IOS device user. The app has the same features as the Android version, except for the Alerts & Notifications. iOS users must manually open the app to monitor BAROMETRIC PRESSURE changes.

Elecont eWeather for iPhone.pressure screenshot1
Elecont eWeather for iPhone.pressure screenshot1
Elecont eWeather for iPhone.pressure screenshot2
Elecont eWeather for iPhone.pressure screenshot2
Elecont eWeather for iPhone.pressure screenshot3
Elecont eWeather for iPhone.pressure screenshot3

And here’s the eWeather Apple app screenshot of its barometric pressure graph once the app is installed and operational.

Elecont eWeather for iPhone.pressure graph
Elecont eWeather for iPhone.pressure graph

My eWeather HD App Migraine/Headache Case Study

Below, is my own eWeather App case information from an episode in 2015 that forced me to stop working, lay down, take medication, and engage the eWeather HD app as an mHealth tool to salvage my day.

And as I lay down with shades drawn, I clicked on the widget of my Elecont eWeather HD app, where I could see I was in the midst of a very sharp fall in barometric pressure (screen image below). The app showed a “9 pt. drop” in only an hour – which is a very significant drop. It is the “rapid drop” in barometric pressure that is the most common trigger of migraine headache, next to stress.

My next step was to perform a valsalva (breath pressure) maneuver – which I use in my hydrocephalus and migraine care, to test my response to a temporary increase in brain blood pressure (BP) and intracranial pressure (ICP). If you’re experiencing a (hypotension) migraine from rapidly falling barometric pressure, often times valsalva maneuvers and changes in posture (up & down) over a 20 minute period, can provide some relief.

To do a valsalva maneuver, simply hold your breath for a few seconds while straining as though you were lifting something. Then note the change in your headache during the maneuver. If it feels relieving, that suggests your headache is due to low pressure or a “cerebral hypotension” brain state. If there is no change, that would suggests either your headache is unrelated to weather pressure, or your pressure is so low that the valsalva did not counter your low pressure enough. If your headache worsens with this valsalva straining, that would suggests hypertension & elevated BP and/or ICP, and you should discontinue any further straining maneuvers.

With my migraine on that day, I got headache relief almost immediately from the valsalva pressure maneuver, and continued to perform these low pressure offsetting maneuvers. As I’ve used the app for several years, I knew today’s drop in pressure was unusual and steep. The eWeather App also changes the color of the graph to “red” during a steep rise or fall in barometric pressure. I put 2+2 together, and I concluded the sudden drop in pressure was likely the cause of my migraine headache.

I stayed supine for almost an hour, while continuing to perform 2-3 valsalva maneuvers each 10-15 minutes. Within 30-45 minutes, I was feeling like new! I also soon observed the barometric pressure to level off on my app’s display. Below is my screen image:

The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.
The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.

Weather Web Sites

Weather web sites also offer some barometric pressure information. Prior to the Elecont HD weather app, I primarily used two online weather sites. Weather Underground lists barometric pressure forecast data, but only 6 hours of forecast data the last time I looked.

Two weather web sites I used in the past include Weather Underground and Weather For You. For these, you need to put in your zip code or city to view the weather panel for your area. They list a table and graph options for weather data. Weather Underground gives 6 hour forecasts ahead on barometric pressure.


The Medical Science of Migraine Headaches

Migraine headaches are typically due to cerebral hypotension, where blood vessels in the brain become dilated, resulting in low blood pressure in the brain, and then headache. During weather change, a sudden falling of barometric pressure can leave you further vulnerable to cerebral hypotension. And it is the rapidly falling barometric pressure that is often the trigger of a migraine. Menstruation, and its associated blood loss, can also contribute/help trigger cerebral hypotension and migraine.

Knowing the cause of your migraine will help you best treat it. In the case of my migraine on this day, it was the sudden drop in barometric pressure that induced my headache. My quick assessment of its cause, then allowed me to undertake swift intervention.
Valsalva maneuvers and laying down preferably in a dark or quiet room, is a common treatment in migraine. But some may also need medication. You should keep watch on the barometric pressure during a migraine to confirm that it is stabilizing.

This illustration shows how nerve fibers become inflammed during a migraine.
This illustration shows how nerve fibers become inflammed during a migraine.

Weather related headaches affect some 15% or more of the world’s population. Migraine is also common in the disorder, hydrocephalus. Migraine headaches are also passed on thru family genetics.

Much has been written about the connection between weather and migraine headache. The popular over the counter medicine, Excedrin, combines aspirin or Tylenol with caffeine (a vasoconstrictor) to offset dilated blood vessels (cerebral hypotension) which is the most common scientific explanation for migraine headache. Excedrin helps both with pain and constricting of the dilated blood vessels. For this reason, Excedrin is uniquely helpful in the treatment of weather related migraine. Below, is a web page Excedrin has published on the weather-migraine connection.

CAN WEATHER CHANGES CAUSE A MIGRAINE? (Excedrin.com)

Excedrin is used to help manage pain associated with migraine headache.
Excedrin is used to help manage pain associated with migraine headache.

The Mayo Clinic hosts a nice web site section on migraine:

Migraine information at the MayoClinic.com

The Mayo Clinic web site offers an easy to understand interface & wealth of reliable health and medical information.
The Mayo Clinic web site offers an easy to understand interface & wealth of reliable health and medical information.

Self Care of Migraine Headache

Learning to use mHealth Apps to manage illness.
Learning to use mHealth Apps to manage illness.

Smithsonian Magazine: Can This App Predict Your Headache?

The above Smithsonian Magazine article primarily discusses the feasibility of whether the Migraine Buddy app can predict migraine headache. For more on this, SEE my review and comparison of the Migraine Buddy app and Headache Diary Pro and how each can integrate with the eWeather HD app further below.


I have written much about how to use mHealth apps, home treatment, and prevention of medical disorders. And migraine can be better managed by following my tips in this section.

One simple technique is to have a cup of coffee or tea right before onset of a migraine. Caffeine acts to constrict dilated blood vessels in the brain, and can also be used prophylacticly head off an onset of migraine and cerebral hypotension – before a big headache strikes. Similarly, exercises like yoga, which involve frequent changes in posture (eg. standing to lying down), can can help to normalize cerebral hypotension and your brain’s ill-fated response to falling barometric pressure.

Drinking 2-4 glasses of water can help treat migraine headache.
Drinking 2-4 glasses of water can help treat migraine headache.

Another more pragmatic remedy that helps me is rapid hydration with water (two to four 12 oz. glasses) over a 15-30 minute interval at first onset of symptoms. The water helps raise blood pressure (BP) and infuse fresh blood and nutrients into the brain. Other remedies include changing postures from standing to laying down over 30 sec to 2 minute intervals, and light exercise with short interval BP surges. This helps to flex the tiny blood vessels in the brain most responsible for migraine. Regular exercise also improves your intolerance to cerebral hypotension. PRECAUTION: Should you suffer from high blood pressure or heart disease – you should consult with your doctor before doing these physical exertion exercises.

Once a migraine event has begun, it is recommended you lay down supine for at least 15-20 minutes to raise your brain’s blood pressure and help offset the hypotensive state.


Loud/monotonous sounds, stress, other illness, and poor sleep can also leave you more susceptible to migraines. Many migraine sufferers also suffer from SPD or sensory processing disorder,” and become overly sensitive to loud ertatic sounds. It’s important during a migraine, to remove yourself from sources of light, sound, and commotion as best you can, as it helps calm the brain. The following is a detailed blog I’ve authored on sensory processing disorder:

New Insights in Management of Sensory Processing Disorder (SPD)

Brain centers involved in SPD or sensory processing disorder, courtesy of UCSF
Brain centers involved in SPD or sensory processing disorder, courtesy of UCSF

Women during menstruation are also more susceptable to migraine from the slight blood loss causing a hypotensive state. Coupled with a drop in barometric pressure, if you are a woman common to this syndrome, menstruation and barometric pressure drop can send you into a full migraine crisis. To offset this, you should drink extra fluids during menstruation.

Migraine sufferers should also limit intake of alcohol, as this can lead to dehydration, and alteration of brain neurotransmitters. Also limit foods with high fat and sugar content as this compromises healthy circulation in the brain. You will likely see a noticeable difference in frequency and severity of your migraines just by altering your intake of alcohol, fat, and sugars.

To help reduce sensitivity to changes in barometric pressure, regular exercise like yoga can help brain compliance and cerebral blood flow. Breath work and meditation also help improve blood flow in the brain, and your stress response. Drumming is an excellent exercise as it also reduces stress. Weight lifting, sports, walking, and all exercise helps improve blood flow in the brain, that can offset migraines. Below, the Mayo Clinic web site offers some info on migraine.


For many migraine sufferers, weather related triggers pose regular challenges. Here I personally have found the eWeather HP app to be an excellent mHealth tool for alerting you of coming changes in barometric pressure. Managing migraine, and its many different causes, can be a complex health challenge. So you should be discussing the eWeather HP app and other details ith your doctor.

My initial blog on weather monitoring for migraine was in 2014. In that blog, I shared my experiences on the use of weather web sites and the eWeather app. But the eWeather Elecont app has become the best tool for managing weather induced migraine headache.

With the condition hydrocephalus, which I live with, a headache during rising pressure could also indicate an early sign of shunt malfunction, signal an improperly programmed CNS shunt, or be a sign you’re not yet stable following shunting or ETV. As a significant headache [during high barometric pressure] could indicate “shunt malfunction,” you should take this up with your doctor.

The eWeather HD App can be used to help manage migraine headache associated with a number of neurological disorders.
The eWeather HD App can be used to help manage migraine headache associated with a number of neurological disorders.

How to obtain your FREE Android eWeather HD Google Promo Code

The Google Promo code for the Elecont eWeather HD App is a $4.99 value. Per the developer, no free downloads are available for Apple devices. I strongly encourage you READ my entire blog after downloading the eWeather HD app.
To obtain your FREE Google Promo code, email me at contact [at] dollecommunications [dot] com – I will email you back your code, usually within a couple hours, but almost always within 24 hours.

How to Install your eWeather HD Google Promo Code

1. Once you’ve obtained your “Google Promo code,” go to the Google Play store and search for eWeather HD app (or similarly follow the link in my email). I’ve heard mixed feedback as to whether you SHOULD or SHOULD NOT be signed in.
2. Next click and open up the app – and you should see a panel as in STEP1 below. Click on INSTALL.
3. You should now be given the option to buy with a Google Promo code. Do not select BUY if you’re signed in as the $4.99 might be billed to your Google account. You need to be at the REDEEM YOUR CODE panel as seen in STEP2 below. For some users, you may need to sign out of Google Play store in order to see the REDEEM YOUR CODE panel.
4. Next, enter the Google Promo code I emailed you and select REDEEM. Then select ACCEPT. You should immediately see the app installing.

eWeather HD android installation with Google Promo code Step1
eWeather HD android installation with Google Promo code Step1
eWeather HD android installation with Google Promo code Step2
eWeather HD android installation with Google Promo code Step2
eWeather HD android installation with Google Promo code Step3
eWeather HD android installation with Google Promo code Step3
eWeather HD android installation with Google Promo code Step4
eWeather HD android installation with Google Promo code Step4
eWeather HD android installation with Google Promo code Step5
eWeather HD android installation with Google Promo code Step5

Purchase the eWeather HD app for Android devices directly at the Android store, follow this link:
Android Play Store: eWeather HD App


Purchase the eWeather HD app for IOS devices at the Apple/iTunes store, follow these links – plus SEE installation screenshots and link below to Elecont’s customer support page:
Apple iTunes Store: eWeather HD App
Elecont eWeather “Customer Support” page for Apple iTunes Installation


Android Mobile Apps for the Home Care of Migraines & Headache

This section compares two leading Android mobile “migraine” apps I have used for home care of migraine headache, and can offer my insights. These apps would need to be used in addition to the eWeather HD app as neither provides any monitoring or alerts on changes in barometric pressure. Headache Diary Pro vs Migraine Buddy. I use the “pro” version of Headache Diary, and the “free” and only version of Migraine Buddy. They are nearly identical in application, but differ in their UI panel and usability. Where Headache Diary Pro provides all the necessary monitoring and migraine reports, Migraine Buddy charges a monthly or yearly subscription for their reports. I find the Migraine Buddy a more detailed and user friendly program. But you would need to have a significant migraine problem to spend $9 per month or $90 per year.

My recommendation as to your individual use of the eWeather HD and above apps is based on the severity of your migraine issue as to the degree that it impairs your quality of life. That should determine how much time and money you may want to spend on these.
eWeather HD app: If you are certain that your migraines are often triggered by changes in weather, then this app is a must for you. You may also want to download one of the migraine apps if your condition poses significant to quality of life. The eWeather HD app is not too difficult and time consuming to set up. And it offers many other weather features such as 10-day weather forecasts, live radar, weather alerts, and earthquake alerts, to name a few.
Headache Diary Pro: I have used this app for several years and find it very adequate for recording and storing migraine data to later print out when you see your doctor. It’s fairly simple to use. And I don’t believe there are any other additional costs to use.
Migraine Buddy: The Migraine Buddy is perhaps the newest mHealth design of any of the migraine apps I’ve looked at. I downloaded it today and ran it thru a trial headache event. While I favor its UI interface over the other migraine apps, I am not willing to pay a monthly or year subscription fee to get the results. This is a decision only each of you can make as to how migraine affects your quality of life, and what you are willing to do to possible better manage it.

If money weren’t an issue, I’d likely choose Migraine Buddy. But be forewarned, the Migraine Buddy and Headache diary Pro (and likely all migraine apps) require a significant investment of time. If you suffer daily headaches from hydrocephalus as I do, one of these two apps can be helpful. But, the more time and thought you give to your headaches, the more they seem to take up space in your mind. This goes the same for pain and pain management too. Below is the Manage My Pain Pro app I have tried and found helpful for pain management, though time consuming.


Mobile Health Apps for Hydrocephalus

Living with Hydrocephalus for most means the implanting of a CNS Shunt as Illustrated here.
Living with Hydrocephalus for most means the implanting of a CNS Shunt as Illustrated here.

As I have written about the use of mobile apps for migraine headache, I wanted to also share some more specific applications I’ve written about for persons with hydrocephalus. Two of the most common apps I use (Metal/EMF Detector, Decibel Meter) can be found on the Smart Tools web site. I’ve used these apps for several years and find them helpful in managing hydrocephalus and SPD related complaints. I also now have a special blog of apps and tips for living with hydrocephalus below.

DolleCommunications Blog of Apps & Tips for Hydrocephalus

Smart Tools Page on the Android Play Store

Smart Tools Apps on the iTunes Apple Store

Metal Detector – This EMF app is handy for measuring magnetic fields in your surroundings from various electronic devices & household appliances should you have a programmable CNS shunt for hydrocephalus. I personally have used the Smart Tools Metal Detector for 4 years and find it accurate and helpful.
Sound Meter – Decibeter meter apps measure the loudness of sound around you should you be sensitive to sounds as a result of hydrocephalus, autism, and other disorders that often lead to sensory processing disorder, or SPD. I personally use the Smart Tools decibel meter app and find it accurate and helpful.

Chosing the right mHealth App can be confusing.
Chosing the right mHealth App can be confusing.

List of Apps & Web Sites Discussed in this Blog

Android Play Store Elecont HD Weather App link
Apple iTunes Store Elecont HD Weather App link
Smart Tools Page on the Android Play Store
Smart Tools Apps on the iTunes Apple Store
Earlier March 2014 Blog on Weather & Migraine
Weather Underground
Weather For You web site
Drumming for Workplace Wellness
Drumming Therapy in Cerebral Palsy and Autism
Mayo Clinic – Migraine Answers
Mayo Clinic – Migraine Headache

Shunt Monitoring and Consults for NPH & Hydrocephalus
DolleCommunications Blog of Apps & Tips for Hydrocephalus


I hope you’ve enjoyed this blog and found health tips to help in managing your migraines. If I can be of any specific help in mHealth design, use of these apps, hydrocephalus care & monitoring, drum circles for wellness and brain health, or speaking on these topics, please contact me via the information below.

Please also email me for a Google Promo code for a FREE download of eWeather HD for Android devices (Google Play store).
Stephen Dolle
Email: contact[at]dollecommunications[dot]com
Dolle Communications

Mobile Apps and Patient Tools for Living with Hydrocephalus

This blog discusses mHealth mobile phone apps and accommodations for living with hydrocephalus.

I initially wrote this in 2015 under the title “Spread Awareness of Hydrocephalus on Rare Disease Day.” But then following several large updates of content, on April 18, 2016, I changed the title to “Mobile Apps and Accommodations for Living with Hydrocephalus,” which I feel more aply represents its content now. I discuss many of the everyday challenges faced by persons living with hydrocephalus, and discuss my experiences with specific mHealth mobile apps and accommodations-solutions needed for everyday living.
Hydrocephalus is a neurological disorder where CSF (cerebral spinal fluid) is not sufficiently cleared from within and around the surface of the brain – from a variety of etiologies. The fluid then abnormally collects in the brain’s ventricle compartment thereby exerting abnormal and often dangerous pressures on critical structures of the brain. It is normal to have CSF in the brain, as it is produced in the choroid plexus at a rate of about 20cc per hour. It’s primary purpose is in regulatiion of blood pressure (BP) and intracranial pressure (ICP). It also circulates up & down the spine and helps to circulate needed nutrients throughout the brain. Hydrocephalus then develops when the brain is not able to clear CSF fluid at the same rate it is produced, more often resulting in swelling of the ventricles – except in NPH, or normal pressure hydrocephalus, where there may be limited or no swelling, and normal amounts of pressure.
Hydrocephalus occurs in utero and shortly after birth in 1 of every 1000 births. It also occurs in children from cysts and tumors, and somewhat also in adults. It occurs post trauma through subarachnoid bleeding, and idiopathicly, or naturally, from anatomical malformations of the brain and brain-stem, and from aging. Its overall prevalence in the U.S. is estimated at about 40,000 to 50,000 new cases each year. But due to its broad spectrum of causes or etiologies, hydrocephalus has been accepted into the rare diseases database. Many scientists continue to refer to hydrocephalus as a rare disease because of its association with genetic birth defects. The illustration below identifies where CSF is produced and circulated within the brain.

Brain Diagram of Ventricles often Enlarged in Hydrocephalus

Brain Diagram of Ventricles often Enlarged in Hydrocephalus

DolleCommunications is my neurosciences blog I launched in 2010 after becoming affected by hydrocephalus following a 1992 auto accident and concussion. The photo of me below was taken in 1998 after one of the shunt surgeries where I had used my newly developed DiaCeph Test mHealth method to help direct replacement of the needed medical device components on my CNS shunt system.

Stephen Dolle invented his DiaCeph Test following his 1996 FDA petition that was then used to direct this 1998 shunt surgery

Stephen Dolle invented his DiaCeph Test following his 1996 FDA petition, which was then used to direct this 1998 shunt surgery

A CNS (central nervous system) shunt is the most common form of treatment for hydrocephalus. It is a two or three piece catheter with a one-way pressure valve that more often drains into the abdomen, or peritoneum, where it is termed a VP shunt. Alternately, it can drain into the heart (VA shunt), or draw fluid off the spinal canal into the abdomen (LP shunt). Over the last 20 years, a newer surgical procedure, a 3rd ventriculostomy, has been developed where a small opening is made in one of the ventricles (usually the 3rd), which if successful, allows for proper circulation and clearance around a an aqueduct blockage and can negate dependance on a CNS shunt. Only 10-15 percent of those with hydrocephalus will benefit from this procedure.

Great pic NHF members affected by hydrtocephalus at a 2015 Orange County fundraiser.

Great pic NHF members affected by hydrocephalus at a 2015 Orange County fundraiser.

It is common knowledge today that shunt technology is in need of modernization. Present day treatment outcomes (esp. with CNS shunts) often leave individuals with significant quality of life challenges with no shunt diagnostics to provide early warning shunt malfunction or accidental reprogramming, which is all to common and can result in brain damage and/or blindness. Since my onset in 1992, I’ve undergone 12 shunt revisions.
Living with hydrocephalus and especially a CNS shunt presents a number of key challenges, most notably, shunt malfunctions and corrective surgery, but also frequent headaches, cognitive and memory difficulties, challenges with balance and hand/eye coordination, and difficulty adapting to a noisy and complex world where the necessary accommodations are widely unavailable today. I discuss some of the challenges and much needed accommodaitons for hydrocephalus further below.

Shunt Illustration for Hydrocephalus

Shunt Illustration for Hydrocephalus

I became involved as an FDA patient advocate and inventor in hydrocephalus several years after my onset of hydrocephalus. As a patient advocate, I authored a critical 1996 citizen’s petition to the Food and Drug Administration (FDA), plus made recommendations at the 1999 STAMP Conference in Bethesda MD. I’ve also written FDA position papers and recommendations for the oversight of shunt technology, and spoke at the 1999 STAMP Conference in Bethesda, Maryland.

Stephen Dolle in Washington, D.C. for the FDA's 1999 STAMP Conference

Stephen Dolle in Washington, D.C. for the FDA’s Hydrocephalus STAMP Conference in 1999.

After writing my FDA petition on CNS anti-siphon shunts in 1996, my research led me to design and patent a non-invasive monitoring system for hydrocephalus, I named the DiaCeph Test. It initially was to run on a PDA. But I could not raise the necessary funding to make it. The DiaCeph Test today could be made into a mobile phone data and text app. Most of the development costs today is still from burdensome FDA guidance on mHealth apps. If it were available, it would revolutionize the care of hydrocephalus.

The DiaCeph App Creative Brief details its design and unique features in monitoring of the disorder hydrocephalus

The DiaCeph App Creative Brief details its design and unique features in monitoring of the disorder hydrocephalus

DiaCeph Test could be Mobile Phone App

In 2009, after many years of patient advocacy and answering inquiries from affected patients, I began offering patient consults for a fee. Most of my patients have been those affected by complex hydrocephalus, and with unresolved challenges. Unresolved complaints and unsatisfactory outcomes are common in hydrocephalus – as high as 70 percent of all patients with hydrocephalus.

I am also very involved with weather apps and barometric pressure monitoring. A link to my primary blog on this is listed further below.

My biggest new discovery in this space comes from a study I undertook in 2017 with the MigraineX ear plugs used in the management of headache, but also in sound suppression. I found that insertion of MigraineX ear plugs before, and even after a harmful sound exposure has occurred, can lessen the associated headache, irritability, cognitive, and SPD complaints by 50% or more. So I carry my MigraineX ear plugs with me all the time to manage sound exposure & associated SPD complaints. They are particularly helpful amid noise from construction, machinery, malls, restaurants, theatre halls, and more. They sell for about $12 on Amazon and at many drug stores.

I have also been undertaking barometric pressure monitoring now with my Samsung phone’s built in barometric pressure sensor. The built in sensor can display sharp short term changes in pressure that weather sites & apps do not display. Most newer high end smart phones have this sensor built in. But you need an app to get the display. For this, I currently use uBarometer Pro. I have been able to correlate these short pressure changes as triggers of pain and headache.

The web link (web page) below describes how to obtain a consult for hydrocephalus, shunt monitoring, and mHealth monitoring with custom apps, and DiaCeph forms and user instructions.

Hydrocephalus & Shunt Monitoring Consults

Prosperity is based on sound information.
Prosperity is based on sound information.

In 2004, I became involved in drum circles after earlier playing piano, vocal work, and some stage & film. I initially used piano as a form of therapy for my challenges, then later guitar, then in 2004 percussion. I immediately realized a call to become more involved in drumming, and I began to take classes, and eventually help put on drum circle events. Today, I am very involved in drum circles and drumming for the brain & wellness and for disorders like hydrocephalus.

Drumming Therapies for Wellness and Neurological Disorders

On Sept. 24th, 2015, I held two drumming workshops at the 2015 NHF Patient Power Conference in Anaheim, CA. My methods help with others with balance, coordination, cognition, and communications challenges. SEE info in the flyer below.

Seniors came alive in this 2010 drum circle for wellness and movement.

Seniors came alive in this 2010 drum circle for wellness and movement.

Drumming workshop for balance and movement challenges in living with hydrocephalus

Drumming workshop for balance and movement challenges in living with hydrocephalus

One of the more problematic challenges with hydrocephalus, and most neurological disorders, is with cognitive accessibility and it’s related sensory processing disorder, or SPD. These challenges are often disabiling and occur in hydrocephalus and neurological and learning disorders such as autism, ADHD, PTSD, Parkinson’s, stroke, post tumor, addiction, and even migraine. I have written about both fairly extensively. And own the domain CognitiveAccessibility.org – which I am yet to host a web site. I currently have it pointing to a supporting temporary page on my main web site.

Cognitive Accessibility accommodations er CognitiveAccessibility.org

CognitiveAccessibility.org

CognitiveAccessibility.org

COGNITIVE ACCESSIBILITY describes the array of accommodations and protections needed today by affected individuals. Without these protections, cognitive dysfunction and often one’s mental health state are easily exacerbated (made worse) by exposure and stress of unhealthful cognitive triggers. In fact, today there is a large lawsuit brought by families with autism against Disney World for failing to offer cognitive disability access to park rides. The science is real. I’ve experienced thousands of first hand accounts.

Common cognitive triggers include loud TV & radio commercials, loud helter skelter music, noisy construction equipment and machinery, bright lights, and powerful odors. When these triggers are present and not managed properly in public places, they restrict access by persons susceptable to it. Today we know that mental health and physical brain changes go hand in hand, meaning, one affects the other. This next blog describes many of the key sensory challenges in sensory processing disorder (SPD) and sensory challenges in hydrocephalus, and related disorders. Below, is also a recent diagram on the brain’s mechanisms involved in sensory processing disorder.

Brain centers involved in SPD or sensory processing disorder, courtesy of UCSF

Brain centers involved in SPD or sensory processing disorder, courtesy of UCSF

New Insights in Management of (SPD) Sensory Processing Disorder

The protections cited are for public facilities where the triggers can often prevent an affected individual from safe and healthful use. It is said be a part of current disability law (i.e. autism v. Disney lawsuit). But rarely is enforced. Most people are unaware of the science and cause and effect of the triggers to behavioral melt-downs. In addittion to sensory protections, there needs to be better understanding of directions on UIs of web sites, signage, directions, product labels, etc. Today, I find you’re more likely to see a foreign language accommodation, than a cognitive disability one.

TSA Cares Logo

TSA Cares Logo

Airport Travel, Screening, and TSA Services for Persons with Hydrocephalus

This blog features updated information on TSA Meet and Assist services for passengers with disabilities, and safety information on airport scanners for safe use by persons with programmable shunts for hydrocephalus. I also cover use of TSA Meet and Assist services for persons with cognitive disabilities, and information on the Air Carrier Access Act.

Airport scanners had earlier worried me as I live with a programmable CNS shunt for hydrocephalus, and I have been over-exposed to radiation from CT brain scans. With my Codman Certas CNS shunt valve, I do not go thru the metal detectors at airports or anywhere (even though some state magnetic field is safe for my shunt). I recommend that if you have any type of programmable CNS shunt, that you do not go thru metal detectors.

I’ve since updated this blog with newer information on the safe use of airport scanners.

The next two blogs list helpful information on mobile apps for sensory processing disorder, as well as apps I use and recommend for living with hydrocephalus.

Google play-store-logo

Blog: Mobile Sound Apps for Hydrocephalus & Sensory Processing Disorder

Barometric Pressure graph reveals steep drop and rise which can trigger micraine headache
Barometric Pressure graph reveals steep drop and rise which can trigger micraine headache

eWeather HD App helpful in Managing Weather related Migraine Headache

This next blog is a discussion of how to best select and design medical and mHealth apps. It comes from my many years of experience in mHealth & diagnostic medicine.

mHealth Apps in Neurology

mHealth Apps in Neurology

Design and Best use of mHealth Apps

Perhaps my most creative public outreach is the fun HydroPowered.org web site for hydrocephalus. I created this in 2013 as a fun platform to share art, technology, and super-hero stories among those affected by hydrocephalus.

HydroPowered.org Share the Passion for Hydrocephalus

HydroPowered.org Share the Passion for Hydrocephalus

Blog on HydroPowered.org Platform Connects Hydrocephalus Families

Let’s undertake some effort in hydrocephalus for Rare Disease Day. If needed, I am prepared to call upon “The Hulk” for a little extra help.

The Hulk comes to the aid of brain injured survivors in crushing this tree trimming machinery

The Hulk comes to the aid of persons with cognitive disabilities & SPDs, crushing this noisy tree trimming machine.

Apps & Web Sites I Recommend for Persons Living with Hydrocephalus

Android Play Store Elecont HD Weather App link

Apple iTunes Store Elecont HD Weather App link

My *Blog on eWeather HD* App and How to get FREE Android Download

My Blog on Tips for Sound Sensory Processing Disorder

Smart Tools Page on the Android Play Store

Smart Tools Apps on the iTunes Apple Store

Smart Tools Instruction Manual

Tips on Airport Travel, Screening, and TSA Services for Persons with Hydrocephalus

Drumming for Wellness workshops

Drumming in the Workplace

Drumming Therapy Case Study in a Child with Cerebral Palsy and Autism

HydroPowered.org

Shunt Monitoring and Consults for NPH & Hydrocephalus

DiaCeph Monitoring Method hopes to be new Mobile App

If I’ve left out any my blogs or apps, please let me know. If I may help you with hydrocephalus mobile apps, hydrocephalus consults, or drumming therapy for hydrocephalus, or if you are interested in furthering the development of the DiaCeph Test or other mobile apps for hydrocephalus, let me know. Contact me via my info below. Feel free to CLICK and SAVE my contact JPEG card.

Stephen Dolle
Email: contact[at]dollecommunications[dot]com
Dolle Communications
HydroPowered.org
StephenDolle.com

Hail Napster: How Napster led to moral decline and NSA Surveillance seen in CitizenFour

Internet Access Screenshot

The Internet of Things (IoT) and online practices of late have really turned into the Wild Wild West. Hacking, identify theft, rude behavior, scams, dishonesty, and malicious attacks are now very commonplace. Ads blanket your view of web pages with often deceptive hidden links or malware. It’s often not apparent if a person is who they say they are. It’s become a lawless environment. Heck, even our own U.S. government & NSA are involved in hacking and clandestine Internet activity. But, how did the Digital Age deteriorate so to this point?

Napster Logo
Napster Logo

One of the earliest and most instrumental web sites that helped shape our online behavior and this social change was Napster, the first music file sharing web site, which allowed free music file sharing from about 1999 – 2001. It was eventually shut down for copyright violations, which the company should have known was unlawful. Because of this, I believe Napster helped to shape (deteriorate) today’s Internet rules and etique more than any other single tech or social net advance. I believe it also gave the NSA agency more political cover in their bold surveillance programs here in the U.S., as reported in the documentary, CitizenFour. And since about 2009, hacking into medical, government, and company web sites has become much more commonplace. Because of these omline practices, many laws, long held traditions, and common decency have been tossed aside.

As I dwelled on the documentary, CiticenFour, and our economic, social, and political challenges, I am reminded of the role that Napster played via technology in changing the way we obtain music, and in ushering more free wheeling practices on the Internet. Today, I find the philosophy, “If it ain’t locked down, it’s yours,” very problematic. This new era philosophy is also reaping havoc on social & public policy. And in a round about way, CitizenFour is bringing discussion to the moral failures of our time, which could be corrected, or made worse, by Digital Age advances.

CitizenFour
CitizenFour

I was recently reading about the Anthem & UCLA health plan data breachs and how as many as 80M subscribers and affiliates had personal information stolen. I grew up in the 60s during an era of “free expression.” But we didn’t steal! And I can say [today] that the only laws we didn’t respect were ones that were WRONG! All but a couple have since been corrected.

Today, many people, organizations, and companies outright thumb their noses at our laws, while they attempt to rewrite them through activism, lobbying, and PACS. Often their efforts are morally and legally wrong. For instance, the news reports of Planned Parenthood being involved in selling fetal [abortion] organs. Where in Roe v. Wade did the court provide for that? These groups don’t care about the country, nor the consequences of their actions. There is ample evidence today that these kinds of widespread dishonest beliefs and methods of conducts, are responsible for most of the upheaval and suffering around the world. In the U.S., this becomes even more complicated through disinformation through political activism and the media, i.e. the “spin game.” But what we need are wisdom, leadership, and trust.

Knowledge is where spiritual enlightenment meets wisdom
Knowledge is where spiritual enlightenment meets wisdom

I seem to recall a couple of years ago all the excitement in the U.S. news media about the “Arab Spring.” My understanding of this was that the Internet Age had finally had its presence felt in the very troubled Middle East, and reports were everywhere that mobile devices & Internet connectivity were going to enable local populations to take back control over their own communities, states, and countries. But here we are two years later, and we don’t hear about the Arab Spring. We don’t hear about freedom. We don’t even hear about self-governance. All we hear about is ISIS, beatings, beheadings, and thousands on migrants in desperate need of help! How in the #%!*? did freedom disolve to this?

Arab Spring North Africa

I think the leadership of the U.S. was philosophically complicet in the failures of the Arab Spring, when the Obama administration shared that they too would shut down the Internet in the event there were some type of uprising here in the states. Furthermore, I have a gut sense that leaders around the world, albeit of free nations, or vicious dictaters over troubled regions, have been sent signals that the West will not intervene politically. So I’m confused. How can we on one hand say that we want people to be free to self govern, while at the same time say that if you actually try and do it, you’ll be “turned off” digitally?

And for the above reasons, I attribute the free wheeling philosophies of the Digital Age to the slow U.S. & global economy and general lack of trust and unrest. I additionally feels these views empowered NSA to feel it was permissible to collect information on good Americans, which could potentially be used/sold in matters unrelated to homeland security.

Today’s digital age philosophy has also minimized the lawlessness in data breaches in areas like medical and other web sites, which is compromising the availability of new mHealth technologies, but also slowing global growth. The philosophy also deflects the moral failures of outsourcing millions of American jobs with little regard to future consequences. And lastly, these free-wheeling views have given activist groups unprecidented say via social media on such matters of public policy and spending, to the dentriment of others much more in need. In the end, it seems the best “liar” wins. Truth and regard for your fellow American comes 2nd.

Today’s dishonest practices have spilled over into conflicting policies on telemarketing too, for example. Though overseen by the FCC, telemarketers can legally obtain and use telephone technology that had been coveted by terrorists and stalkers! FCC instructs affected Americans to file Do Not Call List complaints on their web site. But that web site is probably hacked too. Telemarketers now even give a recorded call back message that you must add YOUR number to THEIR Do Not Call List, which is false. This is just another broad attempt to skirt the law. FCC law is undermined here by an industry permitted to use what would otherwise be defined as “clandestine” equipment.

In another FCC matter, Congress passed the CALM Act in 2012 to end loud TV commercials, which among other things, poses health issues for millions of Americans. But the loud TV commercials continue. FCC recommends filing complaints on each and every loud commercial. Be we could do that until the cows come home.

Still, in recent years, much of the focus of new laws and enforcement has with sexual expression and sexual orientation, at the expense of many more at-risk [esp. homeless] Americans, jobs leaving the country, failed domestic policies, and protecting our borders.

Homless man awaits help
Homless man awaits help

The country (and Internet’s) new philisophy also led to very little legal action on the 2008 collapse of our banking system, an investigation of the false information leading to the Iraq War (now ISIS), and the ill effects of millions of undocumented workers in the U.S. who are depressing wages, overcrowding cities, and straining city services. There is irony here too – that despite so much emphasis on free expression, there is little substantive discussion on issues like illegal immigration, as Donald Trump has found found out, because the discussion of the subject facts & terms is “politically incorrect.”

Knowledge is Power
Knowledge is Power

Any discussion seems to lead to opposing sides spewing false statements and trying to exploit social media for their own devices. Today, Congress and states are left with trying to craft policy that will not withstand the test of time. So, Hail Napster for helping to make this all possible. But, maybe we were headed there nonetheless, and Napster just gave us the opportunity to screw ourselves! But not everyone used Napster & file sharing. I didn’t.

Helping those in need with knowledge, opportunity, and mental health and medical care.
Helping those in need with knowledge, opportunity, and mental health and medical care.

While we as citizens are told to stand down and accept a more lawless society, our government has broadened its domestic powers with policy like the Patriot Act, which permits local police to acquire military weaponry, forbidden by the Constitution. It has become a gray area. These weapons could someday be used against Americans wanting to demonstrate because they disagree with policy. Not a comforting thought. I admit the documentary, CitizenFour, opened my eyes to a lot of this.

But, I was already disappointed with our country of late. There’s a lot to be concerned about. We have policy that is likely to bring about failure, and widespread suffering. Some of these policies are not even founded in law or the U.S. Constitution.

While some hail Napster as one of the great innovations of the Digital Age, I view it as perhaps the 1st major failure of the Internet, the “nuclear bomb” of sorts of the Digital Age. It revealed how we as a society could cast aside longstanding law and moral practices morality, merely for greed! The Napster & NSA failures [CitizenFour documentary] should remind us of our larger responsibilities as a democracy and free society. There is an inherent imperitive “moral clause” in self-goverance. Once this is breached, we must act swiftly to repair it before decay & lawlessness spread. Our 911 tragedy revealed a lot about failed U.S. policies. It also gave way to the Patriot Act and the government’s endless claims over privacy, in the absence of war or any verifiable threat.

Prosperity is based on sound information.
Prosperity is based on sound information.

For me personally, I am still waiting to find out who killed President John F. Kennedy. Why the secrecy? Today the government wants to behave like they’re still in the 1960s. Or like the Catholic church of old!

Napster also changed the way we view intellectual property, commerce, and common decency over the Internet. More than any other single piece of technology, Napster was able to coerce millions of Americans and Internet users down an immoral course to obtaining music without paying for it. This no doubt helped shape today’s lawless social order on the Internet.

Artificial intelligence comes in many forms. Let us not forget who we serve.
Artificial intelligence comes in many forms. Let us not forget who we serve.

So where are we headed now? These technologies are far less useful without trust and adoption. I sense that millions of Internet users are holding back on new purchases and projects today because of uncertainties over Internet privacy and adoption.

On one hand, I can make the argument that the Internet has done more HARM than GOOD. Many mobile apps are in violation of reasonable protections of privacy. Everyone has been assuming that some knowledgeable group or government agency has been reviewing the Permission Agreements which we all [x] sign on. But the truth is, the permissions are often open ended and unreasonable, and few know to what degree their privacy is compromised. Up until the 1980s or so, our country had many highly respected public interest organizations looking out for us. Today, that seems limited to the ACLU, which I’m not even sure if they’re based in America. With so much clandestine surveillance and conflicts of interests, I fear public interest organizations can no longer protect us.

Napster ushered in a seedy new era for the Internet, breaking laws, lowering morals.
Napster ushered in a seedy new era for the Internet, breaking laws, lowering morals.

I was never a Napster member or fan. Despite being very techie, I never illegally downloaded a single song. Not that I wouldn’t on occassion borrow and copy a CD from a friend. But infrequently. And between good friends. Still, Napster did serve as a means to an end. It helped to solve the contraints and fair pricing of today’s music.

In 2015, we find ourselves in familiar territory again needing technology to solve the “unfairness” in the unavailability of TV programs. Access to programs must be fair and reasonable, which we learned in language used by the presiding judge in the DeflateGate NFL case, throwing out Tom Brady’s 4-game suspension on appeal.

In looking back, and forward, each one of us must decide for ourselves on what we view as right and wrong.

Today, we are bombarded with misinformation from groups with hidden financial interests in matters. Still, despite my criticisms on this blog, I am actually an OPTIMIST!

Below, I share a link to my Dec. 2014 blog on change:

Our Capacity for Change is Rooted in the Power of God, Free Will, and Social Media

People want to glorify Napster and others of the Internet Age. I grew up in the 60s, and we didn’t believe in stealing. We only wanted to be left to do our thing!  I find Napster and NSA surveillance [in documentary CitizenFour] strikingly in agreement. Both felt it OK to steal information! That’s what Watergate was about. It didn’t work out well for them.

This 2013 Napster story by The Guardian takes a look back at Napster.

Napster Story chronicled by The Guardian

ABOUT ME: I worked w/ computers and technology in nuclear medical imaging from 1975-1992, where I learned to write basic code, author medical procedures, troubleshoot instrumentation. 1982-1992 owned my own imaging company. A 1992 auto accident, injury & hydrocephalus condition led to efforts w/ assistive cognitive technologies, design of an mHealth diagnostic app (1997), and work in the neurosciencees & music therapy. I have also consulted in legal cases in failure to warn, and am becoming more involved in cognitive accessibility, where accessibility and protections are largely ignored. I currently own the domain CognitiveAccessibility.org.

On a positive note, read my blog on the brain-buzzing science of basketball.

Peace to you,

Stephen Dolle
www.StephenDolle.com
Newport Beach, CA

Arthritis Wellness and Prevention Treatment in Orange County, California

Do you suffer from arthritis? Do you have problems with your feet? And do you live in Orange County, California? If so, then you will find the following health information helpful for the treatment, wellness care, and prevention of arthritis flare ups.

Common joints affected by arthritis
Common joints affected by arthritis

There is quite a bit of online information today on arthritis. What I’ve done is aggregate an array of specific information from some popular sites on arthritis, osteoarthritis, and problems with your feet. I’ve copied & pasted some of this content, and identify the web pages and links where the additional information can be found.

Now I am a fan of preventive and wellness health information, including, apps and mHealth applications. As I live in Orange County, some of this health information, particulalrly the drumming, exercise, and massage therapy, is specific to Orange County, California. The rest is general treatment information. I have found DrWeil.com to be a great site for wellness & prevention. So, it appears at the top of my blog.

I am also a neuroscientist and drum circle facilitator, and offer drumming or “drum circles” for wellness, movement disorders, and wellness care for prevention of arthritis. And I’ve included my information on drumming for arthritis. In 2011 and 2012, I also provided drumming at the Orange County Arthritis Walk at the University of California at Irvine (UCI).

Exercising helps prevent fair ups associated with arthritis.
Exercising helps prevent fair ups associated with arthritis.

http://www.DrWeil.com – Osteoarthritis
http://www.drweil.com/drw/u/ART00662/osteoarthritis-treatment.html

(The following content is from Dr.Weil.com site.)

Suggested Lifestyle Changes
• Lose weight if you are overweight; it can alleviate excess mechanical stress on the affected joint(s).
• Avoid intense activities that injure or strain the joint cartilage.
• Exercise. This can actually be beneficial as long as it is performed at a level that does not stress the affected joint(s). Strengthening surrounding muscles will support and protect the joint, and physical activity helps improve and maintain joint mobility and aids weight-reduction efforts. The safest activities are swimming, stationary cycling and light weight training – which put little stress on the joints.

Nutrition & Supplements
Dietary changes may help alleviate or reduce the pain associated with osteoarthritis. Research has shown that foods rich in omega-3 fatty acids and the spices ginger and turmeric may help reduce inflammation. Foods rich in antioxidants – plentifully found in most vegetables and fruit – may help reduce tissue damage from inflammation.

These food groups help to prevent complaints associated with arthritis
These food groups help to prevent complaints associated with arthritis

• Eat oily fish such as salmon, or try another source of omega-3 fatty acids such as walnuts or freshly ground flax seed daily.
• Regularly use ginger and turmeric. Ginger tea is a good example.
• Eat generous amounts of organically grown vegetables and fruit every day.
The following are nutrients, botanicals and other compounds that Dr. Weil often recommends for joint health:
• Glucosamine sulfate. Glucosamine sulfate provides the joints with the building blocks they need to help repair the natural wear on cartilage caused by everyday activities. Specifically, glucosamine sulfate provides the raw material needed by the body to manufacture a mucopolysaccharide (called glycosaminoglycan) found in cartilage. Supplemental sources are derived from shellfish. Taken in supplement form, glucosamine may help improve the maintenance of healthy cartilage with an enhanced deposition of glycosaminoglycan.
• Chondroitin. Chondroitin protects the cartilage and attracts fluids that give the tissue its shock absorbing quality.
• Evening primrose oil. A source of gamma-linolenic acid (GLA) which may help maintain healthy joints by modifying inflammation.
• Herbs and spices. Ginger, holy basil, turmeric, green tea, rosemary, scutlellaria and huzhang all have naturally occurring anti-inflammatory compounds known as COX-2 inhibitors.
• Omega-3 fatty acids. Containing primarily EPA and DHA, which have been shown in studies to help maintain bone health and flexibility.

Arthritis Foundation

Overview and traditional information on arthritis.

http://www.arthritis.org/

Arthritis of Feet

Foot.com – Your Foot Health Network

Arthritis Definition

Arthritis is a disease characterized by the inflammation of the cartilage and lining of the body’s joints. Inflammation causes redness, warmth, pain and swelling. There are about 40 million Americans who suffer from arthritis. The National Institute of Arthritis and Musculoskeletal and Skin Diseases, estimates that by the year 2020, about 60 million Americans will have arthritis. The primary targets for arthritis are people over the age of 50. Arthritis is a major cause of foot pain because each foot has 33 joints that can become affected by the disease.

SEE web site below for more information:

http://www.foot.com/site/foot-conditions/arthritis

Drumming & Drum Circle Workshops for the Care of Arthritis (my company’s services)

Drumming for wellness, seniors, arthritis, and movement disorders
Drumming for wellness, seniors, arthritis, and movement disorders

Using the body’s sensory & proprioceptive system, I guide participants in drumming, or drum circles, for physical movement and coordination. This helps in persons with arthritis, movement disorders, brain injury, and to offset the effects of aging. The instruments are used to cue or initiative movement. Your body does the rest. These methods require less brain voluntary thought and cognition, and more your own movement and rhythmic memory.

http://www.dollecommunications.com/Drumming-for-Wellness.htm

As we age, or after onset of arthritis or movement disorders, precise voluntary control of actions like walking often becomes compromised. Drumming can be done in one’s home and also in group settings. Participants are taught to initiate action on cue of a rhythm. I usually begin with simple recognizable rhythms participants can easily play, and give movement cues on either the upbeat or downbeat. Cues can also be carried out by tapping of the hands, fingers, feet, and other body parts, which can also be applied to body turns, steps, and bending to pick things up. This is helpful in arthritis, multiple sclerosis (MS), post stroke, and most movement disorders.

I teach rhythmic patterns to help with stepping and turning you would normally do in the home and in everyday activities, and utilize tapping on the thighs and hips to correspond with turning, stepping, and bending to pick things up. This method engages the less voluntary actions of the cerebellum to cue the legs and feet with less of a physical challenge. Individuals with multiple sclerosis (MS), post TBI, or stroke who have a lot of difficulty standing and initiating walking, can use this rhythm and cue method to better their mobility. Those with autism require more hands-on instruction and specific rhythms.

Stephen Dolle facilitating a Drumming for Wellness workshop at the 2010 UCI Women's Wellness Day.
Stephen Dolle facilitating a Drumming for Wellness workshop at the 2010 UCI Women’s Wellness Day.

Drum and rhythm training helps individuals better use their body as an extension of their brain’s cognitive function. By relieving some of the load on the brain, you effectively become smarter. My drumming methods also teach participants to conceptualize rhythm & movement, and carry out progressions with the body. This is critical in sports play and movement. It awakens the “primal brain.” Along with the body’s sense of time and space, our brains track precise rhythmic patterns and communicate these signals to our limbs to walk, talk, and perform specific actions. You move with significantly less dependence on voluntary thought after undergoing my rhythmic training. You’ve heard stories of people who stuttered, yet could sing beautifully. Or could dance, but could barely walk. The secret is in body’s ability to connect with rhythm.

A myriad of physical therapy and balance training methods are used to help with movement, strengthen the body, and strengthen the brain’s role in movement. Below, I’ve authored an extensive blog on the science and mindfulness of basketball.

Science of Basketball

In basketball, athletes work tirelessly on hand, eye, and footwork syncopation to pass & shoot with pin-point accuracy. Rhythmic training helps participants of all levels. See what it can do for you!
Drumming for Basketball.unlimited potential,picsay1

Top 10 Exercises for women with rheumatoid arthritis

Exercise is important for women with rheumatoid arthritis (RA) because the right exercises can help relieve joint pain and build muscle strength. There are three main groups of exercises women with RA should incorporate into their regular fitness routine: stretching, strength training and cardio. Here are 10 exercises that every woman with RA should be doing on a regular basis. Read more on their site below.

http://www.sheknows.com/health-and-wellness/articles/818863/Top-10-Exercises-for-women-with-rheumatoid-arthritis

Exercise, Massage, and Complimentary Medicine (CAM)

Northwest Community HealthCare

http://www.nch.org/Treatment-Care/Prevention-and-Wellness-Center/Wellness-Programs/Manage-Arthritis-Symptoms

Suggestions from their Reflections Spa

 Signature Massage: Provides blood and oxygen circulation to the joints improving inflammation, using essential oils to penetrate the dermal layers to relieve stiffness and pain.
 Thai Massage: Providing the same benefits as a Signature Massage by using modalities of stretch and acupuncture points.
 Thai Herbal Bag Massage: Using heat, oil and medicinal herbs to penetrate deep into the joints to reduce inflammation.
 Reflexology Massage: The ancient Chinese practice of reflexology is a therapy focusing on the feet, and is a popular modern holistic therapy to relieve pain and stress. Reflexology massage therapists believe that different areas on your feet and hands correspond to other parts of your body, and massaging them stimulates your parasympathetic nervous system to heal itself.
 Hot Stone Massage: Heated stones are the vehicle to allow the penetration of oils and heat into the entire body.
 Hand & Foot Paraffin Treatment: We use paraffin oils and heated mitts for the hands and/or feet to reduce inflammation and stiffness.

Aquatics

Exercising in warm water has many benefits. The warm temperature (92°) of our therapy pool increases blood flow to muscles, which helps the muscles relax. As your muscles relax, you will be able to exercise more comfortably. The buoyancy (what causes you to float) helps support the arms as you slowly move them through the water in an almost effortless fashion. Buoyancy also greatly decreases the amount of body weight placed on the back, hips, knees and feet. When you stand in waist-deep water, only 50% of your body weight is put on the lower part of your body; in neck-deep water, only 10%. Walking and leg exercises may be done with little or no weight on the painful joints of your lower body.

 Aqua Flex -A warm water class designed to improve joint range-of-motion, flexibility and balance. Stretching with gentle movement, proper joint and muscle group alignment and overall well-being will be the focus.
 Aqua Arthritis-Following the guidelines of the Arthritis Foundation of America, Aqua Arthritis instruction emphasizes exercising at your own pace. This warm water class is designed to allow for range-of-motion, endurance and flexibility exercises. All classes take place in the warm water therapy pool.
 Tai Chi-Gentle movements of the ancient Chinese exercise tai chi are one of many alternatives to help those with arthritis find pain relief. The movements of tai chi are gentle, graceful, mystical — and a safe way to relieve arthritis pain and gain balance, strength, and flexibility. Tai chi is one of many alternative therapies that can provide relief from arthritis pain.

The NCH Wellness Center offers exercise programs designed for those with arthritis, and include:

 Personal Training-Wellness Center Personal Trainers give arthritic clients new hope by developing exercise programs that are designed to improve strength, function, joint symptoms and mood! Research has demonstrated that both exercise and resistance training are highly beneficial for those with arthritis.
 Nutritional Education-Researchers continue to look at the role diet plays in arthritis. While evidence is accumulating, anyone with arthritis can benefit from a diet that provides adequate nutrients to prevent deficiencies. Our Registered Dietitian (RD) offers nutritional education to help you manage your arthritis symptoms.

Stem Cell Therapy

Dr. Magaziner – Stem Cell Treatment
http://www.drmagaziner.com/stem-cell-injections-for-osteoarthritis/

Stem cell injections for osteoarthritis
Bone defects are one of the most serious problems patients and doctors are facing and leading stimulus for new research centering on the need for new tissue regeneration therapies. Studies on mesenchymal stem cells are changing the way we treat bone diseases. Stem cells have been used for the treatment of osteogenesis imperfecta, hypophosphatasia, osteonecrosis of the femoral head, osteoporosis, rheumatoid arthritis and osteoarthritis.

Dr. Marc Darrow – Stem Cell Institute
Stem Cell Prolotherapy
http://prolotherapyinstitute.com/

Popular Massage & Reflexology Centers in Orange County, CA

Family Wellness Acupuncture – 80+ Yelp reviews
4950 Barranca Pkwy, Ste. 301
Irvine, CA 92604
Tel. (949) 836-2857
http://www.familywellnessacupuncture.com

Jade Foot Massage – 100+ Yelp reviews – Reflexology
14409 Culver Dr
Irvine, CA 92604
Tel. (949) 651-6168

Olala Reflexology – 283 Yelp reviews
9950 Bolsa Ave. Ste F
Westminster, CA 92683
Tel. (714) 775-8588

Tustin Foot Massage – 57 Yelp reviews
17582 E 17th St
Ste 101
Tustin, CA 92780
Tel. (714) 869-6989

My Head 2 Toe – 116 Yelp reviews
Website myhead2toe.biz
2200 Harbor Blvd
Ste D220
Costa Mesa, CA 92627
Tel. (949) 650-0051

Drumming by DolleCommunications.com

The Brain Science of Fan Behavior in Football, Basketball and Team Sports

Seattle Seahawks prepared for Super Bowl.
Seattle Seahawks prepared for Super Bowl.

This is that time of year we football fans go into withdrawal. First it was college football ending its season. Now, we await next Sunday’s Super Bowl with the NFL’s final game. I love it too for its brain science, brain wave entrainment, and the inspiration it provides in our modern lives. Team sports can bring the best and worst out of its fans too. Whether it be your child’s little league team, local high school, or favorite college team, many fans act out an alter-ego of their personality and have been found to dress up in team colors, and even commit acts of violence (usually with the help of alcohol). Where group viewing enhances brain wave entrainment, alcohol depresses cognition. And a natural consequence of decreased cognition is frustration, anger, and sometimes violence. However, most fans are very civil and games like the College Championship Game between Ohio State & Oregon two weeks ago, brings the best out of viewers. This game was a super-charged brain wave entrainment experience, and it broke ESPN’s previous viewership record of two years ago. The sub-stories were inspirational too.

Ohio State football fans go crazy during 2015 Championship game.
Ohio State football fans go crazy during 2015 Championship game.

Next Sunday, we finish up NFL football with the Patriots vs. Seahawks Super Bowl. But it won’t mean as much to me. These two teams, it seems, are playing more for bragging rights than community and love of the game. There’s an emptyness in their rhetoric too, severing our entrainment built up over the season. For me, the brain science I find most enjoyable in team sports is the connections you develop with players and teams. I love the personal stories of overcoming odds, and relate it to my adversity with illness and everyday life. I draw upon that inspiration and use it as teaching tools to help better myself and those around me. Still, I yearn for truth.

The brain and sensory system during cognition.
The brain and sensory system during cognition.

Football is perhaps the best brain science sport because it is so team-concentric and detail oriented with instant replay, and affords considerable brain wave entrainment via television, news, and social networking. The resulting connectedness along with enumerable opportunities for discussion via news and local conversation, heightens the connectedness around a common interest. The connectedness, the repetition, the extraordinary use of statistical information – is very healthy for the brain, especially if you suffer from any form of cognitive disfunction. Though the Super Bowl is still to play, I have already turned my attention to NBA basketball, where I am following the league ambassadors. I was watching LaBron James and the Cleveland Cavaliers this week, and was reminded that basketball play, the “it,” is not about basketball. It’s about a group of people coming together in pursuit of a common good, a “Pay it Forward” paradym, for team, family, community, nation, and game. Enjoy your emotional roll-a-coaster as we shift our attention from the ending of football, to basketball, hockey, or whatever fires you up.

Our Capacity for Change is Rooted in your Higher Power, Free Will, and Social Media

The power of FREE WILL is a brain science supported mechanism to enable change within ourselves, and to further change proposed by others. Change can occur in small or even very large groups in almost an instant. Change occurs by movement, sharing, and adoption of collective thought. In neuroscience terminology, it begins via a process in the brain termed “brain wave entrainment,” and messages are received and assimiliated from others.

The four levels of brain wave states are shown in this illustration
The four levels of brain wave states are shown in this illustration
A schematic showing how brain wave entrainment occurs.
A schematic showing how brain wave entrainment occurs.

The brain wave entrainment can come from a friend, a stranger, a parent, a teacher, or even an individual during a violant assault. The change is best adopted and sustainable when done via “free will.” But it doesn’t necessarily have to be. There are many people undergoing psychotherapy treatment today for actions and emotions “forced” them months and years earlier, to which they seem to have no free will to change. This typically is a rebound response to a traumatic event that the individual was forced to entrain with, and have become confused as to how & why they entrained with the messenger.

Young children captivated by their play in a drum circle
Young children captivated by their play in a drum circle

Since the beginning of time, persons in positions of authority have acted to control others, using a variety of teaching and team-building methods that have been passed on in families, among populations, and among professions, including, churches. Entrainment is both a genetic, and a conditioned mechanism. We generally control it by whom we associate with. And as modern life and personal protections have evolved, we’ve generally had more rewarding experiences with this, and increasing quality of life. At it’s best, change is most effective if done freely and under conditions of “free will.” And free will must be permitted culturally in terms of accepted social and religious traditions, and in accordance with governing laws and regulations.

Drumming and the Brain.diagram

I believe religious traditions in particular carry tremendous weight in granting permission to participate in certain types of activities. And when these barriers are removed, one can truly exercise FREE WILL to receive and assimilate information from others via brain wave entrainment, and ultimately, to CHANGE and grow from this experience. In a nutshell, we learn by engaging and assimilating outside information.

I have been putting on group drum circles, or “drumming,” since about 2006. Free form assimilation of drum circle play in an “impromptu” setting occurs through improvisation, listening, assimilating, and playing of the instruments. The neuroscience mechanism by which this occurs is termed “brain wave entrainment.” Studies have shown that in a free form or impromptu drum circle, participant’s brain waves will begin to act alike in as little as 8-10 minutes. If it is a prearranged and rehearsed piece, it could potentially occur sooner. This occurs in group activities like sports too, where entrainment is furthered through “coordinated movements,” particularly ones with a set pattern and timing. The fascinating aspect of brain science and learning, is that we are designed to process information in patterns, especially, reproducible “rhythmic” patterns, as human brain waves move across the brain in patterns. The more order and pattern our information is, the easier the assimilation and ultimately, learning.

Early Mayan Basketball
Early Mayan Basketball
Basketball Kevin Durant
Basketball Kevin Durant

However, brain wave entrainment occurs in everyday life far more than you might realize. In order to process information around us into our five senses, we must assimilate the information into recognizable brain wave patterns, or create new ones so we may understand and store it. We entrain while reading a book or working on a project. We entrain in conversations with others, particularly persons we love and trust. Familiarity greatly improves entrainment because we would already have permission to entrain, and this permission makes it more likely that the assimilation will be done under free will. If we believe and accept what the individual is sharing, entrainment occurs much more readily.

The inspiration for writing this blog originally came while writing a blog on how group drum circles can be helpful in reforming the behavior of gang members. After I finished it, I had dwelled and apparently, “prayed” on trying to understand the brain mechanism that binds gang members together. And then it occurred to me how easily we can be “tricked” or coerced into doing things that we might otherwise not normally do. And then it was a revellation of sorts where I understood the mechanism, and first wrote this blog. In my initial publishing, featured the design of the human brain as done by our creator, or God. And then I applied this to present day where social media is now used in brain wave entrainment. It is a matter of debate or conjecture whether it was a creator, or God, or evolution that helped up develop brain wave entrainment so that we could communicate, work as a group, and be more fit to survive. Since this idea initially came to me like a revelation, I kept that theme in much of this piece.

Combating Gang Violence thru Group Drumming and the Psychology of Human Behavior Members

In my revelation, there was no sensation of religion or religious practice. It was more about seeing what is possible thru group thought and behavior. I applied analysis from what I know of science, physics, and human behavior and work in the neurosciences, especially, my work with drum circles. I felt coming together in collective thought under conditions of FREE WILL was the most determinnig factor for change and learning.

I reasoned how we are free to love, to hate, or empathetic, and a gamut of many other thoughts and feelings. But I felt our most powerful learning environment is when we come together for mutually agreeable reason. Our defenses are down. We’ve offered our attentiveness. And now all this is remaining is sharing the information, and assimilating it into action. In free will, results can also be tragic too. People are often misled into agreeing to activities and relationships that end up very badly. It is often difficult to know this will be the outcome as it is occuring, freely entrained with another individual or group of individuals. This has occured in religious sects and churches too. Ultimately, it is free will and our choices that define our connections in life, and possible connections with a higher power.

Prosperity is based on sound information.
Prosperity is based on sound information.

What I find truly fascinating is the study of human behavior and human potential when given free will to ACT without constraint, without consequence, and without coersion, in which path each would choose. There IS irrefutably a connectedness force on earth amongst us that when we assemble in large numbers, we can greatly influence one another. With all of our advances in technology and now social networking, this effect can occur without a group of people physically being together. The power for change is in our collective thought, and today is now possible thru the power of social media. For good or worse, change still comes down to our ability to have free will.

Let’s switch reasoning for a moment and speak about about how this cause & affect and free will applies to LOVE. When we freely act to express love w/o any expectation of something in return, other than the feeling of that moment, we are acting selflessly out of love. I believe this also applies to the power of faith, when you believe in something unknown without any expectation of getting something in return. Perhaps just feeling the connection is all we are seeking. But I believe there’s more.

Great pic NHF members affected by hydrtocephalus at a 2015 Orange County fundraiser.
Great pic NHF members affected by hydrtocephalus at a 2015 Orange County fundraiser.

There has to be a reward for expressing ourselves freely, through a mutual action to unite and collectively change each, to change others, and affect change around us thru a collective thought and “knowing.” In a lifetime, if this happens to you once, or even twice, you are lucky. It is that powerful. Some say it is connecting to the Holy Spirit. Others say it is extraordinary brain activity now termed trance states. But since the beginning of time, this thrill has been perhaps the most elucive experience in life. And has led many a person to do things they later regret.

I recently felt that this collective power of thought and free will to experience life is the communion that God wants for us in life, to “complete” him (or her). I believe this is why we are here, to learn to complete this en route to a greater mission. This free will of human behavior is what sets us apart from every other bit of life here on earth. We are the only ones with free will, the wherewithall to assemble knowledge, and the ability to freely act upon it. It is truly powerful when we come together and collectively choose the same thought or action, which can be for good or evil. Evil is powerful too as it can trick us into entrainment and collective thought. But evil relies on deception, or a “false connection.” Still, evil finds power over victims via human connectedness.

Living plants tend to speak for you letting you know everything is OK.
Living plants tend to speak for you letting you know everything is OK.

Brain wave entrainment happens with plants & animals too. Plants have been shown to respond to human words, thoughts, and touch. Human & animal brains are equally capable of entrainment and influence thru group behavior. In group behavior, we mirror other’s thoughts & actions, sometimes unaware what we are doing. Entrainment is exciting. Entrainment becomes addictive! People and animals can get caught up in group brain wave entrainment, and do things they ordinarily wouldn’t do. This is termed “group hypnosis.” Most of the time it’s a good thing. But sometimes it isn’t. The difference between good and bad behavior is similar to a drug getting you high versus your natural endorphins. One is organic, while the other is cause & affect.

Drumming in the Workplace

Drum circles help to reduce stress and stimulate the brain for optimal function in the workplace
Drum circles help to reduce stress and stimulate the brain for optimal function in the workplace

I have had many great experiences during my drum circles where drummers freely come together & play, not knowing what we’ll play. We trust the process, and the music and spontaneonity just happens. This also widely occurs at sporting events, parties, war, rioting, prayer, and even mourning.  The real power in free will is coming together in communal agreement to change or create ideas and product. When done this way, what’s produced is often self-sustaining. But evil & trickery has benefits too, in controlling others. But it uses a false premise and connection, and it will collapse on itself when put under stress, i.e. why criminals often turn on each other.

Drumming for Wellness

Stephen Dolle facilitates a drumming for wellness workshop at a private home in Orange County
Stephen Dolle facilitates a drumming for wellness workshop at a private home in Orange County

FREE WILL is the most powerful force known to man. But are yet to put it to the test! We’ve only been in communal world thought now for the last 50-75 years. With advances in social media, we will be able to harness communal thought for great social change. I hope that it is for the good. Let’s hope that it is done freely, as that is God’s will for us.

If you are interested in contacting me, please contact me via the information below.

Stephen Dolle

Dolle Communications

Email: contact [at] dollecommunications.com

http://www.dollecommunications.com/

Combating Corruption and Gang Violence thru Group Drumming and the Psychology of Human Behavior

Gang Violence leaves bullets riddled thru communities
Gang Violence leaves bullets riddled thru communities

With all the needless suffering, corruption, and gang activity today, I am reminded of the psychology of human group behavior, and the mechanisms of corruption and institutional control that is so pervasive today. They are similar mechanisms to group drumming and team building, except they are 180 degree polar opposites. In drumming, the energy and intent of the participants is based on a positive mindset of giving, and free will. No one is intimidated to follow the group. In fact, it boost your self esteem and resolve.

Crum circles serve as Drumming Solutions for community outreach
Crum circles serve as Drumming Solutions for community outreach

In drumming, the group message, or rhythm, often begins with the core leaders, but not always. It’s a dynamic process that welcomes all to initiate, then it spreads throughout the circle, expanding as far as its magic and influence allows.

In circles of corruption, the spread of influence is similar, except that the core leaders ALWAYS set the agenda and rules. And it is sometimes done in a quid pro quo format of favors in return for others cooperation. The agenda and message spreads based on intimidation and calling out favors from participants, opposite to drumming. And in doing so, the group makes unlawful compromises of their free will. It provides an air of momentary brotherhood, for as long as everyone stays signed on, and one step ahead of authorities. It requires that everyone compromise their morals and ethics in order to participate. There can be outer circles too, where participants support the group project, but may not be directly involved.

Brain health and mental health is the biggest challenge of the 21st Century.
Brain health and mental health is the biggest challenge of the 21st Century.

The behavioral and brain mechanisms at work are usually done FREELY, and also are remarkably similar to we find in a group drum circle. However, the image of corruption and gangs is that they have FREE WILL. When in fact, they don’t.

Drum Circles make for great Children's Activity as young as age 3.
Drum Circles make for great Children’s Activity as young as age 3.

In life, we are drawn to people and things that serve our needs and which we find interesting. The concept of being drawn to things is rooted in brain science and human behavior. We make decisions about which groups and activities we join. In a drum circle, participants freely come together and support a “core” rhythm and message. In corruption and gang activity, participants gather together for protection. Different choices. At numerous points along the way, participants have the opportunity to affect and influence the group activity or rhythm. The same also holds true for sports play like football, baseball, and basketball. But in corruption and gang activities, a misconception lies in the belief that participants do not have FREE WILL, which is not true. The truth is that FREE WILL comes from your mind out of the bigger understanding of life. And it is also contagious! Yes, there are pressures & influences to act a certain way. But if you are at peace with yourself, and confident of your choices, others will follow you.

Santa Ana Mayor Pulido joins us at the Carlos de Rosas Memorial at Artist Village in Santa Ana
Santa Ana Mayor Pulido joins us at the Carlos de Rosas Memorial at Artist Village in Santa Ana

The dynamics of group behavior & free will is that it is based on your mindset and moral framework of life. So, when faced with tough choices, you should know automatically what you’ll do, what you’ll play, and what you’ll say. The problem today is that too many people confuse “speaking up” with expressing yourself. You have to speaker with wisdom and authority, connect with your higher power. These practice actually take many years and trial & error. But you have to brave this course to discover your true voice!

Drum Circle helps this man express himself
Drum Circle helps this man express himself

Now I’ve seen many a drummer in a drum circle use free will to beat a drum so loudly and out of sync, it destroys the group rhythm. They expressed themselves. But did they “listen?” When unsure, ask, look around, watch others, then act. And never forget the most powerful voice you have is your FREE WILL.

Your actions actually originate from thoughts, or “thought intent,” first. In gymnastics, we used to say the trick happens in your mind before you ever do it. This same principle of thought intent is true for everything you do everyday of your life. You think, then act. Success comes when you learn to think, listen to the right inner voice. And then act on it. The more you apply this methodology, especially the listening part. The more success you’ll have.

Drum circles aid teens thru outreach activities
Drum circles aid teens thru outreach activities

In my drumming and drum circle facilitation, as Jack Black did in the movie, “School of Rock,” always watch your student’s eyes. This is the window to their soul, and watching the eyes will tell you if and how you’re connecting. The same holds true during the formative stages of corruption. But, if you are at peace with yourself, you will stand you’re ground and act bravely to protect yourself.

Music and drum circles keeps youth in school and out of trouble
Music and drum circles keeps youth in school and out of trouble

I’d like to share a message I often shared with my son when he was in high school during the 1990s, as for drinking and driving after there had been several horrible auto accidents with teen age drivers:

“Never get in an automobile if you’re not comfortable with the driver. If things go bad, all it takes is one member of a group to speak up in the right way and bring clarity at a time when the group is stirred into a wild & crazy hysteria. It only takes one to change the energy, the rhythm, or one’s awareness within a group. When that time comes, trust your instincts. Don’t be afraid to speak up.”

My son was later voted most changed in high school and accepted a baseball scholarship to Pepperdine University. I often spoke to him on lessons in life thru psychology. In high school, I’m told he regularly received calls from friends facing difficult. I suspect he shared some of the intervention methods that I had shared with him.

Never stop being of sound mind. Always pay attention. Be aware. Call upon your higher self. Such principles are at the core of shamanism and most mind/body & religious practices today.

For more on my work, contact http://www.DolleCommunications.com

Stephen

Fundraising for Hydrocephalus: Follow the Creators of the Ice Bucket Challenge

This morning I received my usual TED talk email and was literally brought to tears watching the TED presentation by Nancy Frates, the mother of Pete Frates, who came down with ALS a couple of years ago. It was Pete and Nancy and their family who put together the ALS campaign that included the ALS Ice Bucket Challenge. It then became a smash hit this past Summer. In her TED talk, Nancy details how it all began with Pete’s diagnosis, Pete saying he wanted to get this in front of philanthropists such as Bill Gates, and to dividing up the various responsibilities of their campaign.

I earlier wrote about the ALS Ice Bucket Challenge fundraising campaign as it was becoming a Summer sensation. My interest is partly in that I’ve been involved in fundraising, but more out of my personal interests and challenges in living with the disorder, hydrocephalus, since 1992. The effects from my hydrocephalus have been considerable. I lost all of my work and related skills after an auto accident that caused it. And it took 16 years, 7 surgeries, and much of my own making to finally get a CNS shunt to do what they are supposed to do – properly clear CSF fluid & pressure from my brain. Out of survival, like the Frates did, I became involved in advocacy for hydrocephalus, and this led me to efforts with the Food & Drug Administration (FDA) and their oversight of problems with CNS shunts, which are the medical devices principally used in the treatment of hydrocephalus. In 1996, I learned of a leading CNS shunt having specific problems that I suspected was connected to my poor health, and I reported this to the Food & Drug Administration. Then I learned it was likely responsible for thousands of additional surgeries and poor outcomes over 10 plus years. Some in the field knew about this, but nothing was done to change it. So I petitioned the FDA. It took me over a year to gather the studies and assemble it all. And I did this all in spite of considerable health & cognitive challenges.

In 1998, FDA upheld this petition. But what followed was dishonest and troubling, and led to many of the ongoing failures in CNS shunt safety and progress in hydrocephalus care. Yet in 1997, in the two-year interim period it took for FDA to issue a ruling on my petition, I designed & patented a home software method to monitor hydrocephalus (the DiaCeph Test) and address many of these CNS shunt issues. It was a program to run on a custom PDA device. I presented it at the 1999 STAMP Conference in Bethesda, MD. But FDA, and much of the medical industry, scoffed at my efforts. Some of this correspondence is still on my main web site. At that time, few neurosurgeons believed in collecting & sharing medical data on PDAs or over the Internet. I suspect their sentiments are different today. I was also outspoken on the need for progress in hydrocephalus care. And it led to the Hydrocephalus Association, several partnering shunt manufacturers, and their key board neurosurgeons, “blackballing” me of sorts in the field. I was responsible for the 1999 STAMP Conference. But I ceased much of my advocacy after this, and by 2003 had moved on to other interests in the neurosciences. Meanwhile, shunt after shunt after shunt was introduced with problems, including, my current Certas valve which was recalled last year. My 1997 design of the DiaCeph Test would have been one of the earliest mobile apps. Today, it sits on a shelf.

Now when you watch Nancy Frates’ TED talk, you can see her passion, and hear her talk about confronting complacency, and poor colaboration on ALS research. She also instituted an “action plan” right from the start. I also earlier wrote about the ALS Ice Bucket Challenge, and cited the amazing efforts by Christopher Reeve on behalf of spinal cord injury. And there is one very very important element of their respective campaigns: THEY DID NOT COZY UP TO INDUSTRY & COW TOW TO THEIR WHIMS! They told it the way it was, engaged the masses, and industry then followed their lead.

So for those of you who truly want to bring progress to the care & treatment of hydrocephalus, stop cow-towing to industry and be unique and create your own fundraising and awareness campaigns. For me, last year I created the cool site http://www.HydroPowered.org for sharing fun & art on hydrocephalus, and for fundraising when the opportunity presents. Be unique, sincere, passionate, and organized.

Enjoy Nancy Frates TED talk.

Treating Ebola is a lot like Playing in a Drum Circle

Team members awaiting instruction in the Ebola care setting
Team members awaiting instruction in the Ebola care setting

Having spent 17 years in nuclear medicine in various medical settings, including, in some of the earliest testing for AIDS, I see remarkable similarities in what medical personnel face in Ebola care, and what drummers must contend with in the group play of a drum circle.

To outsiders, a drum circle may appear more like a bunch of wanna be hippies banging on drums & such around a make shift venue. But to seasoned percussionists and drum circle facilitators such as myself, I view it as much much more. In fact, the group dynamics and adapting to changing conditions in an Ebola care setting, is what makes group play in a drum circle so special.

In group drumming, the team concept in play is of the utmost importance. Each drummer or participant learns to trust in their fellow drummers to play their part that leads to the entire group sound & effectiveness. Each drummer, just as in medical personnel in Ebola care, bring their own expertise to the group setting. But, it is the interpersonal dynamics, communication, and discipline in the art that gives both the drum circle and Ebola care setting its exceptional qualities. Both also rely on a high degree of improvisation to adapt to rapidly changing variables. Communications in these setting are of the utmost importance. Each setting calls for heightened intuitive and interpersonal skills. And it is in these regards that Ebola care and group drumming have so much in common.

Group drumming owes much of its early development to the practice of “shamanism,” and similar mind-body healing arts which have been reported under anthropology. These modalities also form some of the earliest practices in modern medicine. And so it is today, that we find these practices continuing to intertwine as we contend with the complex dynamics in the Ebola care setting, and in trusting oneself and others around you. And in many cases, the biggest obstacle is in interpersonal dynamics.

Facilitating Women's Evening at Chabad Temple
Facilitating Women’s Evening at Chabad Temple

I’ve been in hundreds of different drum circle and medical settings, and I can share that more than any other factor what leads to success, is the willingness of participants to set aside egos, trust in their fellow team members, and work for the good of the whole. Without this trust and willingness to stay in the “now”, mis-steps will most definately occur, and can dramatically effect the group outcome.

In my nuclear medicine work, I routinely worked with radioactive materials and infectious diseases, where protocol was critical, but you adapted to ever-changing conditions. As a result, I was inter-dependent upon my co-workers to make the appropriate decisions at key times in support of my efforts. And this is exactly what happens in a drum circle. The drummer participants are continually listening to and observing the moves of their fellow participants, and adjusting their play to what they see and hear from others in the group. The better you listen, the better the group play. There are over 150 different pieces of world percussion that are played in drum circles. And each participant will have varying exerience with these instruments, much as different medical personnel have in an Ebola care setting.

Because of the group dynamics in group drumming or drum circles, drumming workshops can be well adapted to a wide array of settings, including, team sports like football & basketball, military & police training, high risk operations like oil drilling, and many different business and technical settings.

Contact me at http://www.DolleCommunications.com to learn more.

Stephen Dolle
Drum Circle Facilitator
Neuroscientist

Fun Web Site for Hydrocephalus features Super-Heroes and Art

Tribute to EMI Records and Godfrey Houndsfield for invention of the CT Scanner
Tribute to EMI Records and Godfrey Houndsfield for invention of the CT Scanner

In 2013, I obtained the HydroPowered.org domain and created a basic web site for sharing of fun, art, and culture on a technology platform for individuals and families affected by hydrocephalus. The image at top was created from one of my MRI brain scans, with editing from the Pic Say Pro app. I then added a tribute to Godfrey Houndsfield for his engineering vision, and EMI Labs (a division of EMI Records), for funding his project that led to the invention of the CT scanner – arguably the greatest medical invention we have to date.

I do all of this on a shoe-string budget. Still, I feel I could offer those affected by hydrocephalus a new and fun way to connect on art and fun topics.

I acquired the HydroPowered.org web site by researching domains that were available with the word “hydro,” short for hydrocephalus, which means water on the brain.

HydroPowered.org Share the Passion for Hydrocephalus
HydroPowered.org Share the Passion for Hydrocephalus

I created the above “blue swirl” image as my first logo from one of my MRI brain scans using the Pic Say Pro mobile app. Then, on my web site and Facebook group, I added additional art with the water or “hydro” theme, including, the Schick Hydro razor. The links below go to my web site and Facebook pages of “hydro” art.

Facebook “Hydro” Art

“Hydro” Art and Designs for Hydrocephalus on HydroPowered.org

Hydrocephalus Awareness Month 2014
Hydrocephalus Awareness Month 2014

I am hoping to create fun and cool art for hydrocephalus, separate from the disabiling realities of the condition. This came together one evening in May 2013, though my original idea started back at a hydrocephalus conference in the year 2000. Since 2013, I’ve added HydroPowered art and super-hero stories, and am looking to add more stories and characters.

Hydrocephalus HydroPowered Super-Heroes

Spiderman Super Hero for Hydrocephalus stories at HydroPowered.org
Spiderman Super Hero for Hydrocephalus stories at HydroPowered.org

I want to expand on the “super-hero” theme. I’ve written a few tie-in super hero stories on HydroPowered.org. I actually envision a series of HydroPowered super hero characters. I’ve also created a Facebook Fan Page so other “hydros” (that’s a term we often call each other) can post/share their art and stories.

I continue to brain storm ideas to get this out to the masses without having to spend a lot of money or time. I have made custom T-shirts and polo shirts at Vistaprint online. I’d even be willing to try a “daring PR stunt” if that would bring awareness to this cause.

Drumming workshop for balance and movement challenges in living with hydrocephalus
Drumming workshop for balance and movement challenges in living with hydrocephalus

On Thursday Sept. 24, 2015, I along with HydroPowered.org will feature two drumming workshops for hydrocephalus to address balance, cognition, and movement at the NHF Patient Power conference at the Sheraton Park Hotel in Anaheim, CA. SEE registration info in the flyer. The workshops are free. But there’s a $50 conference fee.

In addition, I am trying to put together a “Drum-off for Hydrocephalus” to help raise awareness and funding for hydrocephalus.

Drum-off for Hydrocephalus

Great pic NHF members affected by hydrtocephalus at a 2015 Orange County fundraiser.
Great pic NHF members affected by hydrtocephalus at a 2015 Orange County fundraiser.

In July 2015, I put together a photo collage with my NFL lookalike, JJ Watt, of the Houston Texans. Check out the similarities below of JJ to my photos at his age.

Photo look-alike collage of Stephen Dolle & JJ Watt of the Houston Texans
Photo look-alike collage of Stephen Dolle & JJ Watt of the Houston Texans

I am hoping this look-alike photo collage might create some social network interest in this cause. It was two years ago that I realized JJ & I look alike like. And he seems a lot like me too, with both of us growing up in the Mid-West. So, for Throwback Thursday, I put together this photo collage, and put it on several of the social platforms, hoping to bring attention to hydrocephalus and my efforts with HydroPowered.

Since 1985, I’ve provided quite a bit of outreach & CSR to Orange County area organizations. During the 1980s, my outreach and fundraising efforts were in little baseball, AYSO soccer, the Costa Mesa Chamber of Commerce, Hoag Memorial Hospital, community theatre, and arts in Costa Mesa and Laguna Beach. But since the late 1990s, my focus has shifted to hydrocephalus, and a variety of community causes I’ve undertaken with drumming, or drum circles. I also headed up the drumming Meetup, Orange County Drum Circle.

Stephen Dolle in Washington, D.C. for 1999 STAMP Conference
Stephen Dolle in Washington, D.C. for 1999 STAMP Conference

Since 1995, I’ve been a patient advocate for hydrocephalus, and have been answering patient, medical, CNS shunt, and FDA guidan questions on hydrocephalus. In 2009, I began offering consults in monitoring, since my DiaCeph Test for monitoring never became available. For several years, I was also a board member for the National Hydrocephalus Foundation, and helped with PR and fundraising.

In drum circle facilitation, I own enough instruments to put on drum circles for groups as large as 100 people. And I have facilitated groups as large as 250 drummers. I’ve been organizing and facilitating these drum circles over the last 7-8 years in spite of my own health challenges with hydrocephalus and CNS shunt brain surgeries from a 1992 auto accident, which now total 12 surgeries. But, it hasn’t stopped me from giving back, from being involved in CSR and being a pivitol part of Orange County area outreach.  Come Sept. 2015, I’ll be putting on two drum circles at the National Hydrocephalus Foundation conference in Anaheim, CA.

Hydrocephalus Awareness Month 2014
Hydrocephalus Awareness Month 2014
Stephen Dolle receives award at Costa Mesa Chamber event.
Stephen Dolle receives award at Costa Mesa Chamber event.

Back in the 1980s for several years, I served as an independent consultant and helped in sponsorship of a number of area sporting and community events, including, the 1992 Great American Race. 1998 was my first big fundraising endeavor after my injury, where I headed up field sponsorship for the Foothill High School baseball program. Still today, I feel I understand cause marketing, though I always appreciate others’ feedback. If I had not gotten in an auto accident in 1992 and developed hydrocephalus, my plan was to leave health care completely and transition into sports & entertainment agent services.

Drumming for Wellness at the UCI Women's Wellness Day
Drumming for Wellness at the UCI Women’s Wellness Day

There comes a time when even the best of us become recipients of outreach. Since 2012, I’ve been overwhelmed by complications with my hydrocephalus. In March 2015, this led me to I put my own case study and complications up on my blog, knowing all too well I could face scrutiny for it. I felt like I had no choice. I was between a rock and a hard spot, struggling with my health, and struggling to work and take care of myself. You can find it under March 2015 topics.

Pain management and mindfulness in Shunt Revision
Pain management and mindfulness in Shunt Revision

I’d like HydroPowered.org to be a different take on hydrocephalus outreach, more about fun, cool, a mix of art, technology, and culture – with a super-hero theme too. I felt the platform might be helpful in fundraisers too much as the 2014 Summer ALS ICE Bucket Challenge that became a mainstream hit.

Since 2013, I have been brain storming and scouring the web for HydroPowered art and photos. It now includes hydropowered racing boats, monster waves, hydropowered damns, the Schick Hydro razor, and basketball. I’m an avid shooter and have even written a special blog on my insights into basketball.

Sports vs. Brain Science of Basketball

Your Basketball Spirit Guide may help more than you know during Shooting
Your Basketball Spirit Guide may help more than you know during Shooting

The plight of hydrocephalus, the stories, the data, and outcomes remain troubling today. It is the leading neurosurgical procedure in children, and affects individuals from in utero to very late in life. CNS shunts, which first came into use as its primary means of treatment in the 1950s, are still standard treatment today. Outcomes are often followed by disability, many numerous shunt malfunctions, and corrective surgeries. The average life of a shunt today is still about 5 years. Several leading programmable shunts in recent years have also been plagued with bizarre programming failures that added to the chaos. In fact, my own shunt implanted less than two years ago, has already been recalled. So hydrocephalus really needs a make-over!

As for famous individuals with hydrocephalus, the Reverand Billy Graham lived with NPH, a form of hydrocephalus, and a shunt for the last 8-10 years of his life. Rock & Roll guitarist, Dick Wagner of Alice Cooper, who passed away this past July, lived with hydrocephalus for several years. And former San Francisco 49ers player, George Visger, developed hydrocephalus after a series of concussions from football.

Incredible Hulk Inspires Kids and others with Hydrocephalus
Incredible Hulk Inspires Kids and others with Hydrocephalus
The DiaCeph mobile phone app would improve greatly improve hydrocephalus care Worldwide. But the U.S. lags in mHealth development.
Android DiaCeph App for Hydrocephalus would improve hydrocephalus care worldwide

As a neuroscientist who provides hydrocephalus monitoring and consults to families in this space, I am adament that CNS shunt technology, and all of its FDA regulations, are in need of an overhaul. We need to change the dynamics and philosophy of the medical field in hydrocephalus care, from “can’t do” to “yes, we will do!” Today, hydrocephalus care & CNS shunt technology remains dominated by a handful of old guard philosophy medical companies and physicians who have resisted the kind of progress we need for many years. Today we need more free-thinkers, more doers! More of an Apple or Google mindset. The same place, same thing, is not producing the kind of advances we need.

I also realize hydrocephalus research is in need of funding, and I believe the HydroPowered platform can play a pivitol role in this going forward. I can compare our plight a bit similar to that of spinal cord injury (SPI) at thetime actor Christopher Reeves became paralyzed. In his case, he almost single-handedly changed the dynamics & funding of SCI. In his brilliant campaign, he initially “called out” the old guard of SCI work that was holding back progress, and then went on to raise money & create progress in SCI treatment that’s not really been seen in any other disorder outside of AIDs.

For several years back in the 1990s, Christopher Reeves had been one of the highest paid speakers in the world, with both political parties vying for him to appear at their conventions. Those were “wow” moments in PR and cause marketing! Today, football players living with SCI, owe vastly improved outcomes to the dynamic efforts of Christopher Reeves.

Below, is my HydroPowered web site & Facebook links. Take a moment to read over it.

HydroPowered.org

HydroPowered Facebook Group

SpiderMan Movie Trailer

Contact me if you would like to speak with me.

Stephen Dolle
Dolle Communications
Email: contact [at] dollecommunications.com
Dolle Communications

HydroPowered.org

Stephen Dolle Headshot in a Suit
Stephen Dolle Headshot in a Suit