Hydrocephalus Mobile App hopes to be new mHealth Test

The DiaCeph Test was created in 1997 to evaluate CNS shunt performance in patients with the disorder, hydrocephalus. It is a mathematical formula and algorithm born out of my experiences as a patient and patient advocate, and from 18 years of experience in diagnostic nuclear medicine, including, with hydrocephalus and software.

DiaCeph’s algorithm uses a weighted probability of a patient user’s clinical complaints, or complaint markers, to the most likely of (17) types of malfunctions that can occur with a CNS shunt. The results are displayed and ranked in order of probability. In addition, the markers are plotted on time vs complaint level graphs, where they are compared to the patient’s baseline markers and earlier shunt outcomes. The impetus for creating the DiaCeph Test came from my poor post surgical outcomes and frustrating diagnostic experiences as a patient user for hydrocephalus following a 1992 auto accident. I’ve used my DiaCeph methodology (paper forms) to track the shunt outcomes, make shunt valve pressure predictions, and diagnose shunt malfunctions for my last (8) shunt revisions. Still in 2016, there is no reliable diagnostic means to determine how well a CNS shunt is working. The DiaCeph Test could readily be made into a mobile app, providing the necessary funding, administrative, and FDA regulatory requirements can be satisfied.

The DiaCeph paper methodology could easily be produced as a mobile data app.
The DiaCeph paper methodology could easily be produced as a mobile data app.

DiaCeph Test born out of an FDA Petition & Unmet Need in Hydrocephalus

Hydrocephalus is the leading neurosurgical disorder in children, often resulting as developmental changes in utero, shortly after delivery, or by brain cysts early in life. It occurs in seniors in the form called NPH, or normal pressure hydrocephalus, and in the past NPH was often confused with dementia and/or Parkinson’s Disease. It can also occur following trauma and tumors in the brain. It is most often treated by surgical insertion of a “CNS shunt,” which the patient will live with the remainder of their life, and which are very problematic technology often requiring surgical replacement.

My DiaCeph data app slide above is from my original (1997) design of the DiaCeph Test. This came out of my research in authoring an important 1996 FDA petition on anti-siphon shunts. I was familiar with hydrocephalus and CNS shunts from my many years of diagnostic work in nuclear medicine, where I worked with software and regularly wrote procedures, and occasionally basic software code.

Stephen Dolle invented his DiaCeph Test following his 1996 FDA petition that was then used to direct this 1998 shunt surgery
Stephen Dolle invented his DiaCeph Test following his 1996 FDA petition that was then used to direct this 1998 shunt surgery

I had been a patient user of CNS Delta valve shunts for hydrocephalus since 1992, and had experienced unexplained poor outcomes from three surgeries over a period of four years. In 1996, I learned of a new critical study published in the Journal of Neurosurgery by a well known Japanese neurosurgery group, that cited specific safety & performance issues with Medtronic PS Medical Delta Shunts & Anti-siphon devices that seemed remarkably similar to complaints I was experiencing. Sadly, neither my treating physicians, shunt manufacturers, or the Food & Drug Administration were able to help me.

In November of 1996, I petitioned the U.S. Food & Drug Administration (FDA) Center for Devices and Radiological Health with this important FDA petition on CNS anti-siphon shunts, concerning problematic CNS shunt technology which I had been implanted for 4 years, and was experiencing unexplained poor outcomes. It was in 1996 that a critical study was published in the Journal of Neurosurgery regarding the risks of using anti-siphon devices. The petition took me almost a year to prepare, and required that I obtain supporting FDA records on microfiche, obtain and learn the federal government’s applicable CFRs to CNS shunts, pay a librarian consultant for many of the (52) cited studies, and carry on correspondence with Ralph Nader’s group Public Citizen.

What I learned, was that between 1976-1996, many thousands of patients had been implanted with Medtronic Delta valves & Heyer-Schulte anti-siphon shunts and that about one-third of these were experiencing the kinds of poor outcomes as cited in the Higashi et. al. J. of Neurosurgery study. Higashi and his team described these shunt performance issues as “functional obstructions” of the CNS shunt system, most of which occured in the upright posture. However, some were reported with sleeping and other external pressure over the body of the shunt valve. What made the problem particularly challenging, was that there was no available (in-vivo) diagnostic test to identify and quantify the issue in patients. Available CT/MRI and shunt patency testing was usually “negative” for shunt malfunction, which is termed a “false negative.” Higashi and his team then cited the need for a new type of diagnostic test to identify these shunt outcomes issues in affected patients. Once I authored my petition, my next challenge was in creating a new type of test to evaluate these shunt performance issues.

I sought out a method to chart & analyze non-invasive clinical markers in hydrocephalus in different postures, and during different times of the day. This was 1997, and the same year researchers at the U. of Pittsburgh and Henry Ford Institute, were quietly doing this to monitor sports concussion. It took me more than a year, during which I also consulted aerospace scientists on possible math formulas. Once it passed the first proof of design phase, I expanded my test to evaluate any type of problem with any type of CNS shunt. And then I aptly named it the DiaCeph Test. Dia– meaning to diagnose. And Ceph– meaning of the brain. The design and proof of concept were completed in Sept. of 1997. And then I began using it to evaluate my Delta shunt for corrective revision.

Initially, I was going to “give my method away” to one of the shunt manufacturers. But it was a friend from little league baseball who convinced me to try and PATENT it. Which I did via the law firm Knobbe Martens Olson & Bear. The photo above was taken just days after my Feb. 1998 shunt revision where I used the DiaCeph Test to help determine which type of shunt would fit my CSF outflow needs.

 

My experience in nuclear medicine and working with hydrocephalus and diagnostic software proved invaluable in the creation of the DiaCeph Test. Over my 18 years of nuclear medicine (beginning in 1975), I had authored hundreds of diagnostic procedures, set up hospital imaging procedures, started and run an imaging company, and provided diagnostics for a wide range of medical conditions. Two of those tests for hydrocephalus were cisternograms and shuntograms.

In 1997, my DiaCeph Test was so new, it didn’t have a category name. But today, these type of applications are widely termed, “mHealth.” As such, my DiaCeph Test design was one of the earliest mHealth tests, and remains state of the art still in 2016. But, designing it was no simple task. I had to contend with frequent cognitive or memory difficulties, shunt malfunctions, terrible headaches, and lack of funding.

In 1998, I filed my full patent on the DiaCeph Test and formed the start-up, DiaCeph, Inc. DiaCeph was to be a dedicated PDA app, like the Palm Pilot that had just become available. The Internet at that time was just mature enough then to allow patient data and results to be sync’d with a PC either at the patient’s home, or at the physician’s office. I proposed how a server could allow uploading & sharing of patient results.

DiaCeph can analyze non-invasive user data and render a diagnosis of the type of shunt malfunction. I created a series of clinical markers (as can is seen in the slide above), and by establishing a patient’s baseline normal values, incident results could be compared and produce a diagnosis based on the change from normal. Where there was no comparitive data, the program still aggregated resulting data and compared it with the most likely data known by the program for the different types of shunt malfunction. I was advised that patients not be given access to the results by FDA and others involved in the project. Today we know its best to give patients this information. Below, is earlier web site information on the DiaCeph Test. Below that, an Orange County Business Journal‘s 1999 story about the DiaCeph Test entitled, “The Accidental Inventor.”

DiaCeph Test at DolleCommunications.com 

Stephen Dolle, Dr. Eldon Foltz, and Stephen Natawpski of Knobbe Martens are interviewed by the Orange County Business Journal regarding the invention of the DiaCeph Test, and Stephen's FDA efforts in Washington, D.C.
Stephen Dolle, Dr. Eldon Foltz, and Stephen Natawpski of Knobbe Martens are interviewed by the Orange County Business Journal regarding the invention of the DiaCeph Test, and Stephen’s FDA efforts in Washington, D.C.
Stephen Dolle interviewed in the Orange County Business Journal for his FDA efforts and DiaCeph Test invention Page 2
Stephen Dolle interviewed in the Orange County Business Journal for his FDA efforts and DiaCeph Test invention Page 2

DiaCeph underwent initial evaluation and development at the University of California Irvine (UCI). My lead physician was the long time neurosurgeon and professor, Dr. Eldon Foltz, who was excited about the DiaCeph Test and offered to mentor me. He shared he had been trying to develop a similar test since 1980. Dr. Foltz helped me form a board of medical advisers at UCI, and introduced me as an mHealth pioneer.

After the FDA granted my shunt petition in Sept. 1998, I was invited to attend the FDA’s STAMP Technology Conference in Bethesda, MD, which was to address shunt safety issues as cited in my petition. However, the conference never did! Nor were these CNS anti-siphon shunt challenges discussed, nor DiaCeph mHealth concept. And neither was I was not invited to appear on the conference panel, despite being the person who helped create the conference. As a result, my DiaCeph Test and similar solutions never received the exposure they deserved. It no doubt hurt prospects for the DiaCeph Test at a time it was badly needed, and amid my limited resources as a patient developer.

As time went on, I looked for new novel ways to utilize the DiaCeph methodology. Below, are SlideShare.net slides of new (July 2016) DiaCeph Test NPH Instructions, a NPH 6-Marker Form, and a new Chronological Outcomes Form or “flow chart” for creating a patient record of many years with various shunts, opening pressure settings, and hydrocephalus outcomes (complaints/status) in a patient. There are instructions on how to complete the historical flow chart in the back of the NPH instructions.

These materials are FREE to use. But if you have questions or would like my assistance with monitoring or related hydrocephalus and shunt issues, please contact me directly. My consulting rates are $125 per hour.

Diaceph 5 day 7 marker NPH hydrocephalus shunt monitoring form
Diaceph 5 day 7 marker NPH hydrocephalus shunt monitoring form

DiaCeph Test MONITORING INSTRUCTIONS

DiaCeph Test MONITORING FORM

DiaCeph Test FLOW CHART

DiaCeph, Inc. as a Brain Software Company

By 1999, I was exploring other brain apps & software and making plans for this as part of DiaCeph, Inc., to be an innovator in this space. This was prior to the advent of Google apps, social networking, and mobile tech leaders like Samsung and Apple. At that time, the only two mHealth apps under consideration were by Aetna’s health division for CHF and asthma. I was also in communication with Hewlett Packard, Microsoft, the Coleman Institute, and other institutions involved in assistive cognitive technologies. I presented DiaCeph to a number of university centers and medical device companies. But I could not get any committments to partner or fund it. Apparently, no one saw my vision.

By 2003, I had begun to move on to other neuroscience interests. My brain also remained significantly swollen due to unresolved and mis-understood hydrocephalus, and kept me on disability, working only part time. I could not get a neurosurgeon to undertake additional surgery without diagnostic documentation. It was a Catch 22! I believe if the DiaCeph Test were available then, it would have answered these diagnostic questions.

In the end, the DiaCeph Test was never made into a PDA app due to lack of fundingFDA regulatory barriers (costs), and lack of support from medical device companies in the field of neurosurgery. However, DiaCeph could still be produced today as a mobile data app. I wrote up a “creative brief” in 2014. The challenge now lies mainly in the FDA regulatory costs of mHealth apps, where estimates have said to be in excess of $1M. It is doubtful this cost could ever be recouped in sales of the app. So I prepared wider prospects for other neurological apps in my expanded Creative Brief.

Hydrocephalus today still faces considerable mis-diagnoses due to unavailability of imaging and mHealth solutions. Radiologists regularly mis-interpret CT and MRI brain scans, which leads to undiagnosed shunt malfunction and incorrect settings of programmable shunts. This in turn has resulted in significant quality of life issues and costs for patients living with hydrocephalus.

Below, is a screen shot of a CT/MRI mHealth Display method I’ve been using since about 2002. This helps to organize CT and MRI scans into useful formats for review by your physicians, especially when there are many scans over a period of years. At present, the link is to a blog I authored on LinkedIn. I hope to sometime elaborate further on this in a new company blog. I also consult on preparing these at my same $125 per hour rate.

Method of Organizing CT & MRI Images for Chronological Review

Innovative Dolle mHealth method allows CTs & MRIs to be chronologically oarranged and compared.
Innovative Dolle mHealth method allows CTs & MRIs to be chronologically oarranged and compared.

You should obtain CDs of all your CT/MRI brain scans. The method allows for review of 1000s of CT & MRI images by placing the most critical images in a chronoligcal sequence for comparison. These displays can also reduce interpretation medical errors.

To create these, I first create folders on my PC for each CT or MRI series. Then I export the images as JPEGs into the respective folders using the media software included in the radiology CD disc. Next, I review, select, and label the relevant images and copy them to special forlders where I arrange them in chronological order for better viewing. This format makes interpretation much more scientific, and it minimizes any human (visual) error during interpretation.

This method is particularly important in hydrocephalus care – where it is common to have dozens of studies and 1000s of CT and MRI images for review. This mHealth display method would benefit radiologists, neurologists, and neurosurgeons involved in hydrocephalus care and other care involving CT and MRI studies.

This method allows for more detailed evaluation of shunt settings, shunt performance, and shunt malfunction. I put these mHealth methods to good use in my hydrocephalus consults and shunt monitoring services.

Once you have assembled the critical MRI/CT Images Folders, they can be easily sync’d and copied to folders on your mobile phone and tablet device. Then when you see your physician, you’ve got all your CT and MRI images neatly organized for review.

Below, is a diagram of my current shunt valve, the Codman Certas valve, which was implanted in Nov. 2012. However, in May 2013, it was recalled due to stability issues during MRI exams.

Illustration of the Codman certas valve, an externally adjustable programmable CNS shunt valve with 7 pressure settings, and is used in the treatment of hydrocephalus.
Illustration of the Codman certas valve, an externally adjustable programmable CNS shunt valve with 7 pressure settings, and is used in the treatment of hydrocephalus.

The DiaCeph App today could be made as a mobile data app and text app (for use in developing countries). It would enable 24/7 monitoring of hydrocephalus and could be coupled with a variety of neurological, EEG wave, and other apps now available.

Additional Resources on Hydrocephalus Monitoring

Hydrocephalus NPH Monitoring by Stephen Dolle/Dolle Communications

NPH/ Hydrocephalus Monitoring

Mobile Apps, mHealth, and other Solutions for Hydrocephalus

I’ve been providing NPH/Hydrocephalus Monitoring Services & Patient Consults with DiaCeph paper forms/instructions since 2009. I also host FREE monitoring forms and information on hydrocephalus. My experience with hydrocephalus now spans 18 years of diagnostic work in nuclear medicine, and 21 years in FDA regulator affairs, CNS shunt reviews, mHealth design, cognition and assistive technology, drumming & music therapy, and global patient consults for affected individuals/families around the world.

I also host two consult reports on the top blog above (Hydrocephalus NPH Monitoring by Stephen Dolle)The first report was completed by a legally blind man. I provide each patient a custom set of forms and instructions. If an mHealth app were available, it would direct patients or users in the collection of this data, and then offer physicians the data in a finished format for earlier diagnoses, intervention, and surgery.

HydroPowered.org – Super Heroes

The Terminator is the ultimate super-hero for adults and children affected by hydrocephalus.
The Terminator is the ultimate super-hero for adults and children affected by hydrocephalus.

Early on, after I was implanted with a VP shunt for hydrocephalus, I began to seek creative comfort in stories about Super Heroes. As an inventor, I also began to equate living with a CNS shunt implant to the Terminator character in the movie of the same name. Eventually in 2013, I created a fun web site and Facebook page for hydrocephalus – where I began to write about “super-heroes” for hydrocephalus. Here I am today pictured below in a current photo following a speaking engagement. My rates are very reasonable, and I have a list of topics I speak on. Contact me for more information of this.

Stephen Dolle Headshot in a Suit
Stephen Dolle Headshot in a Suit

I have undergone 12 brain operations, or shunt revisions as they are termed, since my initial diagnosis in 1992. I became a shunt device, hydrocephalus “expert,” and early inventor of an mHealth mobile app, the DiaCeph Test. It was my 1996 petition to the Food & Drug Administration as a CNS shunt patient that led to my designing the DiaCeph Test. My efforts then helped bring about the 1999 International STAMP Conference in Washington D.C. At that time, many in industry felt the conference and FDA upholding my petition were heavy handed actions designed to hinder innovation in industry. But in the years since, it has been shown to be just the opposite, that without mHealth tools and patient engagement, there will be less innovation, more challenges for physicians, higher costs & disability rates for patients, and a lower quality of life for those affected. It is time for industry, FDA, and Congress to stand in our shoes! In 2015, I also published my current health challenges with hydrocephalus and a related neuromuscular disorder on my blog in this case study.

Many of the CNS shunts in use today are programmable shunts, where pressure and flow rate can be externally adjusted for each patient. But, many of these devices have been susceptible to inadvertent reprogramming from household appliances and technology magnetic fields. At present, FDA does not allow patients to own the reader or programming tool to help manage these unforeseen events. I would love to develop a mobile app or accessory tool to allow patients to check the setting of their shunts.

Other Brain Apps

I use other brain apps on the Android Play Store to help with the management of hydrocephalus, including, a Decibel Meter, EMF Detector by Smart Tools, and a Weather & Barometric Pressure app by Elecont Software. The more recent availability of EEG readers has further elevated the prospects of brain apps in neurological care, and in meditation and mindfulness – SEE my other blogs for information on these.

I advise and write about brain apps, often helpful in hydrocephalus and other neurological disorders. In this blog, I share tips on design & using apps:

Design & Best Use of mHealth Apps

And in this very popular mHealth blog, I discuss how to use a weather app for management of migraine headache:

Weather Apps and Web Sites for Management of Migraine

The slide image below is the barometric pressure reading from my Elecont weather app.

The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.
The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.

DiaCeph Development Costs and Other Barriers

Estimates to develop a hydrocephalus mHealth app are as high as $1M. Requirements by FDA are driving these high costs. In developing countries, FDA guidance does not come into play. And for those regions, a “text app” version of the mobile data software could be created to do monitoring on a standard mobile phone, and text the results to a regional hospital or clinic. My DiaCeph Creative Brief is currently 16 pages. I understand this is too large for most reviews. So I am preparing a “short” and “long” version.

I understand there are organizations who could help develop or fund my mHealth app project. My wish would be to work with a mHealth software group and provide the guidance and expertise to develop the DiaCeph app, and then advise on other applications.

Currently, development of mHealth apps for disease management have become a political ball game between patient advocates, the Food & Drug Administration or FDA (backed by big corporations), and Congress. Earlier this year, a bill was introduced in Congress by Senators Deb Fischer (R-Neb.) and Angus King (I-Maine), identified as the PROTECT Act (Preventing Regulatory Overreach To Enhance Care Technology). The bill has garnered the support of IBM, athenahealth, the Software & Information Industry Association, and Newborn Coalition and McKesson.

Shortly after introducing the act, the legislators penned an editorial in USA Today calling FDA’s regulatory process burdensome and a hindrance to innovation. One organization, with connections to big pharma lobyists, calling itself the mHealth Regulatory Coalition (MRC), has come out and opposed it. But I suspect they don’t live with a medical condition like hydrocephalus, that would benefit from these mHealth app innovations.

PROTECT Act Bill S2007

Protect Act Story on Protect Act

Groups Opposed/Conflicts of Interest to mHealth

Protect Act under Fire

Pediatric Hydrocephalus Foundation supports PROTECT Act

Many individuals with hydrocephalus have had 100 and 200 surgeries, and live a very poor quality of life. Quality of live, and unnecessary brain surgeries, would no doubt be improved with the availability of mHealth app diagnostics.

If you are interested in development of the DiaCeph Test, obtaining a hydrocephalus consult, mHealth consulting, or my speaking at an event, please contact via the information below.

Stephen Dolle
Dolle Communications
Email: contact [at] dollecommunications.com
Tel. (949) 6424592
http://www.dollecommunications.com/
http://www.hydropowered.org

Contact Stephen Dolle
Contact Stephen Dolle

Design and Best Use of mHealth Apps

Chosing the right mHealth App can be confusing.
Chosing the right mHealth App can be confusing.

Chosing the right mHealth app can be confusing. Today, we see an array of health & mHealth mobile apps designed for consumers. But are you using them correctly, or are you wasting your precious time and money?

Whether it be for monitoring of exercise, fitness, or weight loss, or for more serious conditions like diabetes, sleep disorders, or shunt malfunction in hydrocephalus, consumers and developers would be wise to better understand how health and mHealth apps can benefit one’s health. The biggest problem I see is how health and mHealth apps are categorized, which then determines how they will be used. So I have written up a few suggestions to better help consumers and developers in selecting their mHealth apps. I have grouped health and mHealth apps into three (3) categories.

mHealth Technology, are we there yet?
mHealth Technology, are we there yet?

First, a little info about me. I am an early designer and pioneer of a 1997 neuromonitoring app, the DiaCeph Test, intended to run as a dedicated PDA device. I worked in nuclear medicine technology from 1976 to 1992. My specialty was setting up very technical medical instrumentation for best use. But a brain injury & CNS shunt for hydrocephalus in 1992 changed all that, and I became involved in artificial intelligence (AI) in assistive cognitive applications, and in mHealth apps for hydrocephalus monitoring. In 1997, I designed and patented one of the earliest mHealth apps, the DiaCeph Test. It was to run on a PDA. I was not able to raise enough funding for development and FDA guidance, but offer free paper FORMS and user INSTRUCTIONS, plus provide consults to individuals with hydrocephalus and their families. The link below explains these services.

Hydrocephalus & NPH Monitoring by Stephen Dolle/Dolle Communications

This also includes global health information on hydrocephalus. From 17 years earlier work and consulting in nuclear medicine, I’m well versed in medical software and UIs for medical technology. Today, I am also a drum circle facilitator, and put on drumming workshops for a number of medical conditions. Furthering our understanding of cognitive therapies and cognitive accessibility will play an increasingly important role in designing future mobile apps and interfaces, or UIs.

mHealth designs & monitoring must be tailored to the medical condition and patient.
mHealth designs & monitoring must be tailored to the medical condition and patient.
Cognitive Accessibility accommodations er CognitiveAccessibility.org
Cognitive Accessibility accommodations er CognitiveAccessibility.org

First Health App Category:

Apps that only provide medical resource information, i.e. WebMD, Medscape. They are generally not harmful if from a respectable source. Still, there are dangers in relying on a single site and piece of advise. I prefer to search for medical sites on the web, where topics will be hyper-linked to other web pages. This way you’re not limited by one app. One of my favorite sites is MayoClinic.com. I like their format. You should become familiar with an array of health & medicine sites, where you’ll come to know who you can trust and which formats you prefer. Now that you’re reading up on health and medicine, it’s time to select an app you might use to help track everyday things like exercise & fitness, or nutrition and weight loss. These apps I put into my Second Health Category. But if you have a chronic medical condition, or are being evaluated for some new serious medical disorder, then you’ll want to skip to my Third Health Category.

WebMD mHealth app and solutions in health and medicine
WebMD mHealth app and solutions in health and medicine
The Mayo Clinic web site offers an easy to understand interface & wealth of reliable health and medical information.
The Mayo Clinic web site offers an easy to understand interface & wealth of reliable health and medical information.

Second Health App Category:

Apps that collect information on health, fitness, nutrition, sleep, and stress management, plus a few more not mentioned here. For the most part, these apps do not serve a medical purpose, unless you are being treated by a physician or therapist who will review the data. So if you plan to use them for this purpose, you should really skip up to the third catagory. This second app category is perhaps more intriguing, than medically useful. And it then raises the question, What are you going to do with the data? Unless you are working with a trainer, therapist, or physician who knows how to interpret them, and will advise you accordingly, you may be wasting your time. Once your results reveal a true health issue, then you’ll need to move up to the third category.

Third Health App Category:

Apps for disease management, which is my specialty. Here you track specific data for a specific medical condition via an app designed to monitor your condition. But you should really be working with a physician or specialist who can interpret the data and treat you. You may also have to pay extra fees. Otherwise, you will likely be left with useless data, and no specialist to act on it. I recommend physician concierge services where you can pre-arrange apps, and then interact via email and telephone. Besides concierge services, some physicians will communicate with you via email, which can be very helpful. Disease management apps also help in the prevention of medical errors and incorrect diagnosis. We’re still in the early years for these apps. But in time, they will become an integral part of patient care in the management of chronic disease.

Below, is my blog discussing how weather apps can be used to manage migraine and triggers due to dramatic change in barometric pressure. The barometric pressure image below is a screenshot of my Elecont HD app from Jan. 31, 2016, where the curve reveals a dramatic fall, and then rise, in barometric pressure which can cause migraine and related problems for persons with an array of neurological disorders, including, hydrocephalus, which I live with. This blog discusses migraine in depth and how weather apps are an effective tool in managing these health challenges. Also SEE my blog on how decibel meter apps can help with sound induced headache due to sensory processing disorder. Coming soon: Integration of Brain Wave Readers in neurology apps.

Mobile Wealther Apps help in Managing Weather related Migraine Headache

Barometric Pressure graph reveals steep drop and rise which can trigger micraine headache
Barometric Pressure graph reveals steep drop and rise which can trigger micraine headache

I initially wrote this blog in response to an April 16, 2015, article in the New York Times technology section, which wrote about health and mHealth apps and whether they are good for everyone. Sadly, I found their conclusions and recommendations vague and incomplete. But without a comments section, I ended up writing my response on LinkedIn, and then on my blog here. The title of the NY Times article was:

Report Questions Whether Health Apps Benefit Healthy People

Women play and entrain with dolphins on this boat excursion out of Dana Point, CA.
Women play and entrain with dolphins on this boat excursion out of Dana Point, CA.

On March 23, 2016, the New York Times “On Technology” magazine ran an interesting story on women’s use of mHealth apps for managing women’s health. I found it provocative in that it delved into the female psyche & biology of women, and perhaps a superior ability to entrain to one another (McClintock Effect, synchonicity of monthly cycles).

New York Times: Women more Honest w/ Phones than Doctors

The article then cites a study of over 130 women who were more comfortable keeping personal health information in an app, than sharing with doctors. Is this an aberation? Perhaps not. It has been shown in multiple studies how women are more early “adopters,” and how women more readily entrain to one another than their male counterparts. But it’s unclear if men similarly are less willing to share medical information with doctors. In either case, I think these findings give us insight into design preferences in  mHealth apps.

As for women being more able to entrain with each other, I can attest to this from my work with drum circles. They are more emotionally connected. It definately comes through in my work with drum circles, or “group drumming.”

Whatever your needs are, I hope you find a health or mHealth app that works for you, and find a physician or therapist to interpret your results, and advise you medically. If you’re an mHealth developer, I hope you learned something here you can use in your development and marketing of mobile apps.

As far as prep on my DiaCeph Test app for hydrocephalus, I am mostly done with my Creative Brief/App Proposal. If I can advise (consult for) others on mHealth app development, I am happy to do so.

The DiaCeph app was designed initially for a PDA before mobile data apps were available. Still, its diagnostic design is state of the art today. This could also be coupled for monitoring of migraine, EEG readings, SPD, PTSD, and other app functionality. Below, is my blog on the DiaCeph Test.

Below are links to my recommended neuro apps for Hydrocephalus

eWealther HD App by Elecont for managing Migraine Headache

Metal & EMF Detector – App Smart Tools app measures magnetic fields of electronic & magnetic devices in one’s living environment that could alter the setting of a programmable CNS Shunt for Hydrocephalus

  Sound Meter – Smart Tools Decibel Meter app measures the loudness of sound helpful in SPD or sensory processing disorder.

Smart Tools Page on the Android Play Store

Smart Tools Apps on the iTunes Apple Store.

You may contact me below if interested in speaking to me about my work with drumming therapy, app development, or speaking in the neurosciences.

Stephen Dolle

Tel. (949) 642-4592

Email: contact[at]dollecommunications[dot]com

Dolle Communications

Contact Stephen Dolle
Contact Stephen Dolle

 

 

 

 

 

 

 

 

Contact Dolle Communications
Contact Dolle Communications

 

 

eWeather HD App helps manage Barometric Pressure related Migraine Headache

eWeather HD App for Managing Migraine Screenshot

This blog discusses how to use “barometric pressure” forecasting in the eWeather HD app by Elecont and from weather web site barometric pressure data to manage barometric pressure triggers in migraine headache, other headache, arthritis, and some autoimmune disorders. This blog also provides considerable self-help health information and tips for managing migraines and headaches, plus a brief review of the Migraine Buddy and Headache Diary Pro apps.

The eWeather HD app was originally developed & introduced as an Android app by Elecont Software, and then as an IOS app. As IOS came later, it sometimes does not have the full features available to Android versions.

Over the last several years, Elecont has adopted some of my recommendations, which has allowed the eWeather HD app to function as an mHealth tool in managing pressure aggravated disorders, at least on Android devices. However, “notifications & alerts” on iOS devices are still not available as I discuss in this latest update. Since May 10, 2016, I offer FREE eWeather HD Google Promo codes for Android users who email me. It is a $4.95 value. iOS versions are less, at about $2.95 on the Apple Store.

April 27, 2017 Update includes:

In my April 21st update, I wrote that I thought on-screen or Task-bar Notifications were likely possible on iOS devices, not having seen the app run on an iOS device (of which I don’t own). Then on Tuesday of this week, I attended an iOS developer event to deliver a demo on the eWeather HD app. There I was able to explore the app as it appears on iOS devices, and learned why it does NOT get Alerts or On-screen Notifications. It has to do with Apple’s “Apple Push Notification” service, or APNs, for network notifications on iOS devices. My apologies for not understanding this issue sooner. I will be speaking to the developer Elecont as to fixes for this issue. I explain in more detail how the iOS version of the app is used in my section below on eWeather HD for iOS Devices.


April 21, 2017 update includes:

1. eWeather HD Barometric Pressure screenshots showing the “Notifications” I use on my Android GS3 phone in managing my headaches. NOTE: I do not use the audible alert option. From my experience, audible alerts might only be necessary in users with visual impairment who are unable to view home page Notifications. As I do not own an IOS device, I am uncertain of the specific screen Notifications available on IOS versions. However, I will encourage the developer to make my recommendations here as standard options available on all their versions.

2. Discussion of Barometric Pressure Notifications currently available for IOS versions of the eWeather HD app. SEE my discussion in the IOS section.


Jan. 11, 2017 update included: 

1. How to select notifications & alerts for changes in barometric pressure related to migraine headache, with screenshots, and

2. My personal preferences for barometric pressure indicators on my eWeather app


Oct. 19, 2016 update included:

1. Screenshots and new instructions on installing the app from Google Promo codes.

2. Discussion and review of several top migraine apps.

3. Discussion and links from new Excedrin migraine and weather information.

4. Updated information on the role that sound/noise and sensory processing disorder (SPD) plays in migraine headache.


 

Migraine headache can get you out of your routine
Migraine headache can get you out of your routine

Weather changes with a sharp drop in barometric pressure can often trigger a migraine headache in pressure sensitive individuals with a history of neurological disorders such as hydrocephalus, post tumor, Parkinson’s Disease, PTSD, sensory processing disorder or SPD, and person’s with a history of anxiety attacks and migraine. The sharp drop in barometric pressure during weather change often acts as a trigger of migraine. Weather apps and web sites can provide advanced warnings of changes in barometric pressure, so affected individuals can adjust their activities and medications. I’ve found the eWeather HD app to be the most convenient as it forecasts barometric pressure both 24 hours ahead, and the past 24 hours, in a easy to read graphic format. The app highlights steep rising and falling of barometric pressure, and can alert you via its icon on the taskbar of your phone.

I am a migraine sufferer today as a result of 24 years and 12 CNS shunt surgeries for hydrocephalus. In this blog, I discuss a real migraine headache event, and how I used the eWeather HD to help me better through it. Had it not been for the Elecont eWeather app, I likely would have been down for the entire afternoon. And as of May 2016, I give away Google Promo codes from the eWeather HD app developer for a FREE app download for Android devices, a $4.95 value. To obtain a Google Promo code, email me your request to the address at bottom.


Stephen Dolle in Knots of Love Bennie for persons who have underwent brain surgery or chemotherapy.
Stephen Dolle in Knots of Love Bennie for persons who have underwent brain surgery or chemotherapy.

My name is Stephen Dolle and I am a neuroscientist and author of this blog. I write and consult on mHealth, brain health, and the disorder hydrocephalus. I also live with hydrocephalus, and regularly suffer migraines, and have been an eWeather HD app user since 2012.

My mHealth app experience spans a 1997 design of an application for hydrocephalus (DiaCeph Test) to run on a PDA, which unfortunately I was not able to get funding for. However, I continue to provide a number of FREE monitoring forms and instructions so individuals and families can do their own monitoring. Since 2009, I’ve been providing Hydrocephalus Monitoring & Consults to patients affected by hydrocephalus (link to blog & services is below). I am also a CNS shunt device scientist. I can also provide consults to mobile app developers and others wishing to develop mHealth apps. My DiaCeph Test today could be made into a mobile data app with sufficient funding and/or partners.

Hydrocephalus Monitoring & Consults

Since 2012, I’ve also been applying my mHealth expertise to migraine care and weather monitoring of migraine headaches using both weather apps and web sites. I have also evaluated mobile apps for pain management monitoring. Since 2014, I  found the eWeather HD app the best mobile app tool for monitoring barometric pressure weather triggers, and in 2016 I reached out to the developer for free downloads to give away to my blog followers. Migraine headaches are also very common in hydrocephalus, which I have been living with since 1992. So these eWeather HD efforts also benefit my own health.


Drum circles help to reduce stress and stimulate the brain for optimal function in the workplace

I also put on drum circles in Orange County, California, as a therapy for medical conditions, and for events, icebreakers, and organizations interested in team-building (like drumming in the workplace pictured above). Medical conditions and organizations I’ve helped include: National Hydrocephalus Foundation, National Parkinson’s Foundation, cerebral palsy/autism, drug & alcohol addiction, Alzheimer’s disease, movement disorders, sensory processing disorder (SPD), schizophrenia, weight loss, and general health & wellness. I also write blogs on drumming and movement topics, including, drumming for basketball and football. Drumming can improve one’s intolerance to sound and stress, which are common triggers of migraine headache, and stress also plays a key role in sensitivity to noise in sensory processing disorder (SPD). Drumming, exercises, and yoga also help offset cerebral hypotension, the mechanism most often responsible for migraine headache. My blogs below detail how drumming aids wellness, stress reduction, and migraine disorders.

Drumming for Workplace Wellness

Drumming Therapy in Cerebral Palsy and Autism

Stephen Dolle facilitates a drumming for wellness workshop at a private home in Orange County
Stephen Dolle facilitates a drumming for wellness workshop at a private home in Orange County

How to Use the eWeather HD App for Management of Migraine & Headache

The Elecont eWeather HD app is an excellent mHealth tool & mobile app for managing migraine headache. I have been using the app since about 2012, while also using several online weather sites. As Elecont made updates to its app, by 2014 it became my weather site/app of choice.

The app provides up to 24-hour advance display of changes in barometric pressure, which you can use to help manage your migraines and headaches. Knowing this weather data in advance, can allow you to make key changes in your schedule, medication, exercise, and hydration to possibly head off a migraine attack. Moderating exercise, hydration, and medication other tips is discussed further in this blog.

This section’s screenshots are from the app on my Android device. There are some differences with the iOS version, specifically, with Alerts & Notifications not yet being available. In my UPDATES at top, and here in my discussion sections, I detail how you can use the app on both Android & iOS platforms.

For Android devices, you have (3) ALERT options for how you get notified of changes in barometric pressure. Below are the Android screenshots for setting up ALERTS in the eWeather HD program. (For Apple/iTunes devices, you can view changes in pressure via the red-alerted barometric pressure graph in the app, and via display of the pressure graph icon on your phone’s taskbar & widget if set up).

  1. VIEW GRAPHS: View the graphs by clicking on the app or widget on your home screen. The program is configured by default to turn the barometric pressure graph “red” when there is a rise or fall of more than 0.20 Hg (I think). The default graph will look like the graph in the screenshot just further below. This shows the pressure for the last 24hr in Hg. The far right edge of the graph is current time, and the far left edge of the graph represents 24hr earlier. To see the next 24hr forecast, press the tiny round red “in” button in the top right corner of the screen. Press it again, and it returns to the current 24hr graph. Scroll the screen to the “right” to see an hourly all weather forecast, and scroll to the right again to see the 10 day weather forecast. Scroll again and it comes back to the home screen.
  2. VIEW ICON: View the pressure graph “icon” in either the notifications bar on the top of your phone’s screen, or in the lower right corner of Elecont 2×2 widget screen. I have both set up. The icon is a tiny display of the graph. When the pressure is substantially rising or falling, it will turn to red and be sloped accordingly.

The screenshot below is the default view on the opening screen of the eWeather HD app on Android devices. eWeather HD App panel displays a forecast graph of the previous, current, and next 24 hour period of barometric pressure.

The eWeather HD Android app Barometric Pressure Graph includes Current, past 24 Hours, and next 24 Hours, the data of which is a useful Health Monitoring Tool for Migraines, Headaches, Arthritis, and other Medical Disorders.

eWeather HD App panel displays a forecast graph of the next 24hr period of barometric pressure

USE OF NOTIFICATIONS/ALERTS: You have the option to receive an “audible alert” or “notification icon” when the change in barometric pressure exceeds the pre-set range within the app.

I personally do not use the audible alerts. Also, I am told audible alerts are not yet available in IOS versions. I personally use the notification icons available in three (3) places on my Android phone, which I identify below & share via screenshot:

1) Icon in lower right corner of 2×2 widget on my home screen;

Since I took the home screen screenshot below, I revised the “widget” display, weather data, and colors on my Android phone. I’ll share a new screenshot on my next update.

2) Task bar Icon at the top of my home screen;

3) List of Icons for eWeather HD & other phone functions on the Task Bar (top of phone home screen). The barometric pressure Notifications turn red when there is significant change in current, past 24 hours, or forcasted pressure. The colored Icon is readily seen on the screen. Users with visual impairment may require the app’s audible alerts. In addition, several times a day I click on the eWeather HD app widget, where a large view of the barometric pressure graph appears. Click on the “in” button in the top right corner, and the graph alternates between U.S. Provider & Foreca.com pressure graphs.

eWeather HD Android app home screen Icon Notifications of Barometric Pressure Graph, which is a helpful tool in Health Monitoring of Migraines, Headaches, Arthritis, and other Medical Disorders.

 

The eWeather HD Android app features multiple Task Bar Icon Notifications, including, of Barometric Pressure which is a helpful in Monitoring Migraine, Headache, Arthritis, and other Medical Disorders.

To set up customizable icon & audible alert notifications in the eWeather HD app, go to the OPTIONS panel. Press the “open menu” button on your phone within the eWeather HD app and scroll down to “options” near the bottom of the list. This is where you set up weather and barometric pressure alert information for both your task bar & home screen widget. First, select the “Alerts” option near the top of the options panel (not pictured in the screenshot below as it’s a long panel).

UI Panel options in the eWeather HD App.
UI Panel options in the eWeather HD App.

Click on the “Alerts” option near the top of the panel, and check the boxes like in the screenshot below.

eWeather HD App options panel to set up alerts
eWeather HD App options panel to set up alerts

Next, go to the main OPTIONS panel and select the “Status Bar Notification” in the lower portion of the panel. Select “Pressure Changes” like in the next screen.

eWeather HD App options panel status bar notification
eWeather HD App options panel status bar notification

Then check the appropriate boxes under “Pressure Changes” and select whether you want to receive an “audible notification” like in the screen below.

eWeather HD App options panel option to select pressure changes
eWeather HD App options panel option to select pressure changes

This concludes set up of alerts & notifications for Android devices. For help with the eWeather app widget, see “frequently asked questions” section under “About” on the OPTIONS panel.

To obtain a Google Promo code for a FREE download of the eWeather HD app for Android on Google Play, email your request to the address at bottom.


How to set up & View eWeather HD app on IOS Devices 

While most of the eWeather HD app features and displays are quite identical on Android and IOS devices, audible Alerts & Task-bar (on-screen) Notifications are not yet available on iOS devices. I attended an iOS developer event and discussed these eWeather HD app challenges. I got to explore the iOS version of the app, which up till now I had not been able to as I don’t own an iOS device. And I discussed with an iOS developer the challenges with alerts & on-screen notifications on iOS devices. It has to do with Apple’s “Apple Push Notification” service, or APNs, which is the centerpiece of their network notifications, and involves additional security coding that has not yet been submitted for the iOS version. Apple has very strict requirements with their platform. Comparatively, on Android devices, I believe notifications & alerts are more “locally controlled” on the device and do not require the network security features.

You can purchase iOS versions of the eWeather HD app via the links below:

Purchase eWeather HD app for IOS devices at the Apple/iTunes store, follow the links, installation screenshots, and link to Elecont’s customer support page:

Apple iTunes Store: eWeather HD App

Elecont eWeather “Customer Support” page for Apple iTunes Installation

I will be speaking with the developer, Elecont, on this issue to see what steps can be undertaken to that iOS device users can receive Notifications & Alerts.

Below are Task Bar & Widget Notifications available on my own Android device. I do not use the audible alerts as I explain below.

Notification icons that I personally use on my own Android phone include (SEE my screenshots of this in my above Android discussion):

1) Icon in lower right corner of 2×2 widget on my home screen;

2) Task bar Icon at the top of my home screen;

3) List of Icons for eWeather HD & other phone functions on the Task Bar (top of phone home screen). Barometric pressure Notifications turn red when there is significant change in barometric pressure. The colored Icon can readily be seen on the screen. Users with visual impairment may require audible alerts. In addition, several times a day I click on the eWeather HD app widget to view the barometric pressure graph. Clicking on the “in” button in the top right corner allows the graph to alternate between U.S. Provider & Foreca.com.

When task bar icons notifications become available in the IOS version, I suspect it will be set up from within the OPTIONS panel, very similar to how it is on Android. On Android, you press the “open menu” button within the eWeather HD app, and scroll down to “options.” Next you look for the option called “Notifications,” and then select the weather data you’d like displayed in on-screen notifications. Again I only use Task Bar Notifications, plus a home screen Widget with Icons I selected from within the options panel.

I will post new UPDATES on this ALERTS & NOTIFICATIONS iOS issue at the top of this blog, as well as discussions here, on fixes for alerts & notifications. The program screenshots below were kindly shared by an IOS device user. The app has the same features as the Android version, except for the Alerts & Notifications. iOS users must manually open the app to monitor BAROMETRIC PRESSURE changes.

Elecont eWeather for iPhone.pressure screenshot1
Elecont eWeather for iPhone.pressure screenshot1
Elecont eWeather for iPhone.pressure screenshot2
Elecont eWeather for iPhone.pressure screenshot2
Elecont eWeather for iPhone.pressure screenshot3
Elecont eWeather for iPhone.pressure screenshot3

And here’s the eWeather Apple app screenshot of its barometric pressure graph once the app is installed and operational.

Elecont eWeather for iPhone.pressure graph
Elecont eWeather for iPhone.pressure graph

My eWeather HD App Migraine/Headache Case Study

Below, is my own eWeather App case information from an episode in 2015 that forced me to stop working, lay down, take medication, and engage the eWeather HD app as an mHealth tool to salvage my day.

And as I lay down with shades drawn, I clicked on the widget of my Elecont eWeather HD app, where I could see I was in the midst of a very sharp fall in barometric pressure (screen image below). The app showed a “9 pt. drop” in only an hour – which is a very significant drop. It is the “rapid drop” in barometric pressure that is the most common trigger of migraine headache, next to stress.

My next step was to perform a valsalva (breath pressure) maneuver – which I use in my hydrocephalus and migraine care, to test my response to a temporary increase in brain blood pressure (BP) and intracranial pressure (ICP). If you’re experiencing a (hypotension) migraine from rapidly falling barometric pressure, often times valsalva maneuvers and changes in posture (up & down) over a 20 minute period, can provide some relief.

To do a valsalva maneuver, simply hold your breath for a few seconds while straining as though you were lifting something. Then note the change in your headache during the maneuver. If it feels relieving, that suggests your headache is due to low pressure or a “cerebral hypotension” brain state. If there is no change, that would suggests either your headache is unrelated to weather pressure, or your pressure is so low that the valsalva did not counter your low pressure enough. If your headache worsens with this valsalva straining, that would suggests hypertension & elevated BP and/or ICP, and you should discontinue any further straining maneuvers.

With my migraine on that day, I got headache relief almost immediately from the valsalva pressure maneuver, and continued to perform these low pressure offsetting maneuvers. As I’ve used the app for several years, I knew today’s drop in pressure was unusual and steep. The eWeather App also changes the color of the graph to “red” during a steep rise or fall in barometric pressure. I put 2+2 together, and I concluded the sudden drop in pressure was likely the cause of my migraine headache.

I stayed supine for almost an hour, while continuing to perform 2-3 valsalva maneuvers each 10-15 minutes. Within 30-45 minutes, I was feeling like new! I also soon observed the barometric pressure to level off on my app’s display. Below is my screen image:

The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.
The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.

Weather Web Sites

Weather web sites also offer some barometric pressure information. Prior to the Elecont HD weather app, I primarily used two online weather sites. Weather Underground lists barometric pressure forecast data, but only 6 hours of forecast data the last time I looked.

Two weather web sites I used in the past include Weather Underground and Weather For You. For these, you need to put in your zip code or city to view the weather panel for your area. They list a table and graph options for weather data. Weather Underground gives 6 hour forecasts ahead on barometric pressure.


The Medical Science of Migraine Headaches

Migraine headaches are typically due to cerebral hypotension, where blood vessels in the brain become dilated, resulting in low blood pressure in the brain, and then headache. During weather change, a sudden falling of barometric pressure can leave you further vulnerable to cerebral hypotension. And it is the rapidly falling barometric pressure that is often the trigger of a migraine. Menstruation, and its associated blood loss, can also contribute/help trigger cerebral hypotension and migraine.

Knowing the cause of your migraine will help you best treat it. In the case of my migraine on this day, it was the sudden drop in barometric pressure that induced my headache. My quick assessment of its cause, then allowed me to undertake swift intervention.

Valsalva maneuvers and laying down preferably in a dark or quiet room, is a common treatment in migraine. But some may also need medication. You should keep watch on the barometric pressure during a migraine to confirm that it is stabilizing.

This illustration shows how nerve fibers become inflammed during a migraine.
This illustration shows how nerve fibers become inflammed during a migraine.

Weather related headaches affect some 15% or more of the world’s population. Migraine is also common in the disorder, hydrocephalus. Migraine headaches are also passed on thru family genetics.

Much has been written about the connection between weather and migraine headache. The popular over the counter medicine, Excedrin, combines aspirin or Tylenol with caffeine (a vasoconstrictor) to offset dilated blood vessels (cerebral hypotension) which is the most common scientific explanation for migraine headache. Excedrin helps both with pain and constricting of the dilated blood vessels. For this reason, Excedrin is uniquely helpful in the treatment of weather related migraine. Below, is a web page Excedrin has published on the weather-migraine connection.

CAN WEATHER CHANGES CAUSE A MIGRAINE? (Excedrin.com)

Excedrin is used to help manage pain associated with migraine headache.
Excedrin is used to help manage pain associated with migraine headache.

The Mayo Clinic hosts a nice web site section on migraine:

Migraine information at the MayoClinic.com

The Mayo Clinic web site offers an easy to understand interface & wealth of reliable health and medical information.
The Mayo Clinic web site offers an easy to understand interface & wealth of reliable health and medical information.

Self Care of Migraine Headache

Learning to use mHealth Apps to manage illness.
Learning to use mHealth Apps to manage illness.

Smithsonian Magazine: Can This App Predict Your Headache?

The above Smithsonian Magazine article primarily discusses the feasibility of whether the Migraine Buddy app can predict migraine headache. For more on this, SEE my review and comparison of the Migraine Buddy app and Headache Diary Pro and how each can integrate with the eWeather HD app further below.


I have written much about how to use mHealth apps, home treatment, and prevention of medical disorders. And migraine can be better managed by following my tips in this section.

One simple technique is to have a cup of coffee or tea right before onset of a migraine. Caffeine acts to constrict dilated blood vessels in the brain, and can also be used prophylacticly head off an onset of migraine and cerebral hypotension – before a big headache strikes. Similarly, exercises like yoga, which involve frequent changes in posture (eg. standing to lying down), can can help to normalize cerebral hypotension and your brain’s ill-fated response to falling barometric pressure.

Drinking 2-4 glasses of water can help treat migraine headache.
Drinking 2-4 glasses of water can help treat migraine headache.

Another more pragmatic remedy that helps me is rapid hydration with water (two to four 12 oz. glasses) over a 15-30 minute interval at first onset of symptoms. The water helps raise blood pressure (BP) and infuse fresh blood and nutrients into the brain. Other remedies include changing postures from standing to laying down over 30 sec to 2 minute intervals, and light exercise with short interval BP surges. This helps to flex the tiny blood vessels in the brain most responsible for migraine. Regular exercise also improves your intolerance to cerebral hypotension. PRECAUTION: Should you suffer from high blood pressure or heart disease – you should consult with your doctor before doing these physical exertion exercises.

Once a migraine event has begun, it is recommended you lay down supine for at least 15-20 minutes to raise your brain’s blood pressure and help offset the hypotensive state.


Loud/monotonous sounds, stress, other illness, and poor sleep can also leave you more susceptible to migraines. Many migraine sufferers also suffer from SPD or sensory processing disorder,” and become overly sensitive to loud ertatic sounds. It’s important during a migraine, to remove yourself from sources of light, sound, and commotion as best you can, as it helps calm the brain. The following is a detailed blog I’ve authored on sensory processing disorder:

New Insights in Management of Sensory Processing Disorder (SPD)

Brain centers involved in SPD or sensory processing disorder, courtesy of UCSF
Brain centers involved in SPD or sensory processing disorder, courtesy of UCSF

Women during menstruation are also more susceptable to migraine from the slight blood loss causing a hypotensive state. Coupled with a drop in barometric pressure, if you are a woman common to this syndrome, menstruation and barometric pressure drop can send you into a full migraine crisis. To offset this, you should drink extra fluids during menstruation.

Migraine sufferers should also limit intake of alcohol, as this can lead to dehydration, and alteration of brain neurotransmitters. Also limit foods with high fat and sugar content as this compromises healthy circulation in the brain. You will likely see a noticeable difference in frequency and severity of your migraines just by altering your intake of alcohol, fat, and sugars.

To help reduce sensitivity to changes in barometric pressure, regular exercise like yoga can help brain compliance and cerebral blood flow. Breath work and meditation also help improve blood flow in the brain, and your stress response. Drumming is an excellent exercise as it also reduces stress. Weight lifting, sports, walking, and all exercise helps improve blood flow in the brain, that can offset migraines. Below, the Mayo Clinic web site offers some info on migraine.


For many migraine sufferers, weather related triggers pose regular challenges. Here I personally have found the eWeather HP app to be an excellent mHealth tool for alerting you of coming changes in barometric pressure. Managing migraine, and its many different causes, can be a complex health challenge. So you should be discussing the eWeather HP app and other details ith your doctor.

My initial blog on weather monitoring for migraine was in 2014. In that blog, I shared my experiences on the use of weather web sites and the eWeather app. But the eWeather Elecont app has become the best tool for managing weather induced migraine headache.

With the condition hydrocephalus, which I live with, a headache during rising pressure could also indicate an early sign of shunt malfunction, signal an improperly programmed CNS shunt, or be a sign you’re not yet stable following shunting or ETV. As a significant headache [during high barometric pressure] could indicate “shunt malfunction,” you should take this up with your doctor.

The eWeather HD App can be used to help manage migraine headache associated with a number of neurological disorders.
The eWeather HD App can be used to help manage migraine headache associated with a number of neurological disorders.

How to obtain your FREE Android eWeather HD Google Promo Code

The Google Promo code for the Elecont eWeather HD App is a $4.99 value. Per the developer, no free downloads are available for Apple devices. I strongly encourage you READ my entire blog after downloading the eWeather HD app.

To obtain your FREE Google Promo code, email me at contact [at] dollecommunications [dot] com – I will email you back your code, usually within a couple hours, but almost always within 24 hours.

How to Install your eWeather HD Google Promo Code

1. Once you’ve obtained your “Google Promo code,” go to the Google Play store and search for eWeather HD app (or similarly follow the link in my email). I’ve heard mixed feedback as to whether you SHOULD or SHOULD NOT be signed in.
2. Next click and open up the app – and you should see a panel as in STEP1 below. Click on INSTALL.
3. You should now be given the option to buy with a Google Promo code. Do not select BUY if you’re signed in as the $4.99 might be billed to your Google account. You need to be at the REDEEM YOUR CODE panel as seen in STEP2 below. For some users, you may need to sign out of Google Play store in order to see the REDEEM YOUR CODE panel.
4. Next, enter the Google Promo code I emailed you and select REDEEM. Then select ACCEPT. You should immediately see the app installing.

eWeather HD android installation with Google Promo code Step1
eWeather HD android installation with Google Promo code Step1
eWeather HD android installation with Google Promo code Step2
eWeather HD android installation with Google Promo code Step2
eWeather HD android installation with Google Promo code Step3
eWeather HD android installation with Google Promo code Step3
eWeather HD android installation with Google Promo code Step4
eWeather HD android installation with Google Promo code Step4
eWeather HD android installation with Google Promo code Step5
eWeather HD android installation with Google Promo code Step5

Purchase the eWeather HD app for Android devices directly at the Android store, follow this link:

Android Play Store: eWeather HD App 


Purchase the eWeather HD app for IOS devices at the Apple/iTunes store, follow these links – plus SEE installation screenshots and link below to Elecont’s customer support page:

Apple iTunes Store: eWeather HD App

Elecont eWeather “Customer Support” page for Apple iTunes Installation


Android Mobile Apps for the Home Care of Migraines & Headache

This section compares two leading Android mobile “migraine” apps I have used for home care of migraine headache, and can offer my insights. These apps would need to be used in addition to the eWeather HD app as neither provides any monitoring or alerts on changes in barometric pressure. Headache Diary Pro vs Migraine Buddy. I use the “pro” version of Headache Diary, and the “free” and only version of Migraine Buddy. They are nearly identical in application, but differ in their UI panel and usability. Where Headache Diary Pro provides all the necessary monitoring and migraine reports, Migraine Buddy charges a monthly or yearly subscription for their reports. I find the Migraine Buddy a more detailed and user friendly program. But you would need to have a significant migraine problem to spend $9 per month or $90 per year.

My recommendation as to your individual use of the eWeather HD and above apps is based on the severity of your migraine issue as to the degree that it impairs your quality of life. That should determine how much time and money you may want to spend on these.

eWeather HD app: If you are certain that your migraines are often triggered by changes in weather, then this app is a must for you. You may also want to download one of the migraine apps if your condition poses significant to quality of life. The eWeather HD app is not too difficult and time consuming to set up. And it offers many other weather features such as 10-day weather forecasts, live radar, weather alerts, and earthquake alerts, to name a few.

Headache Diary Pro: I have used this app for several years and find it very adequate for recording and storing migraine data to later print out when you see your doctor. It’s fairly simple to use. And I don’t believe there are any other additional costs to use.

Migraine Buddy: The Migraine Buddy is perhaps the newest mHealth design of any of the migraine apps I’ve looked at. I downloaded it today and ran it thru a trial headache event. While I favor its UI interface over the other migraine apps, I am not willing to pay a monthly or year subscription fee to get the results. This is a decision only each of you can make as to how migraine affects your quality of life, and what you are willing to do to possible better manage it.

If money weren’t an issue, I’d likely choose Migraine Buddy. But be forewarned, the Migraine Buddy and Headache diary Pro (and likely all migraine apps) require a significant investment of time. If you suffer daily headaches from hydrocephalus as I do, one of these two apps can be helpful. But, the more time and thought you give to your headaches, the more they seem to take up space in your mind. This goes the same for pain and pain management too. Below is the Manage My Pain Pro app I have tried and found helpful for pain management, though time consuming.


Mobile Health Apps for Hydrocephalus

Living with Hydrocephalus for most means the implanting of a CNS Shunt as Illustrated here.
Living with Hydrocephalus for most means the implanting of a CNS Shunt as Illustrated here.

As I have written about the use of mobile apps for migraine headache, I wanted to also share some more specific applications I’ve written about for persons with hydrocephalus. Two of the most common apps I use (Metal/EMF Detector, Decibel Meter) can be found on the Smart Tools web site. I’ve used these apps for several years and find them helpful in managing hydrocephalus and SPD related complaints. I also now have a special blog of apps and tips for living with hydrocephalus below.

DolleCommunications Blog of Apps & Tips for Hydrocephalus

Smart Tools Page on the Android Play Store

Smart Tools Apps on the iTunes Apple Store

Metal Detector – This EMF app is handy for measuring magnetic fields in your surroundings from various electronic devices & household appliances should you have a programmable CNS shunt for hydrocephalus. I personally have used the Smart Tools Metal Detector for 4 years and find it accurate and helpful.

Sound Meter – Decibeter meter apps measure the loudness of sound around you should you be sensitive to sounds as a result of hydrocephalus, autism, and other disorders that often lead to sensory processing disorder, or SPD. I personally use the Smart Tools decibel meter app and find it accurate and helpful.

 

Chosing the right mHealth App can be confusing.
Chosing the right mHealth App can be confusing.

List of Apps & Web Sites Discussed in this Blog

Android Play Store Elecont HD Weather App link

Apple iTunes Store Elecont HD Weather App link

Smart Tools Page on the Android Play Store

Smart Tools Apps on the iTunes Apple Store

Earlier March 2014 Blog on Weather & Migraine

Weather Underground

Weather For You web site

Drumming for Workplace Wellness

Drumming Therapy in Cerebral Palsy and Autism

Mayo Clinic – Migraine Answers

Mayo Clinic – Migraine Headache

Shunt Monitoring and Consults for NPH & Hydrocephalus

DolleCommunications Blog of Apps & Tips for Hydrocephalus


I hope you’ve enjoyed this blog and found health tips to help in managing your migraines. If I can be of any specific help in mHealth design, use of these apps, hydrocephalus care & monitoring, drum circles for wellness and brain health, or speaking on these topics, please contact me via the information below.

Please also email me for a Google Promo code for a FREE download of eWeather HD for Android devices (Google Play store).

You may also save my Contact Card.

Stephen Dolle
Tel. (949) 642-4592
Email: contact[at]dollecommunications[dot]com

Dolle Communications

Contact Stephen Dolle
Contact Stephen Dolle

 

 

 

 

 

 

 

 

Contact Dolle Communications
Contact Dolle Communications

Overcoming Barriers in the Adoption of mHealth Mobile Apps

I wrote an in-depth response to the “12 barriers” presented in the blog below on the LinkedIn Mobile Health Association group, and am posting my discussion public here.

The title of the blog post is “12 Barriers to Adopting Mobile Technologies in the Healthcare Industry”
http://www.integratedchange.net/barriers-to-adopting-mobile-technologies-in-the-healthcare-industry

This blog presents a nice concise overview of the issues, and I took it as an opportunity to share my knowledge on the subject. As to my qualifications, I designed & patented one of the first mobile health apps in 1997, the DiaCeph Test, a disease management & diagnostic app for the disorder hydrocephalus. It was to run as a stand-alone app on a PDA. I formed my start-up company, DiaCeph, Inc., and for 3 or 4 years I followed all of the developments during those years. Today, mobile data apps are different from the earlier stand-alone & PC applications. However, we can learn a great deal from those early years, and individuals such as myself have experience in working earlier apps. So, it’s just a matter of picking up where we left off. As such, I feel that I have an astute understanding of mHealth app prospects today.

The blog lists 12 distinct barriers that need to be addressed in order for mobile health, or Mhealth apps, to be put into widespread use.

1) Security
2) Health Devices
3) Remote Places
4) NHS Network – N3
5) Difficulty Understanding the Technology:
6) Difficulty for NHS Staff
7) Hacking
8) Lack of Incentives for GPs
9) Mobile Does Not Mean Only Mobile
10) User-Friendly
11) Human Appeal
12) Lack of Support

Let me begin by addressing No. 8: Lack of Incentives for GPs (Physicians). Just as it were proposed 15 years ago, I believe it still holds true today. There needs to be a reimbursement code & fee for physicians to examine patient data from health apps, particularly, disease management apps for chronic illness. If the app provides [invaluable] clinical information that the physician would not otherwise have, the app data must be viewed as clinical testing. Even though the results might only require a quick check or interpretation, there is an interpretation taking place and doing so could/should involve a fee (esp. where there are no other charges for the monitoring). Another way physicians could earn a fee, is thru cost savings and capitation in managed care practices.

In chronic illness, which today accounts for 75% of all health care spending, health apps can make an invaluable contribution to clinical care & outcomes. Digital monitoring has been used in CHF, asthma, diabetes, and a few other disorders with good success. But there’s not yet been the widespread and seamless integration to drive the needed adoption and support.

As to No. 3 Remote Places: I believe “text apps” could be used on standard phones, and operate a bit like my earlier DiaCeph app on a PDA, and the resulting file texted to a care facility.

With most of the other barriers, notwithstanding those of security (which in my view applies to all mobile data), the challenges I believe can be answered by physician and plan reimbursement, which will then drive adoption.

Briefly, my view of apps is in one of three (3) categories: 1) Fitness & light wellness; 2) Disease Management; and 3) PHR or personal health records. The latter category poses the key hurdles with secutity, whereas the 2nd category is for management of chronic illness, which is critical to care outcomes, and is also where much of my experience lies.

If physicians are reimbursed for reviewing or interpreting app data in chronic illness (which I believe can happen), then physicians will lead adoption and tech support – which is how it should be. App recommendations, use, adoption and support will then go thru their office, much in the way prescriptions are written thru their office today. I also envision “app centers” where patients can get support and the latest user information on apps. These app centers could also serve of the types of apps, relieving AT&T, Verizon, and Sprint of this responsibility. Just imagine the marketing efforts that would ensue to physicians, the reimbursement, and the value-cost savings in medicine. We’ve seen leaps and bounds of progress in UIs and adoption of apps in only a few years. So many users are ready for this next wave of technology. It’s the seniors and slow learners next that must be brought on board tech and mobile apps. But just imagine what a coordinated effort could do. There’s so much money & cost savings at stake in mHealth not to do this. Yet, UIs and accessibility must improve.

One of my pet peeves is “cognitive accessibility” of web sites, apps, and product labeling, and store shelves. It is an area that I became involve in, and advocate and write about, as a result of a brain injury and CNS shunt placement in 1992 (I have underwent 12 shunt revisions to date). Times when I am tired or otherwise not feeling well, I have limited patience for misdirection and poorly designed UIs. I have become particularly adept in cognition, artificial intelligence, and learning. In recent years, though, much of my work has been with drumming for the brain. Yet, I am an accomplished neuroscientist & patient advocate, and as mobile technology has progressed, it has attracted my interest. I earlier spent 17 years in nuclear medicine imaging and worked with some of the most poorly designed instrument interfaces you could imagine. Having been adept in technology enabled me to apply it to my needs post brain injury. Plus, 35 years ago, I considered going into instrument design work. All of this affords me a unique perspective with mobile apps & mHealth today. I also provide neurological consults around the world with paper forms based on my DiaCeph design. So I know how mHealth would fit into care.

In closing, I believe we have 90% of the information that is needed to make mobile health succeed today. We must primarily solve the outstanding integration, platform differences, and security issues. Once this is done, the developments will transend the millions of mobile apps coming available, and making them much more integrated, and much more secure. Dare to dream!

Stephen

Cool Math use in Music, Science, and Technology for Math Awareness Month

In honor of Math Awareness month #MathAware, here are my cool uses of math in music, science, and technology.

In music, I use math in my percussion with drum circles in the various time structures & types of rhythms. Rhythm is everywhere: in dance & our body physiology, in our brain waves, and around us in nature, the planets, and universe. Do you have a favorite musical rhythm?

In my neurological monitoring work for the disorder, hydrocephalus, I use math by assigning numerical values to a patient’s neurological markers, then I interpret the data into medical discussions and diagnoses. I designed & patented this method back in 1997, and named it the DiaCeph Test. “DiaCeph” is from the Latin root of two key medical words. Do you know which ones? It is still a very relevant method today. You can find it on my web site and SlideShare.net. If I find $100K, or my own software developer, I’ll make it into a really cool mobile app!

Then I use math again in the layouts of many of the reports I write, especially in the formats I create, in logic & reasoning, presentation of subject matter, and analysis and conclusions. Can you think of one of your own reports, where math & reasoning were pivotal?

Lastly, I use math in many of the mobile apps & software I use. My own memory can be poor at times, so I regularly use software and technology to keep myself organized, connected, and productive. And of course, math & logic is at the core of all these apps and software. Which of your favorite apps or software is the most math oriented?

Here’s the web site for Math Awareness Month.
AI Number Code
http://www.mathaware.org/index.html

Enjoy.

Stephen Dolle

Hydrocephalus and NPH Monitoring by Stephen Dolle of Dolle Communications

Stephen Dolle, Neuroscientist & Drum Circle Facilitator
Stephen Dolle, Neuroscientist & Drum Circle Facilitator

Welcome to my NPH and Hydrocephalus Shunt Monitoring Services

My name is Stephen Dolle and I am a neuroscience researcher and medical (shunt) device consultant for the disorder, hydrocephalus.

Brain Diagram of Ventricles often Enlarged in Hydrocephalus
Brain Diagram of Ventricles often Enlarged in Hydrocephalus

I became scientifically involved in CNS shunts and shunt monitoring in 1994, several years after a brain injury and onset of hydrocephalus. I had performed shuntograms and cisternograms for hydrocephalus as a nuclear medicine technologist from 1976-1992 before succumbing to the condition myself. So I was quite familiar with hydrocephalus. But it was two years after my own onset of hydrocephalus with a slew of all too common complications, that I became scientifically involved first as an FDA patient advocate, and eventually, as inventor of the DiaCeph Test – an mHealth app that was to run on a PDA and monitor hydrocephalus as early as 1999.

Knowledge is Power
Knowledge is Power

From 1999-2003, I worked with my start-up company, DiaCeph, Inc., developing the concept and trying to raise funds for development. I continued some FDA patient advocacy thru 2007, but eventually moved on into other interests in the neurosciences, most notably, putting on drumming events and drumming for the brain workshops. I continued to stay abreast of CNS shunt technology. And in 2009, I began providing NPH hydrocephalus shunt monitoring and patient consults. Information about these services can be found via the link below.

Dolle Communications Web Site – Hydrocephalus Monitoring

My drumming workshops became very successful. In Sept. 2015, I put on two drumming workshops and proposed a “Drum-Off for Hydrocephalus” at the National Hydrocephalus Foundation’s PATIENT POWER Conference in Anaheim, California. Feel free to speak to Debbi Fields as to the success of these drum circles.

Below are my July 2016 updated DiaCeph NPH & hydrocephalus monitoring forms and instructions. They are also pictured below as images. New to this series, is a historical flow chart (2nd below) for retrospectively plotting hydrocephalus complaint levels vs shunt opening pressures for any period from a few months up to 10 or 15 years. The instructions for how to do this are included in the back of my July 2016 DiaCeph NPH Hydrocephalus Monitoring Instructions. You are free to download and use these forms. These are also available on my SlideShare.net – SEE further below. Or, you may download from my web site (once I’ve updated it there) hydrocephalus treatment & forms. This is a good way to keep track of your hydrocephalus history of complaints.

Diaceph 5 day 7 marker NPH hydrocephalus shunt monitoring form
Diaceph 5 day 7 marker NPH hydrocephalus shunt monitoring form
Diaceph NPH hydrocephalus historical shunt outcomes flow chart
Diaceph NPH hydrocephalus historical shunt outcomes flow chart

DiaCeph Test MONITORING INSTRUCTIONS

DiaCeph Test MONITORING FORM

DiaCeph Test FLOW CHART

Below are two sample patient reports from hydrocephalus consults I’ve done over the last 7 years. I have permission to host & share these two patient reports so that others affected by hydrocephalus can learn of these new methods in hydrocephalus monitoring.

In the first report, the patient collected 2 weeks of monitoring data via a journal I provided him, and then returned the completed journal via Fed-Ex. From this data, I created ICP graphs using the Microsoft Excel program. And I then interpreted the graphs and wrote up a 15 page report for he and his doctors.

In the second report, I reviewed an NPH patient’s CT and MRI brain scans and medical history for signs of shunt malfunction, aging, and brain atrophy. I then wrote up a report for the patient, and a second report for his physician.

I provide these consults as a medical (shunt) device consultant, mHealth designer, and former imaging consultant. These two reports are as follows:

NPH DiaCeph Monitoring Report #1 on SlideShare.net

 

NPH Consult Report #2 on SlideShare.net

 

Below, are the same (2) DiaCeph Monitoring reports from above, but on my web site as a web page (Report #1), and as PDF files (Reports #1 & #2) for download:

 

NPH DiaCeph Monitoring Report #1 (as web page)

Url address graphic
Url address graphic

NPH DiaCeph Monitoring Report #1 (as PDF file)

DiaCeph Hydrocephalus Monitoring Booklet
DiaCeph Hydrocephalus Monitoring Booklet

NPH Consult Report #2 (as PDF file)

DiaCeph Hydrocephalus Monitoring Booklet
DiaCeph Hydrocephalus Monitoring Booklet

I write about mHealth mobile apps for managing neurological disorders and hydrocephalus. Below is a popular blog on managing migraine with weather apps.

Mobile Apps to help in Management of Weather Related Migraine

The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.
The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.

This next blog also contains links to many of the mobile apps I have used or recommend for hydrocephalus and related neurological disorders. You will find the links at the bottom of the blog.

Design and Best Use of MHealth Apps

mHealth Apps in Neurology
mHealth Apps in Neurology

Below is a tandem DiaCeph Test – Single ICP Tap study I published in 2003, where my DiaCeph Test monitoring I undertook accurately corroborated ICP readings done by my neurosurgeon.

Dolle Communications Tandem ICP Tap – DiaCeph Test Study

Shunt Illustration for Hydrocephalus
Shunt Illustration for Hydrocephalus

Below is information on my current efforts to make the DiaCeph Test into a mobile data app:

Hydrocephalus Monitoring Test Hopes to be New mHealth App

Below, is airport, TSA assistance, and scanner information on traveling with CNS shunts and cognitive disabilities.

Tips on TSA Airline & Airport Information for Travelors with CNS Shunts

TSA Cares Logo
TSA Cares Logo

Below, are some newer efforts I have undertaken on behalf of accessibility for persons with cognitive disabilities:

Cognitive Accessibility in Hydrocephalus

Cognitive Accessibility accommodations er CognitiveAccessibility.org
Cognitive Accessibility accommodations er CognitiveAccessibility.org

And below, is the home page of my Dolle Communications web site listing my various web pages under the cognitive neurosciences.

Dolle Communications – Cognitive Neuroscience Home Page

Hydrocephalus monitoring, drum circles, and neuroscience solutions by Dolle Communications
Hydrocephalus monitoring, drum circles, and neuroscience solutions by Dolle Communications

Please contact me accordingly. Best method of contact is email. Please contact me per the information below. Feel free to CLICK and SAVE my contact JPEG card.

Stephen Dolle
Neuroscientist, mHealth Inventor & Drum Circle Facilitator
Tel. (949) 642-4592  contact[at]dollecommunications[dot]com
Hydrocephalus Survivor w/ 12 Shunt Revisions
DolleCommunications.com

Contact Stephen Dolle
Contact Stephen Dolle

How’s your Implant Functioning (My BWE Sub-title to Terminator 3 Movie)

This is my Brain Awareness Week (BAW) photo which illustrates what we need to aim for in our brain science efforts: “Self Sufficiency.”

If you recall, oTerm3 Hows your Implantne of the primary themes of the Terminator movie series was the Terminator’s wherewithal to correct its own body breakage & malfunctions. For more than 50 years, Western Medicine has been surgically putting in a wide array of medical implants from bone screws and plates, to heart valves, CNS shunts for hydrocephalus, and neurostimulators for Parkinson’s Disease and seizure disorders. The most problematic of these are CNS shunts, which I have been living with for 20 years.

Over the last 20 years, I have worked feverishly to educate medical science of the needs for self-sufficiency and home diagnostics & solutions to keep the shunt and individual functioning. But medical science in nearly every branch, from FDA to device mfrs to practicing physicians, have remained oblivious to the needs of the patient, and what is technologically possible today.

In 1997, after petitioning the Food & Drug Administration on widespread oversight and needless failures with many CNS shunt devices, I designed and patented a home monitoring system for hydrocephalus and CNS shunt users based on non-invasive methodology which I named, the DiaCeph Test. When I introduced it to scientists at the University of California at Irvine (UCI), I was heralded as a pioneer and visionary by Dr. Eldon Foltz, a long-time practicing neurosurgeon & researcher in hydrocephalus. And when I showed my concept to NIH, they fell in love with it and urged me to find a credentialed university scientist or physician to write the NIH grant application. Later, however, UCI would inform me they would have to own everything, or it wouldn’t be possible for UCI staff to write the grant. I was given no other alternative other then giving it to them, which didn’t make any sense. So I continued to show my DiaCeph system to companies and others in the field, all to no avail. Back then, it was going to be a stand alone software device where we’d be seeking insurance reimbursement, a Medicare code, and industry distribution.

Today, however, the DiaCeph Test could be an app for a mobile phone! The future is now and we need to grasp it! We need to develop cost-effective neuro-technologies for common disorders of the brain, take mind-body modalities, music therapy, mobile apps & AI technology to the next level!

In support of my Terminator 3 BAW photo, I added the caption, “How is your Implant functioning?” I added this from years of frustrating experiences w/ CNS shunt implants where one is left w/ a malfunctioning CNS shunt implant, yet limited to no means to get it fixed. It would seem the age-old saying applies here, “IF you want something done right, do it yourself!” So goes the Terminator! — with hydrocephalus association and national hydrocephalus foundation.

Stephen Dolle

20-year hydrocephalus survivor

Inventor & Neuroscientist

Drum Circle Facilitator

Medical Intuitive

http://www.DolleCommunications.com

Newport Beach, CA

Help Me Kick Off Brain Awareness Week 2013

Brain Awareness Week 2013!
Brain Awareness Week 2013!

Today, kicks off Brain Awareness Week 2013. I selected this image as my favorite for this year’s campaign. I feel the image demonstrates the electrical & energy dialogue both inside our brain, and with the world and environment around us. We are connected, “on-line,” whether we like it or not, even when we’re sleeping and dreaming. So I ask this 2013, what are YOU doing for your brain and the collective consciousness this year? Our BRAIN is the most valuable asset we have. But in 2013, we still invest more dollars in guns & bombs and ways to kill people, than care/defense for our brains. Help me make “peak brain performance” a national priority in 2013.

In 1992, I suffered a brain injury that led to the condition, hydrocephalus, which has required 12 CNS shunt brain surgeries in the 20 years since my accident. During that time, I undertook research in hydrocephalus, neurological devices, assistive technology, music therapy, sensory processing disorders, and today drumming and the brain. In 1997, I designed and patented a AI type of monitoring system for hydrocephalus, that could be produced as a mobile phone app today. Help me make this app possible!

The last several years have been particularly troubling for me with unresolved hydrocephalus and numerous CNS shunt malfunctions & related brain surgeries. And when I’m out around my city and region, as well as watch national & world news on television, I am troubled with the lack of attentiveness to those with injury and impairment of the brain, and the level of commitment of financial resources towards research and ultimately, new treatments in this area. Brain injury and related disorders will effect each of us in our lifetime, either directly, or through an affected family member. The time is NOW to meet this CALL TO ACTION and get the better of brain injury & disorders, instead of the reverse. YOU can help your OWN cause by taking an interest in brain awareness and related research spending.

We are in desperate need of implantable diagnostics in today’s CNS shunt devices. We are in need of a “flow sensor” that would provide continuous readings on CSF flow thru the shunt, and could then be incorporated with patient day to day and clinical data to ultimately know how & whether the shunt is working 24/7. It would provide more timely medical intervention in instances of shunt malfunction, a very common occurrence, dramatically raise quality of life, improve patient outcomes, and pave the way for newer and better shunt devices. Wall Street and medical manufacturers should not have to choose between investing in shunt devices that they make money on today, versus a new implantable sensor that they’d make money on tomorrow!

Help me make brain awareness and scientific investment in brain treatments & technologies a priority in 2013 and beyond, and especially for the disorder hydrocephalus.

Stephen Dolle DolleCommunication.com

Newport Beach, CA