Neuroscientist puts Auto-Immune Case Study online for Open Source Medical Cure

Stephen Dolle invented his DiaCeph Test following his 1996 FDA petition that was then used to direct this 1998 shunt surgery
I need my DiaCeph Test to be made available as an mHealth app for people w/ hydrocephalus.

NOTE: This blog was just put back online on Aug. 29, 2021

In March of 2015 I posted the following “health information” on my blog as a “case study” on a complex autoimmune health problem I’ve been battling since 2009. I am hoping by sharing it here, that might lead to answers and a sort of “open source medical cure.” By 2018, without any answers and an HMO plan which was restricting my getting those answers, I took it “off-line” because I felt it might lead to biases in work and personal/social activities. Then on Aug. 29, 2021, with the world still in the grips of the Covid19 pandemic, with restrictions & delays in many everyday medical services, I decided to put this back “online” as I think I am getting close to receiving a “diagnosis.” There is also a parallel between my autoimmune case study, and the Covid19 pandemic, in that both are centered around autoimmunity, and each of us must be healthy enough to produce “antibodies” from either natural immunity after a Covid19 infection, or after vaccination by one of three available Covid19 vaccines. As I earlier worked with “infectious diseases” (AIDs, TB, staff, hepatitis) in earlier nuclear (owned & operated Certified Nuclear Imaging” from 1982 – 1992), have accrued a great deal of expertise in public health from my public health work with CNS shunts, and have spent the last 10 years learning “auto-immunity” trying to solve my own autoimmune disorder – I really feel like I have some expertise or insights to offer in Covid19.

The photo at top is me pictured two days after my 5th brain shunt surgery  (Feb. 1998) for hydrocephalus. My own CNS shunt complications led to me becoming a patient advocateneuroscientist, and inventor of the DiaCeph mHealth Test for hydrocephalus that I’ve used to co-direct my last 8 brain shunt surgeries, and provide consults and related patient care information around the world. I also became involved in music therapy, and eventually “drumming,” or drum circles, and then a drum circle facilitator.

In 2009, I began to experience muscle cramping which began to cause blood in the urine, and partial kidney failure, after the rigorous exercise of some of my drumming events. Two years later, I was diagnosed with Hashimoto’s Thyroiditis, fatigue and worsening muscle complaints, dry eye, rashes, anemia, eosinophilia, bone pain, and in 2015  “meningeal enhancement” on my MRI brain scan with Gadolinium. The MRI finding was eventually diagnosed as “pachymeningitis,” which is non-infectious inflammation of the meninges, or the lining covering the brain and spine, and I was placed on corticosteroids (primarily prednisone). I also live with a VP shunt for hydrocephalus since 1992. The actual cause or diagnosis of my pachymeningitis has yet to be identified. Further below is my 2015 CSF lab report, and MRI brain scans that evidence dura enhancement and pachymeningitis. I now have NEW 2021 MRI imaging results and lab work after being off prednisone for 18 mo, plus upcoming appointments with specialists that I think will put me closer to a diagnosis. MRIs of my brain, cervical, and thoracic spine with Gadolinium show diffuse “meningeal enhancement” down into my thoracic spine. This is thought to be from “chronic intracranial hypotension” from overdrainage of my CNS shunt for hydrocephalus. But I am skeptical of this as the diagnosis as I’ve experienced overdrainage in the past, and know how to identify and manage it with a programmable shunt. The biggest challenge I think, is diagnosing an underlying autoimmune disorder and noninfectious meningitis in the presence of hydrocephalus. I will share more in the coming weeks.

Shunt Illustration for Hydrocephalus
I need an immediate convening of scientists and FDA regulatory staff to sort thru the current roadblocks to progress & safety of CNS shunts for hydrocephalus.

My hydrocephalus history spans 1992 to present with a total of (12) CNS shunt operations, or revisions. The shunt complications, poor outcomes, and confusion in my care during those first few years led to my doing field research, activities as a patient advocate, and then authoring of this important 1996 Food & Drug Administration petition on anti-siphon shunt devices that led to the 1999 FDA STAMP Conference in Bethesda, Maryland. In the interim two year period that FDA reviewed my petition, I researched and designed my DiaCeph mHealth Test shunt monitoring system, and was bestowed the title of “scientist” for my efforts without attending school again for a masters or PhD degree.

As for my medical patient experiences, along with 12 surgeries and hundreds of shunt malfunctions, accidental reprogramming of my shunts, and numerous embarrassing and personal challenges, I’ve also undergone about 70 brain scans, half or more of those being CT scans with the associated radiation exposure. I’ve also underwent 4 or 5 procedures where foreign substances (dye & radio-tracers) were injected into my shunt system that can lead to infection and CNS complications.

Unfortunately, I could never get the requisite funding or support for my DiaCeph Test and DiaCeph Inc. startup, which would have enabled early reporting and sharing of data on shunt devices. My company plans were to also pursue “brain apps” which I had been researching, and minimally available on PDAs at that time. Without availability of my DiaCeph Test, it took some of the best neurosurgeons 16 years (2008) and 6 revisions to get the swelling on my brain returned to normal. In 1998, I shared my DiaCeph Test to Dr. Eldon Foltz, chair of the Dept. of Neurosurgery at the University of California at Irvine. From 1998 on, I used the DiaCeph Test’s paper forms & instructions for pre & post surgical diagnostics and status assessment. Since 2009, I have been providing shunt monitoring consults to patients and families around the world. Today also health and safety failures with CNS shunts continues to be a considerable problem.

My primary health issue today surrounds a yet to be diagnosed autoimmune disorder and chronic meningitis. It may have been “triggered” by numerous invasive procedures and stresses of my shunt revisions. Or it may be a worsening of a childhood disorder tentatively diagnosed as a peripheral neuropathy in 1980. Without good health insurance, solving this riddle has been elusive. Since 2009, my complaints have worsened and become more systemic without any diagnosis or effective treatment or pain management. My present insurance is a United Healthcare managed care plan, and they have put up barriers to care, causing me to file (4) “grievances” between 2012-2015, and I have also put my privacy at risk in this case study.

Feb. 7, 2017 UPDATE:

In this most recent update, I share a new Rx order for a more detailed CSF (cerebrospinal fluid) lab test. I was given this order in early Dec. 2016, but am yet to undergo the labs due to uncertainty over discontinuing Adaptogens and Nootropics supplements which have brought some relief in my complaints in recent months. In late 2015, I authored this Blog on Nootropics from my research. My initial goal was to replicate the cognitive benefits I experienced in 2015 from the Exelon Patch drug. And secondly, to see whether Adaptogen herbs might bring relief to my pain and fatigue. And both did to some degree.

My recent improvement in late Dec. 2016 led to raising the pressure setting on my Certas hydrocephalus shunt valve – from a setting of “3” to “4.” This change is important as my shunt setting had earlier been down to “2” for 3-4 years due to low intracranial pressure (ICP) from the dura (brain) inflammation. I am yet to update my Nootropics blog with my latest findings, but I expect to over the next month. Below, are three images of my current supplements. The 2nd image also denotes via text: Modafinil, Prednisone, and Synthroid – which are drugs that produce “systemic” changes in the body. More recently, I’ve also added Alpha GPC to my daily Nootropics.

Primary Daily Multivitamins
Primary Daily Multivitamins
Primary Adaptogens and Nootropics Supplements
Primary Adaptogens and Nootropics Supplements
Primary Smoothie Ingredients
Primary Smoothie Ingredients

As much as the above supplements provided some relief in my complaints, I am uncertain which ones provided the benefit. I have also just learned that several of the Adaptogens, specifically Panax Ginseng and Ashwaghanda, also boost immune function, and this in turn diminishes the effect of my Prednisone. I could not get a definitive answer on Maca Root. I had noticed intermittent relief & worsening pain over the last 3 months. This new information by Natural Medicines then explains it. And I need to learn which of the above supplements I need to discontinue prior to this next round of CSF labs, and for how many weeks. And after this test, I need to decide what combination of Prednisone and supplements would be best. Should there be a definitive diagnosis, that will be very helpful.

Below, is the order slip for this next round of CSF labs. As I stated, it is unclear which supplements & prescription drugs I should be off, and for how long (Q1). This likely includes Prednisone, Panax Ginseng, and Ashwaghanda, and perhaps others. I have delayed this test due to these outstanding questions, and in transitioning off, and back on, these supplements. Perhaps I shouldn’t even be on them? I’d also like to know if there are additional CSF tests to add to this Rx list (Q2)? A CSF sample can be readily accessed thru my shunt reservoir under my scalp with relatively low risk.

CSF Lab Order Dec 2016 to r/o autoimmune disorder spec attn pachy meningitis
CSF Lab Order Dec 2016 to r/o autoimmune disorder spec attn pachy meningitis

This concludes my Feb. 7, 2017 status update. I am encouraged. The biggest abnormality in my CSF cell count (2015) is a low WBC count (lymphocytopenia). My protein level was also elevated. And I have had an elevated blood absolute eosinophils count and low “RBC” levels for much of the last 5 years. But my Oct. 2016 blood labs were in the normal range – after 10-12 months of supplements. I have also obtained and reviewed new autoimmune studies relating to dura inflammation and CSF testing which are applicable to my case history. Earlier in 2016, both my muscle biopsy & genetic tests (UCLA) were negative.

History Continued:

The history of my current neuromuscular complaints (beyond my earlier controlled peripheral neuropathy) arose in 2009 with hematuria (myoglobinuria) and subsequent kidney failure following a 4-hour drumming event, initially diagnosed as rhabdomyolisis. At that time, I had little neuromuscular cramping or pain other than in my back and lower legs that were well controlled with exercise. After this 2009 hospitalization, my cramping and extremity pain turned and global fatigue and affected the use of my hands and physical activities, with episodes of myoglobinuria and cramping occurring at lower thresholds of activity.

In late 2011 I was diagnosed with Hashimoto’s thyroiditis, thought secondary to an autoimmune disorder. And since 2012, my complaints have escalated to considerable global pain and cramping, fatigue, cranial nerve palsies, low intracranial pressure (ICP), and cognitive challenges beyond that of hydrocephalus. In late 2015, the dura inflammation was diagnosed as pachymeningitis (UCLA) esp after my positive response to Prednisone (SEE MRI below where ventricles collapsed after Prednisone). In my Oct. 13, 2016 update, I added photos and discussion regarding my childhood health issue, where drooping on the left side of my face/mouth can be seen as early as age 11.

I take a low dose Prednisone (2.5mg ea other day) that slightly helps with pain and cramping. Due to effect of Prednisone on my ventricle size (hydrocephalus), this has to be closely monitored with my DiaCeph Test & MRI brain scans, with adjustments in the pressure setting of my programmable Certas shunt, which has also been recalled and not yet revised. I need a mHealth app to sort this all out.

In January 2016, I hospitalized for a sepsis infection felt due to Methotrexate and Azithioprine I had been on for a few months. It did resolve much of the dura inflammation on MRI brain scan with Gadolinium, lending support to the pachymeningitis diagnosis. And in May 2016, I underwent a muscle biopsy with consideration of a mitochondrial disorder. However, the muscle biopsy was negative. There was some question if I was off Prednisone long enough.

In Oct. 2016, a brain tissue biopsy was proposed. But my neurosurgeon has advised against it. In my research, I focused on my abnormal CSF cell count, particularly my very low lymphocyte count seen in the image below. My other WBC counts are moderately elevated. Many CNS disorders today are identified in CSF counts. Please comment at bottom if you have familiarity with disorders that might cause this type of CSF count.

CSF cell count obtained via CNS shunt reservoir demonstrates elevated WBCs with a surprisingly low lymphocyte level.
CSF cell count obtained via CNS shunt reservoir demonstrates elevated WBCs with a surprisingly low lymphocyte level.

Here’s what I need as of Feb. 7, 2017:

  1. In Aug. 2016 I was referred to an immunologist at UCI Medical Center. But my United Healthcare plan denied it, instead referring me a rheumatologist with Great Newport Physicians, who ordered a brain tissue biopsy and this new CSF lab tests. At this time I need: a) A list of medications & supplements to be OFF, and for how long for the CSF lab test. b) Recommendations of any additional tests that might help identify my disorder. 
  2. I would like access to medications like the Exelon Patch (memory drug) & pain medications that support quality of life. Trash-men, freeway workers, and government union workers can get these medications. Denying these medications to others in need is a form of inequality & discrimination.
  3. I would like scientists and FDA to convene & expedite development of new safer CNS shunts, an ICP sensor and/or mobile app like my DiaCeph Test to monitor 24/7 CNS shunt function in hydrocephalus, and put an end to health and safety dis-information with CNS shunt technology.
  4. I would like NIH to convene scientists and address the epidemic of PTSD (post traumatic stress disorder) and SPD (sensory processing disorder) – and make recommendations for testing, treatment, and accommodations in public places, and help mitigate the practice of loud audio media (TV/radio) in commercials – that affects 10-20 percent of Americans.
Exelon Patch is FDA approved for memory impairment in Alzheimer's and Parkinson's Disease, but not for Hydrocephalus
I need samples of the Novartis Exelon Patch to help me with memory challenges as a result of complications with my hydrocephalus and chronic meningitis. My plan does not cover the patch.

Exelon Patch memory drug by Novartis

Use of the Exelon Memory Patch really is an accessibility issue in the presence of neurological disorder or brain injury. I doubt any health plan would deny an accommodating aid to a blind person or individual confined to a wheelchair. But, brain disability, it has no voice!

As for my United Healthcare health plan, between 2012 and 2014, I had to file five (5) appeals & grievances in order to receive treatment, that led to unnecessary delays. I have also suffered a number of medical errors, the most significant recent one was misdiagnosis of dura inflammation on my Feb. 2012 MRI brain scan with gadolinium. The inflammation wasn’t discovered until February 2015. Then it took another six months for Prednisone to surprisingly collapse my ventricles. And then a ton of research and advocacy on my part for my UCLA neurologist to make the diagnosis of pachy meningitis. And it is only a partial diagnosis.

Pachy meningitis is inflammation of the brain usually secondary to another disorder, which, in most cases, is an autoimmune or neuromuscular disorder. It was my innovative mHealth efforts after the collapse of my ventricles (hydrocephalus, treated w/ CNS shunt) in June 2015 while on Prednisone, that led to the pachymeningitis diagnosis. I am hoping my case study blog can also become a teaching experience on mHealth.

March 21, 2016 Status Update

Currently, I am awaiting scheduling of a muscle biopsy for evaluation of myositis and mitochondrial disorder. However, it is being complicated by delays by my United Healthcare HMO plan who is issuing the authorization. This likely would have been done back in 2012. I am taking a low dose of Prednisone which helps with cramping and pain. But, I will have to be off this for 4-6 weeks before the muscle biopsy.

It was on Dec. 28, 2015, that I learned dura inflammation was present back on my Feb. 2012 brain scan – but was missed by the radiologist. It was serendipity and my innovative MRI mHealth method of brain scan images I exported to my Nook tablet, that helped make these discoveries possible.

My mHealth Display Method of CT/MRI Images on LinkedIn

Innovative Dolle mHealth method allows CTs & MRIs to be chronologically oarranged and compared.
Innovative Dolle mHealth method allows CTs & MRIs to be chronologically oarranged and compared.

My MRI/CT mHealth Method: Since 1999, I’ve gotten CDs of my CT/MRI brain scans. Prior to that, I obtained copies on film and would photograph them. As of 2016, I’d undergone about 60-70 brain scans, along with 12 brain shunt surgeries. It was about 2002 that I created this mHealth display method to feature my own brain scans in my Shunt Selection Study on my web site for hydrocephalus. This method allows for review of 1000s of CT & MRI images by placing critical images in a chronoligcal sequence for review. Use of these displays would also reduce interpretation medical errors.

I first create folders on my PC for each interested CT or MRI series. Then I export the images as JPEGs into the respective folders using the media software program included in the radiology CD disc. Next, I review, select, and label the relevant images and copy them into another folder, where they can be arranged in chronological series and be viewed side by side. This format makes interpretation more scientific, and minimizes the possibility of human (visual) error from misinterpretation.

This method is particularly important in hydrocephalus care – where it is common to have dozens of studies and 1000s of images to be reviewed. This mHealth display method benefit radiologists, neurologists, and neurosurgeons involved in hydrocephalus care. This method also allows for more detailed evaluation of shunt settings, shunt performance, and shunt malfunction. I have also put these mHealth advances to good use in my hydrocephalus consults and shunt monitoring services linked below:

 Hydrocephalus and NPH Shunt Monitoring Consults

Once I have assembled the critical MRI/CT Images Folders, I can easily sync and copy the folders onto my phone and tablet. Then when I see my neurosurgeon or neurologist, I’ve got all of my brain images neatly organized for review and discussion.

It was during my Dec. 28, 2015 visits to discuss my post Methotrexate & Prednisone MRIs, that each (serendipitiously) observed pachy meningitis was present on two Feb. 2012 MRI images w/ Gadolinium I had in the display. I included them when I published this blog in April 2015, but didn’t think the images were comparible as they were from different series. These specialists see these studies every day and picked up on the abnormalities right away. I’m just the mHealth inventor! But I regularly get asked to demo these displays.

I’ve really been deteriorating since 2012, haven’t been able to keep up with drumming and other responsibilities because of widespread cramping, pain, and fatigue. On many days, I did not get out of bed until 11 a.m. or noon, and other days I’d return to bed by early afternoon. I wasn’t able to share this for fear of losing the little work I was doing.

Drumming helps seniors engage and raise spirits for better health
Drumming helps seniors engage and raise spirits for better health

My neuromuscular challenges are in addition to challenges I’ve faced with my CNS shunts, where manufacturers were aware of safety issues, but failed to notify FDA. I know this because I became a patient advocate in 1995 and keep abreast of shunt issues. Failing to report shunt safety issues has been the rule, which I discuss later in this blog.

Currently I am awaiting scheduling of a muscle biopsy for the progression of complaints that seem related to a neuro-muscular disorder for which a biopsy was done in 1980. I also seek answers in these Healing Arts (blog) and Alternative Medicine (blog)UCLA Medical Center has two healing arts centers: The Norman Cousins Center for PsychoNeuroImmunology and the Mindful Awareness Research Center.

My 1992 Auto Accident – Diagnosis of Hydrocephalus

Brain Diagram of Ventricles often Enlarged in Hydrocephalus
Brain Diagram of Ventricles often Enlarged in Hydrocephalus

The MRI brain scan below was taken one month post trauma and reveals very large ventricles suggestive of longstanding ventriculomegaly – which likely worsened with the accident and concussion. It’s speculated that I may have had a very small subdural bleed on my right side causing further ventricular enlargement because my right ear drum was “red” on exam one day following the accident. No brain scan was performed. It wasn’t until 4 weeks later, when I developed severe headaches and marked confusion (didn’t know what side of the street to drive on), that a brain scan was done (1992 below). This accident was caused by a 17 year who ran a red light, prior to mobile phones. I was returning home from volunteer duties at the 1992 Great American Race awards banquet, where I had been on a chamber arts committee to raise money for Costa Mesa arts. As they say, “No good deed goes unpunished!”

In support of hydrocephalus, and my yet diagnosed neuromuscular disorder, I would like to share my Hydrocephalus Blog for Rare Diseases Day. Seems one’s duties never end!

MRI Brain reveals hydrocephalus 1 month after an auto accident & concussion.
MRI Brain reveals hydrocephalus 1 month after an auto accident & concussion.

Earlier in 1980, I had been diagnosed with an unspecified neuromuscular disorder that had been causing me considerable pain and weakness in my legs and back, that I had been battling since my early teens. With a poor prognosis not offering much hope, I delved into the healing arts which proved to provide a great deal of relief. It even led to skills as a medical intuitive, corroborated in my clinical imaging work. This Healing Arts Blog documents these unusual 1981 healing experiences. I had a remarkable remission of this neuro-muscular disorder and managed it quite well until about 2009, when I began to develop unexplained hematuria/kidney failure with urine pictured below when I undertook rigorous exercise and hand drumming.

Photo of very dark urine containing blood & proteins following hand drumming.
Photo of very dark urine containing blood & proteins following hand drumming.

By 2012 these bouts had significantly worsened and were occuring at lesser levels of exercise and drumming. I would load up (hydrate) with water and Gatorade before, during, and after drumming and physical activities. But as you can see in the photo, sometimes I couldn’t overcome the effects of this disorder with hydration. On two occassions, I was hospitalized. On perhaps 12 or 15 others, I self treated at home with fluids, urine measurements, and photos like you see above for my records. Today, these complaints are thought connected to my pachy meningitis and Hashimoto’s thyroiditis via an anto-immune or metabolic disorder.

Dura Enhancement = Pachy Meningitis

In February 2015, a CSF culture was done and revealed marked abnormalities in WBCs suggestive of inflammation, but not for infection (SEE JPEG report further below). My neurosurgeon felt it represented chronic shunt overdrainage and intracranial hypotension. But neither my clinical history, nor above-sized ventricles on my brain scans, coincided with chronic overdrainage as reported in the medical literature.

My case study then seemingly began to surround these findings of diffuse dura enhancement – suggestive of either chronic non-infectious meningitis or chronic overdrainage syndrome. I began to do considerable online research to explain the dura inflammation and increasing pain, cramping, and fatigue.

Then in June 2015, a one month planned trial of Prednisone serendipitously helped to shape an explanation for the dura inflammation. This 13-day trial (10mg/day week 1; 5mg/day week 2), led to my ventricles draining out with my Certas CNS shunt valve set at “2,” where it had been for the past 3 years. The “2” setting is the 2nd lowest of 7 settings. I immediately discontinued the Prednisone, and my Certas valve was raised up to “3,” where previously it had caused me headaches and cognitive difficulty. Since about 2012, my ICP had also become lower. In Feb. 2015, it was measured to be “1” cm H2O.

In October 2015, the dura inflammation was formally diagnosed as pachy meningitis. Methotrexate and Azithioprine were then separately given, but led to a hospital admission in January 2016 of sepsis and atrial fib associated with my kidneys. This led to an order for a muscle biopsy, and I was instructed to stay off Prednisone and similar drugs until after the biopsy. However, my only substantive relief so far has been Prednisone. And I went back on a low dose in the interim until the biopsy is scheduled.

Where’s the mHealth?

On February 12, 2016 – my health plan added to the confusion when they issued an authorization for my muscle biopsy with a 14 day window. But I have to be off Prednisone for 4-6 weeks. And I’m concerned about the recovery time from a deep cut into my right thigh while having balance difficulties and muscle cramping. Where’s the mHealth? Here’s one on my blogs on Design & Best Use of mHealth Apps.

In light of my considerable efforts since 1992, many have suggested I write a book. More recently, others suggested I become a TED Speaker. I’ve also been very innovative with drums and rhythms for health and brain enhancement. In fact, it was drumming that helped me overcome many of my challenges with hydrocephalus.

My Medical Experience

Since about 1998, I have been providing global online information on hydrocephalus and CNS shunt devices, initially as an FDA patient advocate, then as an mHealth inventer turned medical device consultant. In 1997, I designed & patented an mHealth app for hydrocephalus, the DiaCeph Test, that would run on a PDA. But I could never get funding or get past costly FDA regulatory hurdles to bring it to market. Prior to my 1992 auto accident, I spent 17 years as a nuclear medicine technologist where I owned my own company, Certified Nuclear Imaging, from 1982 to 1992. I had also provided instrument feasibility and regulatory affairs consulting.

Feb. 13, 2016 UPDATE

This update includes an Oct. 2015 diagnosis of pachy meningitis by my neurologist based on diffuse dura inflammation in my Feb. 2015 MRI with Gadolinium, my dramatic response to prednisone in June 2015, my CSF culture, and cranial nerve palsies.

My progress in global pain, cramping, fatigue, and cranial nerve palsies continued into October 2015. In November, my neurologist suggested I take methotrexate. Prednisone was doubled to 5 mg 3x per week. I soon suspected I has having intracranial hypertension per increasing headache. This was reported with methotrexate in the literature.

A repeat brain scan with Gadolinium was done Dec. 23, 2015 and revealed the dura inflammation to be improved and only remaining in spots. But there was evidence of increased ventriculomegaly beyond my Feb. 2015 baseline brain scan. The increase was thought possibly due to methotrexate and Certas valve at the higher “3” setting since June 2015. I was somehow tolerating the larger ventricles perhaps due to the immune suppressent meds. There was also quite a dramatic difference in ventricle size between the Dec. 2015 and June 2015 scans.

In further review of my brain scans on Dec. 28, 2015, dura inflammation can be seen on an earlier Feb. 2012 MRI with gadolinium, but was never reported. At that time, my only confirmed test results for an autoimmune disorder were for Hashimotos Thyroiditis. There had also not been any detailed CSF culture. Knowing of the dura inflammation then would have dramatically altered the course of my testing and treatment.

Trans Axial T2 Flair OPTIMARK0021

Flair axial images0015

Trans axial flair 2.18.150020

Trans Ax 3DT1 2.14.120057

With evidence of new ventriculomegaly in my above Dec. 23, 2015 scan, methotrexate was discontinued and I was placed on azithioprine (50/100/150 mg). But in week 3, I began to experience chills and night sweats and presented myself to the emergency room, where it was discovered I had a sepsis coming from my kidneys. I spent two days in the hospital where my immuno suppressant drugs were discontinued. In follow up visits, my neurologist discussed the possibility of a mitochondrial disorder, and that it too would produce a dramatic CNS response with prednisone. So a muscle biopsy was proposed and is now being scheduled.

I frustrated and concerned with the number of mistakes in my care. I am told I need to be off all immuno suppresant drugs (i.e. prednisone) for at least 4-6 weeks before the muscle biopsy. But with so much pain and fatigue, I went back on low dose prednisone until a firm muscle biopsy date is set. I would also like to explore relief thru alternative medicine as I had excellent result in past years. I’ve written these blogs on Complimentary Medicine & Addiction and Nootropic Vitamins for the Brain.

Sept. 9, 2015 UPDATE

Without support from a rheumatologist or my neurosurgeon, I contacted a neurologist in India who published a paper on chronic overdrainage syndrome, and a neurologist in Philadelphia who authored a paper on chronic meningitis. Neither would comment.<

The medical literature on dura inflammation and chronic meningitis recommended oral corticosteroids, which included prednisone. I spoke again to the prednisone manufacturer who reiterated my dramatic response to prednisone was likely an anti-inflammatory mechanism. With that in hand, I discussed with my internist about trying a low dose of prednisone in an effort to try and manage my pain and fatigue levels. We agreed on 2.5 mg every other day and I started on it on Aug. 7th, 2015.

After 6 weeks on this regimen, I saw a 10-25% reduction in muscle pain & fatigue, cognitive challenges, and cranial nerve palsies (esp. swallowing difficulties). My Certas valve remained at a setting of 3, where 6 months earlier it produced cognitive difficulty. With the prednisone, I overall appeared to be doing better. One of my best gauges for optimal shunt setting is how I feel the instant I awake in the a.m.. I also factor in my daytime cognitive and productivity levels, which after 6 weeks on prednisone, were improving. I kept some notes of this in my phone.

Discussion of Dura Enhancement in my Feb. 18, 2015 Brain Scan

Dura enhancement was identified in my Feb. 18, 2015 MRI w/ contrast study. It can represent infection, inflammation, CSF leak or shunt overdrainage, malignancy, or meningitis. And meningitis covers a broad spectrum of disorders, from infectious meningitis, to non infectious or aseptic meningitis, that includes Lyme disease and autoimmune disorders. Further below, I include links to web sites of medical documentation on this.

Shunt infection was ruled out in February 2015 via CSF culture. As I have a CNS shunt for hydrocephalus, dura enhancement can also represent shunt overdrainage or intracranial hypotension (ICH). But in these cases (referenced further below), the ventricles become “collapsed.” By contrast, my ventricles have been above normal size since 2011, except for the 13-day prednisone trial and collapse of my ventricles in June 2015 – which was after the dura inflammation was discovered. The June 2015 MRI finding would indicate either an inflammatory process or non-infectious or chronic meningitis. Chronic meningitis could also cause my ICP to become low. In Feb. 2015, it was determined to be “1 cm” or 10 mm. My Certas valve has been at the “2” setting since March 2013, while my ventricles have been gradually enlarging. There is no evidence of shunt obstruction.

Overview of Meningitis at Merck Manuals

Adult Meningitis at Emedicine

 A number of non-infectious or aseptic menigitis disorders can cause low ICP and  dura inflammation. I have also undergone 12 revisions, and in Feb. 2012 developed an abdominal rash or fungal infection following endoscopy for that complete revision. My February 2015 CSF culture also reveals an abnormal WBC count. SEE these slides below.

A one month trial of Prednisone was initiated on June 11, 2015, for pain management and stopped early due to headache and abnormal MRI: 10mg/day week 1; 5mg /day week. In terms of pain reduction, prednisone provided a lot of relief. But, I developed low pressure headaches on day 13, and an urgent MRI brain scan revealed that my ventricles had drained out and nearly collapsed. While trying to ascertain this dramatic effect on my CNS system, I spoke to the manufacturer twice, discussed it with physicians, and undertook a considerable amount of online research.

It does not appear that Prednisone measurably alters CSF production or clearance to the degree to collapse my ventricles in 13 days. The more plausable explanation is that prednisone is an excellent anti-inflammatory agent, and my inflammed dura was a ripe target. This vastly improved my CSF clearance which resulted in my ventricles draining out with my Certas valve set at “2.” An alternate theory is that a metabolic disorder is causing the dura inflammation with a similar response to the Prednisone. Now I’m faced with the challenge of selecting the right setting for my Certas valve, not knowing how long, or significant, the effects of the Prednisone might last. My Certas valve was raised from a setting of “2” up to “3” for now. Additional information on Prednisone can be found below.

July 9, 2015 UPDATE:
Prednisone by Cadista 10mg

The decrease in the size of my ventricles on my 6.24.15 MRI brain after just 13 days of Prednisone (10 mg first 7 days, 5 mg next 6 days) was dramatic. What is unclear, however, are the factors which contributed to this dramatic reduction, and the identification of a possible systemic inflammatory process. Below, my two MRIs reveal a dramatic change in size after only 13 days of prednisone. SEE more MRI images further below.

Seeking user data on the Effects of Prednisone on CSF Production & Clearance in Shunted Hydrocephalus
Seeking user data on the Effects of Prednisone on CSF Production & Clearance in Shunted Hydrocephalus

Cadista’s labeling states prednisone can raise intracranial pressure (ICP). But would it cause more CSF outflow and reduce the size of my ventricles? After speaking to them twice now, it appears this mechanical action on CSF is minimal. If it were more an issue, I think we’d see more published on this in the hydrocephalus population.

My reduction in ventricular size could have been furthered by an inadvertent change in the setting of my Codman Certas valve. However, I have no cause to think it did. It was learned on June 25, 2015, the day after my MRI, that my Certas valve was at the lowest “1” setting, from a “2” setting on February 26, 2015. The setting was not checked before my June 25th MRI. So, it is possible the inadvertent change occurred in the interim months and contributed to the reduction in ventricular size. But I have no data to suspect it!

I think the more likely explanation is reduction of inflammation in “aseptic meningitis,” that can include fungal infections & auto-immune disorders, and may be related to my Dec. 2011 onset of Hashimoto’s thyroiditis, and more recent cranial nerve complaints. But there are many types of aseptic or chronic meningitis.

The next two links are manufacturer required labeling and warnings information. It is vague as to any effect in raising ICP. Prednisone has been in use since about 1950, and falls under the earlier limited regulatory framework.

This next link is to an abstract on a study which reported how prednisone significantly lowered the production of CSF fluid in rabbits:

And the next link is to the FDA’s drug safety site, which does not provide any information.

There has to be “hundreds” of patients with hydrocephalus who have taken prednisone over the years. Where is this data? This is what mHealth and data sharing can solve.

13 Day Trial/Event with Prednisone: (3) Preventable Failures

I offer the following critique since I have encountered so many failures in my care of the last 23 years. This is about preventable failures.

First, there should be more user information on prednisone with respect to CSF clearance in hydrocephalus. Apparently, it falls under older FDA guidance. Still manufacturers must act responsibly to provide information on the “health science of the times.”

Second, Codman released its Certas valve as MRI-safe. But from its subsequent recall and discovery of 0.6 percent suffering unintended reprogrammaing, it renders the Certas valve as “mislabeled.” And had I known this in 2012, I never would have selected for my Nov. 2012 revision. I would have selected the Miethke Gav valve. The Certas valve also “could” have contributed to the collapse of my ventricles in this Prednisone trial, if the setting were tripped earlier by some unknown magnetic field. In consideration, I would advocate suspect Certas valves be checked both BEFORE and AFTER an MRI – to rule out other interference sources of unintended reprogramming.

Third, Congress, the FDA, and the medical devices industry must act in good faith on the health sciences information of the times and modernize mHealth policy to allow for innovations in technology to help avert adverse prednisone and CNS shunt events. It seems quite clear that my experiences and poor outcomes would have been helped by better innovation, better data sharing, and more responsive FDA oversight.

I shared my user experience with the manufacturer of the prednisone, Prosar Corporation. I believe the addition of new mHealth information would greatly improve the efficacy and safety of this powerful, yet effective drug. The slide below lists some of its common adverse effects.

Prednisone Adverse Effects
Prednisone Adverse Effects

One additional step that may have been helpful in assessing the anti-inflammatory effects of prednisone, would have been to obtain an MRI with contrast – to compare to the earlier February 2015 MRI with contrast scan. From research and discussions with the manufacturer, I am learning my ventricular reduction was the prednisone retarding action on CNS dura inflammation, rather than any normal mechanical action on CSF. Next, I would like to rule out chronic overdrainage as a cause of my dura inflammation, and pose this Question:

Would there not be a different anti-inflammatory response of prednisone on inflammed dura in rapidly reducing ventricular size on MRI – in aseptic meningitis versus chronic intracranial hypotension or ICH? Wouldn’t there be a distinction? Which one also has more associated cranial nerve palsies? Which syndrome would you expect a more dramatic reduction on MRI? Answering these questions will help determine its etiology! Below, I provide two new studies on Intracranial Hypotension or ICH, and I offer additional studies in the section Medical Reference Studies on Dura Enhancement later in this blog. I do not feel (as my nsg does) that I have ICH. I feel my increasing global pain, muscle spasms, cranial nerve palsies, and low ICP are due to an aseptic meningitis.

Acquired Hindbrain Herniation and Intracranial Hypotension After Intracranial Cysto-Atrial Shunt Placement: A Case Report

Intracranial hypotension due to shunt overdrainage presenting as reversible dorsal midbrain syndrome

I can only speculate on how long the effect of the prednisone will last in retarding CNS inflammation, and in the best setting for my Certas valve. An mHealth or telesensor app for hydrocephalus would be helpful for logging this data. And a more definitive diagnosis would be helpful too. I used my earlier DiaCeph mhealth methods in determining that my ventricles had drained out, as documentation for ordering an urgent MRI.

Certas Valve Illustration
Certas Valve Illustration

My Certas valve was raised to “3” to counter any lasting effects of the prednisone. There has been discussion of raising it to “4.” But my experiences at these higher settings have proven to cause ventriculomegaly and cognitive difficulties. My neurosurgeon suggested I could revise my Certas valve to a more stable valve. But, I feel these other questions must be answerred first. I continue to search for answers, for more details on my case study, and complaints. Knowledge should be a good thing!

May 26, 2015 UPDATE

I have enclosed my February 2015 CSF fluid culture report below which reveals changes in my white cell count. These findings might indicate a non-infectious or aseptic meningitis. But there are quite a few aseptic and auto immune disorders matching my CSF culture & dura enhancement results.  I’ve undergone 12 shunt revisions. But in my February 2012 complete revision, I developed an odd abdominal rash or possible fungal infection from the endoscopy portion of the abdominal fenestrations.  This is seen in the photo below.

Image showing abdominal fungal infection following endoscopy for complete VP shunt revision
Image showing abdominal fungal infection following endoscopy for complete VP shunt revision

Could above Feb. 2012 rash have migrated onto the peritoneal catheter and into my CNS system – causing the dura inflammtion and low ICP?

At this juncture, my neurologist was split between a diagnosis of chronic overdrainage syndrome and aseptic meningitis. But my neurosurgeon it was chronic overdrainage. I felt it is aseptic meningitis. So my primary care doctor has ordered TB and Lyme disease tests, which were negative, and placed me on a trial of prednisone, which caused the CSF to overdrain thru my shunt and nearly collapse my ventricles – indicative of an inflammatory syndrome. Given all of the possibilities, I feel it critical to rule out chronic overdrainage and fungal infection from the prednisone trial results discussed above.

Abnormal CSF Culture in Patient with Hydrocephalus and AutoImmune Myositis Complaints
Abnormal CSF Culture in Patient with Hydrocephalus and AutoImmune Myositis Complaints

I had been taking the prescription medication patch Exelon for nearly 8 weeks, and showed obvious improvement in cognitive function. But my health plan does not cover off-label use. Exelon was FDA approved only for memory problems related to Alzheimers Disease and Parkinsons Disease. So it’s use in hydrocephalus is “off-label.” Today 20% of all prescriptions are off-label. Below, is a photo of my last Exelon patch, which I think exemplifies our country’s senseless rationing of medicine and innovation.

Exelon Patch is FDA approved for memory impairment in Alzheimer's and Parkinson's Disease, but not for Hydrocephalus
Exelon Patch is FDA approved for memory impairment in Alzheimer’s and Parkinson’s Disease, but not for Hydrocephalus

April 20, 2015 UPDATE

Exome Sequence (genetic) testing came back negative for neuromuscular disorder. But the results did not include incidental findings – and might possibly miss a related disorder if their keywords are not inclusive enough. The focus has shifted back to rheumatology and the significance of the “dura enhancement” on my Feb. 18, 2015 scan below, where I’ve learned it can represent several types of aseptic or chronic meningitis.

My Feb. 23, 2015, CSF culture also identified several abnormal WBC levels that may coincide with dura inflammation. I obtained the full report by going online at the new mHealth platform of Quest Diagnostics, but was only able to obtain my most recent lab report without having to pay a $9 fee for earlier reports.

Dura enhancement on MRI can signal infection, inflammation, CSF leak, shunt overdrainage in hydrocephalus, malignancy, or autoimmune disorder.
Dura enhancement on MRI can signal infection, inflammation, CSF leak, shunt overdrainage in hydrocephalus, malignancy, or autoimmune disorder.

My muscle cramping and fatigue complaints had been reported to my primary care doctor since 2009. And in 2015 I still have no answers. Clearly, new mHealth apps and changes in FDA regulations are needed in further today’s diagnostics and treatments. Below, I share more details on my experiences as a patient, patient advocate, and mHealth inventor.

Displaying some staples for those who like piercings.
Displaying some staples for those who like piercings.

Medical History

Since 1992, I’ve undergone 12 brain shunt revisions and numerous shunt malfunctions for hydrocephalus (1992 auto accident). That had been my primary health challenge until about 2012, when my shunt failed again, where I really felt fatigued and out of sorts, and was also diagnosed with Hashimoto’s thyroiditis. During that time, I began returning to bed in the middle of the day. My neuromuscular complaints of 35 years had been mild and managed well until 2011. And by Jan. 2012, I began to deteriorate and suffer more debilitating cramping, stiffness, and muscle pain, and bouts of hematuria, all of which then began occurring at lower thresholds of physical activity.

As Salvatore Iaconesi did in 2011, I put my case study online hoping for an open source medical cure. I prepared my brain scan images and case information as I have so often in my hydrocephalus consults (I provide global information on hydrocephalus). Prior to my 1992 injury, I spent 17 years as a nuclear medicine technologist, 10 of those years with my own company. Below, I also share details of my patient advocacy and public policy efforts, and my 17 year struggle to bring mHealth solutions to the care and treatment of hydrocephalus. I also put on drumming and drum circle events. I feel the availability of mHealth applications, such as my earlier DiaCeph Test for Hydrocephalus, would make a significant contribution to medical care and outcomes. Below, are my February 2015 brain scan images.

MRI brain scan shows significant dura enhancement with mild ventricular enlargement in this patient with hydrocephalus
MRI brain scan shows significant dura enhancement with mild ventricular enlargement in this patient with hydrocephalus
MRI brain scan shows significant dura enhancement in this patient with hydrocephalus
MRI brain scan shows significant dura enhancement in this patient with hydrocephalus

My Feb. 2015 MRI brain scan with contrast identifies “increased dura enhancement” diffusely spread over my brain and ventricular capsule. Dura enhancement can be caused by infection, inflammation, shunt overdrainage or CSF leak, aseptic meningitis, or auto immune disorder. In the past month, I’ve been undergoing further testing to try and determine the cause. A CSF culture was done to rule out infection, though it showed an abnormal white cell count. I presented myself to the emergency room hoping for new testing, and for radiology to review the above MRI scan and amend their report with additional findings. The dura enhancement MRI finding stands as “indeterminate.”

In my present case study, I seek expert input from neurologists, neurosurgeons, and neuro-radiologists that may lead to a diagnosis and treatment of my complaints. I was  inspired by the story of the Italian artist and TEDx speaker, Salvatore Iaconesi, who put his medical case online, and it led to an open source cure of his cancer!

DiaCeph Test monitoring helps find the correct pressure setting for the Codman Certas valve in this hydrocephalus case study
DiaCeph Test monitoring helps find the correct pressure setting for the Codman Certas valve in this hydrocephalus case study

Experiences with the Codman Certas CNS Shunt Valve

My Nov. 2012 shunt revision to the Codman Certas valve was eventually optimized when the valve was set at 2, where it took 6 months of trial and error at different settings. My 2012 brain image above with still large ventricles was one month after surgery. My ventricular size and complaint reduction was achieved in part through monitoring with my DiaCeph Test paper forms and charts, and in email conversations and office visits with my neurosurgeon. This process would be much easier and more reliable (and cost effective) if there were an mHealth mobile phone or text app. It could be used worldwide.

History of Neuromuscular Disorder

This photo display depicts a several year gradual onset of drooping of the left side of the face.
This photo display depicts a several year gradual onset of drooping of the left side of the face.

On Oct. 13, 2016 I added the above 4-image childhood photo display showing drooping of the left side of my mouth, and perhaps left eye by age 16. My mouth drooping to the left has been pointed out repeated in recent years. So I sorted thru childhood photos to document when this began. According to the above photos, it was a “gradual onset” of facial palsy between ages 8-12. During those years, I was knocked unconscious for 5-10 minutes, suffered 2 different mouse bites, and a minor neck injury from sled-riding into a tree that I recall. I recall slowly developing physical limitations where I went from being the fastest and one of the toughest kids my age, to having a lot of difficulty running and playing sports.

At age 16, I suffered fainting episodes and was found to be very anemic, had onset of IBF (irritable bowel), and onset of sciatica in both legs. Visits to my family doctor during those years were unproductive. At age 20, I was advised to undergo reconstruction surgery of both knees by Dr. Noise, who was the Cincinnati Bengals head orthopedic surgeon and head of the Cincinnati General Hospital knee clinic. I never got the surgery. And later in California in 1980 at age 25, I was informed I had a peripheral neuropathy – per results of a muscle & nerve biopsy, and advised to get a desk job and discontinue sports.

In 1980, my neuromuscular complaints were primarily confined to my back and lower legs, which I learned to manage with exercise, nutrition, healing arts, and meditation, despite a bleak picture from my neurologist at that time. It is a long story, but eventually my personal health practices allowed me to overcome this ailment, and in 1981 led to overcoming most all of the disabling complaints and new healing and medical intuitive abilities detailed in this healing blog. For the next 11 years, I continued my health regimens up until my 1992 accident and onset of hydrocephalus. And after a couple years, was able to re-establish some level of routine to keep these complaints under control. In the photo below, I am age 34 and playing in a coach’s softball game with my son’s little league baseball. As you can see, I had become quite fit and muscularly developed despite the earlier 1981 diagnose – a surprise to all of my doctors. However, I faced continued episodes of IBF, anemia, and occasional bouts of (bilateral) sciatica.

In 1996, I learned some of my back pain was due to misaligned cranial faults per a very astute chiropractor. It was usually my left parietal cranial fault causing the back pain. In the years that followed, I learned to diagnose and adjust my cranial faults myself. In late 2012, cranial testing showed my entire head abnormal! I learned in 2015 I had pachymeningitis. To this day (Oct. 2016), it seems my global pain and cramping are related to my head, as I seem to get a little relief after adjusting my cranial bones.

Stephen Doole at the plate in coach's softball game for Tustin Western Little League
Stephen Dolle serves it up at the plate in this coach’s softball game with Tustin Western Little League

It is unclear whether my present neuromuscular complaints are due to this earlier neuropathy, or to a new disorder. But it would seem related to neuromuscular complaints that date back to childhood. The global cramping, pain, and stiffness has worsened to the point that it compromises my daily activities. And cramping and post exercise hematuria now occurs at a lower threshold of exercise than 3-5 years ago. Since 2009, on at least two occasions, I have gone into kidney failure. And, on 15 or so other ocassions, I developed hematuria after hand drumming and treated myself at home with forced hydration.

Rhabdomyolysis vs. Metabolic vs. AutoImmune Disorder

I was initially diagnosed as suffering from rhabdomyolysis following 3-4 hours of heavy hand drumming on a hot evening that led to 25% renal function and hospitalization in Sept. 2009. I’ve had to scale back my drumming and other physicial activities since. And the cramping, pain, and stiffneess has become more problematic, that I simply am not able to do the level of physical activities I had done for many years. I also have new vestibular complaints thought due to right middle ear dysfunction, which can be auto-immune or cranial nerve. I feel this is related to the dura enhancement, hydrocephalus, and aseptic meningitis. The WBC findings in my Feb. 23, 2015, CSF culture would seem to support this as well.

Below is a published study on rust colored urine and hematuria following prolonged periods of hand drumming. However, this is reported during drumming over a period of many hours and days. Here’s the link:

Rust Colored Urine after Intense Hand Drumming

Clin J Am Soc Nephrol 3: 1022–1027, 2008

doi: 10.2215/CJN.04491007

As I have been helping others around the world with specialized information on hydrocephalus and CNS shunts, I am hopeful there is a scientist or physician out there who can explain my medical findings. The Power of the Internet: an open source cure!

Normal sized ventricles after shunting with the Codman Certas valve optimized by DiaCeph Test monitoring in this case study
Normal sized ventricles after shunting with the Codman Certas valve optimized by DiaCeph Test monitoring in this case study
MRI with Contrast reveals slight ventricular enlargement in this patient shunted for Hydrocephalus
MRI with Contrast reveals slight ventricular enlargement in this patient shunted for Hydrocephalus

Analysis of CT & MRI Brain Images

This Feb. 18, 2015, MRI brain scan image above reveals slightly enlarged ventricles when compared to the Aug. 2014 and Aug. 2013 scans. But, there is no comparison MRI with contrast to compare to the Feb. 2015 “dura enhancement.” MRI with contrast is not normally done in the routine follow-up of hydrocephalus. There is a limited MRI with contrast done on Feb. 12, 2012, during that month’s hospitalization and shunt revision. But the images are T1 images, and the 2015 study is the standard T2 Flair images of the dura. So it’s unclear whether the 2012 study is appropriate for comparison. Regretably, I could not get the radiologist to review, compare, and comment further on these studies. I’ve inserted these 2012 MRI with contrast images below.

Selecting the correct CNS shunt valve and pressure setting in hydrocephalus requires detailed analysis
Selecting the correct CNS shunt valve and pressure setting in hydrocephalus requires detailed analysis
Selecting the correct CNS shunt valve and pressure setting in hydrocephalus requires careful monitoring
Selecting the correct CNS shunt valve and pressure setting in hydrocephalus requires careful monitoring

My June, 11, 2010, brain scan image below was after revision to the brand new Low Pro Orbis Sigma II valve in Feb. 2010, which apparently had a specification problem. This Low Pro valve then drained my ventricles out in 4 months. And 2 weeks later, my shunt system obstructed and I began vomiting, and was again admitted to the hospital. Having experienced overdrainage, low intracranial pressure (ICP), and tiny ventricles several times before, I know what it feels like. I do not suspect overdrainage as the cause of my current MRI dura enhancement and complaints. But, I’d appreciate your feedback.

The ventricles nearly collapsed due to specification problem with the Integra Low Pro Orbison Sigma II valve.
The ventricles nearly collapsed after the Miethke Pro Gav was lowered down to 1 in this 2011 patient.

Medical Reference Studies on Dura Enhancement

Medical studies report that “increased dura enhancement” is associated with a number of medical sequel, including, low intracranial pressure, infection, aseptic meningitis due to the side effects of certain drugs, and auto immune syndromes and brain metastases.

Below, is a very comprehensive 2007 study of dura enhancement:

Patterns of Contrast Enhancement in the Brain and Meninges
-see the EXTRAAXIAL ENHANCEMENT near top of the page

This next study on Medscape offers a concise overview of dura enhancement and its causes, but you must have a Medscape member login. It entifies MRIs of low intracranial pressure, and the (5) criteria typically seen to support the diagnosis:

– Diffuse thickening of the pachymeninges with enhancement,

– Engorgement of dural venous sinuses.

– Enlargement of the pituitary.

– Subdural effusion / hematoma.

– Sagging brain stem

And yet another lengthy study on dura enhancement:

Pressure selections with the Codman Certas valve
Pressure selections with the Codman Certas valve

Certas Valve Opening Valve Pressure Discussion

With respect to infection as a possible cause of my dura enhancement, a CSF culture was obtained and this was ruled out. However, during the shunt tap, my neurosurgeon commented that my ICP was low, about “1” in the supine posture, and lower than in past years. It gave him pause to consider raising the setting on my Certas programmable valve. But in my opposition to this, I shared how my headaches, cognitive complaints, and balance were “worse” when the setting was higher and my ventricles larger. It took quite a bit of trial and error shunt monitoring and trial settings with the Certas valve over 2 and 1/2 years to find that a setting of “2” was most optimal for me. In addition, it is perplexing how my ventricles have become larger in the past 2 years with the same Certas valve setting of “2,” and no evidence of shunt obstruction. This finding would also be present during infection or inflammatory processes. But what?

My Aug. 1, 2013, MRI reveals my smallest ventricles since the Nov. 2012 revision to the Certas valve. I agree there is some extracranial CSF outside the brain, but it also occurred in my 2008 scan when I felt great, and in my 2010 and 2011 scans when the shunts overdrained to tiny ventricles, though I didn’t feel horible as I do now. Unfortunately, we don’t have MRIs with contrast studies from those studies. So there’s no way comparing dura enhancement. But, the Feb. 2012 MRI study is post contrast, and could be used for comparison. But the radiologist did not review it for comparison.

Aug. 2013 is also the smallest ventricles I have had since my 2012 revision, and earlier Miethke Pro Gav valve in 2011 where my ventricles became tiny when the valve was turned down to 1 (similar to the 2010 Orbis Sigma valve image). During instances of overdraining, I usually knew it from my complaints. I was also able to verify it with monitoring from my DiaCeph Test. I did not find evidence of overdrainage with my present Certas valve setting of 2, either by my complaints, or DiaCeph monitoring.

About a year after my Aug. 2013 brain scan, I began to experience increased pressure complaints, and a visit to my neurosurgeon’s office revealed that my Certas valve had lost its setting and changed from 2 up to 3, most likely from a Nov. 2014 MRI brain scan (I did not have the setting checked after this MRI). Even though the valve was set back to 2, my ventricles today are incrementally larger than 2013, and my last scan in Nov. 2014, which I feel suggests an aseptic CSF space syndrome or inflammation. And now the Feb. 23, 2015, CSF culture seems to confirm this. But specifically what syndrome?

My brain scan image below reveals very large ventricles one month after an auto accident and initial diagnosis of hydrocephalus in 1992. I was 37 at the time.

Initial 1992 MRI Brain Scan for Hydrocephalus and Ventricular Enlargement
Initial 1992 MRI Brain Scan for Hydrocephalus and Ventricular Enlargement

My Global Outreach, Patient Advocacy, and mHealth for Hydrocephalus

As I shared earlier, I’ve been providing online information and support for the disorder, hydrocephalus, since about 1995. In 1996, as an affected user and patient advocate, I petitioned the U.S. Food and Drug Administration on unreported problems with Medtronic and Heyer-Schulte anti-siphon CNS shunts that dated back more than 10 years at that time. The following year, I designed and patented the DiaCeph mHealth monitoring method for monitoring of shunt malfunction in hydrocephalus. For DiaCeph, I created a weighted scoring method of clinical (complaint) markers that were specific to hydrocephalus and shunt performance.

When properly analyzed, DiaCeph data can give an accurate assessment of shunt performance and shunt malfunction. DiaCeph was also created in response to the false negative test findings associated with malpositioned (malfunctioning) Delta valves and anti-siphon devices. But eighteen years later, DiaCeph still remains on the shelf while the treatment of hydrocephalus and the lives of some two million Americans rests with 25 year old technology solutions. FDA and Congress have failed to allow new social networking and mHealth advances to go through, which would allow earlier reporting and intervention on problem medical devices.

My Original DiaCeph Test Markers (Parameters)

This slide shows the DiaCeph Test app's weighted clinical markers for shunt malfunctions and performance.
This slide shows the DiaCeph Test app’s weighted clinical markers for shunt malfunctions and performance.

The diagnostic difficulties and false negative findings with anti-siphon shunts were also at the center of my 1996 petition to the U.S. Food and Drug Administration (FDA).

I suspected my poor outcome was being caused by my Delta anti-siphon shunt, and I spent more than a year researching and writing the FDA petition, and another year on the DiaCeph mHealth solution – all in an effort to get corrective medical care and proper outcome. But, I was denied this for nearly 5 years.

The unusual shunt malfunctions identified in my petition were termed “functional obstructions” by Dr. Higashi et. al. who published the critical scientific paper on the topic in 1996. Higashi described how it occured with Medtronic and Heyer Schulte anti-siphon shunt systems. I had two Medtronic Delta anti-siphon shunts between 1992 and 1998, and eventually I was able to show my DiaCeph Test that my Delta valve was operating as a higher pressure valve than its specifications stated. I also referenced hidden manufacturer pressure flow charts on the devices.

In the 3-year period it took to author the FDA petition, design the DiaCeph Test, and advocate for the 1999 STAMP Conference, I became thoroughly familiar with anti-siphon shunts, shunt malfunctions and diagnostics, FDA codes & regulations, mHealth technology that didn’t yet exist, and hydrocephalus advocacy – where I had to learn where my efforts were being opposed, and who was behind it. Even the FDA!

Studies indicated anti-siphon shunt problems were affecting about 2 out out of every 5 users. In examining how many of the shunts were sold between the mid-1980s and as late as 2007, I estimated the device failures affected 5,000-10,000 patients per year, or well over 100,000 patients over this period. These oversights and subsequent FDA failures, in my view, then paved the way for more device failures with programmable shunts, and at least two other CNS shunt devices. And there were specific individuals and organizations particularly involved in hiding these failures. My FDA petition (23 pages total) link below is to a PDF file on my web site, and also as a window on

 1996 Petition to FDA on Anti-Siphon Shunts w/ 1998 Ruling

Why do I bring these experiences up? Because I feel neither the medical field, nor FDA, or any other group, properly addressed the issues that led to the earlier anti-siphon device failures. It took some 10 years for the FDA’s 1998 Ruling on my anti-siphon devices petition to become accepted science in the field. I believe the same poor QA (quality assurance) and FDA oversight that allowed these anti-siphon device problems to continue, led to problems with programmable shunts, an overall lack of progress with CNS shunts, and new chronic health problems in the hydrocephalus population today.

Hydrocephalus Care in U.S. compromised by Politics

1) Widespread failures with CNS shunts leading to a high incidence of surgical revisions, overuse of CT x-rays, and too many unexplained complications, physicians have come to accept poor outcomes in the treatment of hydrocephalus. As a patient advocate and inventor, I argue the problems are not in the patients, and not really with the shunt valves, rather, shunt valves with problems mfrs cover up! It leads to a lot of unnecessary confusion in care, and political views of poor outcomes rather than medical results; and

2) My managed care plan encourages physicians and facilities to cut and block care, and such practices are accepted as a part of the political practice of medicine. Similarly, in cases of widespread shunt device failures, physicians are discouraged in reporting these to FDA. And I believe if either I worked for the U.S. government, or an organization on the Obamacare exempt list, I would have a better plan and I might have a diagnosis and some treatment by now.

I have not included SS#, DOB, and other priviledged information – as are so often included and breached on medical sites today. I’ve just my health care!

I want readers to understand what I’ve been through in 23 years: 45 CT brain scans (and radiation exposure) and another 20 MRI scans, 12 shunt revisions (many of these surgeries were preventable), and the ill-effects of 75-100 shunt malfunctions.

Still – my story is nothing out of the ordinary. Some patients have had as many as 100 to 200 shunt revisions – and many CT scans, related radiation, and long term health problems due to device failures and poor FDA oversight.

Here are some of my more recent efforts to address problems in the care of hydrocephalus. In 2002, FDA had introduced new Post Market Surveillance for problem medical devices. I wrote to them with the required supporting guidance and asked them to apply this new guidance to CNS shunts. But, FDA denied my request as can be read in their letter below. Since then, there’s been a widespread increase in CNS shunt failures, which I believe is a direct result of FDA’s poor post market surveillance:

Stephen Dolle’s 2002 Request to FDA to include CNS shunts in New Post Market Surveillance

FDA’s David L. Daly’s Letter of Denial to include CNS Shunts in new 2002 Post Market Surveillance

My experiences in living with hydrocephalus, have often left me helpless and feeling more like a “prisoner” than a patient.

All this helped me to put my medical case study online. I also host two (2) case hydrocephalus studies from my global efforts on hydrocephalus. Two high profile neurosurgeons with close ties to the Hydrocephalus Association oddly took issue with my involvement and reports, and refused to read them, all while they routinely allow manufacturer’s representatives in surgery with their patients to advise on CNS shunt implantation. Plus, I take issue with neurosurgeons, who become aware of problems with CNS shunts, but do NOT report to FDA!

I have complained about manufacturers not reporting problems with CNS shunt devices to FDA, and the presence of reps in patient surgeries, then provides additional opportunities to “mislead” user surgeons on issues with their devices.

My involvement, monitoring, and reports, then helps offset any mis-information and confusion by device manufacturers, and provides important diagnostic data on CNS shunt performance and shunt malfunctions. I think the patient and family should decide whether my role is needed. And if so, their physician had better read my reports.

Hydrocephalus Consults explore mHealth & MRI Display Advances

In the first report, I created an algorithm to analyze the patient’s brain scans for signs of brain atrophy vs likely responsiveness to shunting. In the second report, I had the patient fill out paper forms with instructions that provided non invasive data on his condition and shunt performance. An mHealth app, if it were available, would accrue and direct the collection of this data, and help physicians in earlier and more accurate diagnosis, and earlier intervention and better outcomes in care.

Consult Report on Analysis of Brain Atrophy vs Responsiveness to Shunting in NPH

DiaCeph Monitoring Report of Patient with NPH

Today, there are no doubt thousands of hydrocephalus case studies similar to mine. It is estimated there are almost 2 million people in the U.S. today with hydrocephalus. And many more around the world. The advent of mHealth apps and social platform solutions would aid shunt monitoring and sharing of data on CNS shunt devices, greatly improving shunt outcomes. I would finish my Creative Brief on the DiaCeph Test App if I felt it might be produced and put into use. Let’s turn this around. Support mHealth!

The DiaCeph App Creative Brief details its design and unique features in monitoring of the disorder hydrocephalus
The DiaCeph App Creative Brief details its design and unique features in monitoring of the disorder hydrocephalus

Blog on Challenges of the Development of the Diaceph Test as a Mobile App

My Longstanding Web Pages on Hydrocephalus and CNS Shunts

I hope my papers demonstrate the possibilities of mHealth and open source sharing of medical information in the treatment of disease.

Outreach for Hydrocephalus

Poor reporting of problems with CNS shunts has led to an epidemic of poor care and outcomes in hydrocephalus, which has emerged as barriers to care and treatment – as I have shared. My launch and outreach with is but one way to combat this. In other instances, I feel we need not to be so tolerant.

In 2001, Fox Sports thought they’d use an ad campaign to exploit hydrocephalus, seemingly involving the Los Angeles Lakers and the Los Angeles Times.

The actor in the ad sported a Laker shirt while having a graphicly and grossly altered large head and caption that read, It’s a lot to Absorb.” This was a full page ad in the Los Angeles Times.

I telephoned the LA Times, and then Fox Sports, and followed this up with letters. I felt their poor taste reflected a public disconnect with hydrocephalus, and lack of public awareness in poor outcomes. It was a low point for hydrocephalus.

In the months that followed,  I shared my correspondence with Emily Fudge, then director of the Hydrocephalus Association. She promised to keep me in the loop. But months later, I realized I was misled and learned there was not going to be any outreach or appologies from Fox Sports. I suspect her organization received some money, however. This is the way it’s been. And this is why people like me need to speak out!

This 2001 Fox Sports campaign showed how its broadcast was a lot to absorb depicting a Laker fan with a hydrocephalic head.
This 2001 Fox Sports campaign showed how its broadcast was a lot to absorb depicting a Laker fan with a hydrocephalic head.

Further below, I am pictured in Washington D.C. for the 1999 STAMP Conference on Hydrocephalus, which I helped to bring about. Somehow, my DiaCeph Test was left out of the program – and I think that error contributed greatly to DiaCeph never being developed. After all, DiaCeph was conceived in response to false negative findings cited in my FDA petition, which FDA upheld. It is counter-intuitive for FDA not to support a solution to these shunt problems. And it was counter-intuitive not to invite the person to speak on the conference panel (me), who helped bring STAMP about, especially with all of my knowledge about hydrocephalus, my related petition research, innovations in shunt monitoring, and authoring of this important FDA petition.

It was FDA staff, Janine Morris, who I knew from numerous telephone calls concerning my efforts, and her boss, Larry Kessler, who then decided to withhold the FDA’s Sept. 1998 Ruling from the Federal Register – guaranteeing there’d be no news coverage of it – a move most unheard of, unless you’re Medtronic undergoing a major merger and $5B stock issue that month. That merger helped propel Medtronic and Sofamar Danek, and sealed the fate of 2 million Americans with hydrocephalus – assuring we’d face many more years of failed shunt devices.

Stephen Dolle in Wash DC attending the FDA STAMP Conference on Hydrocephalus
Stephen Dolle in Wash DC attending the FDA STAMP Conference on Hydrocephalus

1999 Article in the Orange County Business Journal

Stephen Dolle is interviewed by the Orange County Business Journal for his FDA efforts and DiaCeph Test invention Page 1
Stephen Dolle is interviewed by the Orange County Business Journal for his FDA efforts and DiaCeph Test invention Page 1

 Article Page 2

Stephen Dolle is interviewed by the Orange County Business Journal for his FDA efforts and DiaCeph Test invention Page 2
Stephen Dolle is interviewed by the Orange County Business Journal for his FDA efforts and DiaCeph Test invention Page 2

Today, the treatment of hydrocephalus with CNS shunt devices, regulated by the U.S. Food and Drug Administration, is in shambles. There are other areas too, where FDA oversight is in need of immediate attention and modernization, such as the user information and data on older drugs like Prednisone, and the availability of mHealth devices and social network platforms, all of which will aid in the resolution of problems with drugs and medical device safety.

But unusually high incidence of CNS shunt device failures and  related (failed) FDA oversight should draw scrutiny – and be investigated for misconduct. These failures date back to before my 1996 Petition in the FDA’s failure to act on significant problems with CNS anti-siphon shunts.

Since the FDA’s 1998 ruling on my petition and related 1999 STAMP Conference, there has been a significant increase in unreported problems with CNS shunts, many requiring shunt revision. The most notable of these has been with programmable shunts. My current Certas shunt is in this class, and was recalled in 2013 less than a year after it was approved. It is only the second of many shunts with problems to be recalled.

FDA Conference Agenda – 1999 STAMP Conference on CNS Shunts for Hydrocephalus

Stephen Dolle Paper of Recommendations: 1999 FDA STAMP Conference on CNS Shunts

I found the Hydrocephalus Assocation (now in Washington, D.C.) to be working with shunt manufacturers to avoid taking action on shunt problems, and to be working with FDA to not take any action, and that this relationship existed from 1996 to as late as 2013, and to some degree, still today.

The high incidence of CNS shunt failures led to poor progress in the care and treatment of hydrocephalus, and contributed to new health issues now being discovered from over-use of CT scanners, and new long term effects  from an unusually high number of shunt revisions. I had discussed some of this with the renowned field inventor, John Holter, before his death. He and I were 100% in agreement.

No amount of money spent on research can fix these kinds of problems. As a patient and scientist, I am outraged. I’ve felt like a prisoner.

Below, I include information on Salvatore Iaconesi, who earlier placed his medical case online for open source care, and for his efforts and presentation at a TED Global event.

Salvatore Iaconesi’s 2012 TED Global Speech on Open Source Cure for Cancer

Salvatore Iaconesi’s Web Sites

(in Italian)

Cognitive Accessibility in SPDs.Hulk Destroys Tree Shredder
There needs to be a convening of scientists and government agencies to address the epidemic of sensory processing disorder (SPD) and lack of cognitive accessibility from harmful sounds for the estimated 20 percent of affected Americans.

Tips and New Treatments in Managing Sound Sensory Processing Disorder

And for those of you who enjoy outreach with hydrocephalus, I have a fun site for hydrocephalus at that I hope you find uplifting. One of my main characters and hydrocephalus super-heroes is none other than the Terminator, who comes complete with a self-correcting brain implant.

Check out my super-hero stories and other content at

The Terminator is the ultimate super-hero for adults and children affected by hydrocephalus.
The Terminator is the ultimate super-hero for adults and children affected by hydrocephalus.

If you would like me to speak or consult on mHealth applications, innovation and product development in hydrocephalus, or share any of my experiences, please contact me thru or

If you have experience with hydrocephalus or non-infectious (aseptic meningitis), or neuromuscular disorders, I’d appreciate your feedback on my case study. As I share, I have been providing global informaiton on hydrocephalus since about 1995. I prefer  science and innovation over politics and the status quo.

I also post my case study here in support of 2015 Brain Awareness Week at

I look forward to hearing from you.

Thank you.

Stephen Dolle
Contact[at] DolleCommunications [dot] com
Tel. (949) 642-4592

Contact Stephen Dolle
Contact Stephen Dolle
Stephen Dolle in Knots of Love beannie
Stephen Dolle in Knots of Love beannie

eWeather HD App helps manage Barometric Pressure related Migraine Headache

eWeather HD App for Managing Migraine Screenshot

This blog discusses how to use “barometric pressure” forecasting with the eWeather HD app and data from weather web sites to manage barometric pressure triggers in migraine headache, headache, arthritis, hydrocephalus, Ehlers Danlos, and autoimmune disorders. This blog has considerable self-help information and tips for managing migraine and headaches.

My biggest new discovery comes from a study I undertook in 2017 with the MigraineX ear plugs used in the management of headache, but also in sound suppression. I found that insertion of MigraineX ear plugs before, and even after a harmful sound exposure has occurred, can lessen the associated headache, irritability, cognitive, and SPD complaints by 50% or more. So I carry my MigraineX ear plugs with me all the time to manage sound exposure & associated SPD complaints. They are particularly helpful amid noise from construction, machinery, malls, restaurants, theatre halls, and more. They sell for about $12 on Amazon and many drug stores.

I have also been undertaking new barometric pressure monitoring now with my Samsung phone’s built in barometric pressure sensor. The built in sensor can display sharp short term changes in pressure that weather sites often do not display. Most newer high end smart phones have this sensor built in. But you need to download an app to get the display. For this, I currently use the uBarometer Pro. I have been able to correlate these short pressure changes as triggers of pain and headache.

I also include a brief review of the Migraine Buddy and Headache Diary Pro apps.

eWeather HD was originally introduced as an Android app by Elecont Software, then offered as an IOS app. As IOS came later, there was a delay in IOS weather alerts & notifications. With the eWeather HD Sept. 17, 2017 IOS update, alerts & notifications we’re fixed.

Over the last several years, Elecont has adopted some of my recommendations, which has allowed the eWeather HD app to function more as an mHealth tool in managing pressure aggravated disorders.

I offer FREE eWeather HD Google Promo codes for Android users who email me thru this blog. It is a $4.95 value. iOS versions are less at $2.95 on the Apple Store, and I do not receive download codes.


Sept. 19, 2017 UPDATE:

New Update for eWeather HD app for Apple/IOS Devices including Weather Alerts & Notifications. I am told by Elecont Software that the Sept. 17th 2017 update includes fixes that will allow “Alerts & Notifications” to function on Apple/IOS versions of the app. I had received numerous inquiries here from IOS users, and spoke with the Elecont developer. I am told these features are now available with the app. As I do not personally own an IOS device, I am not able to test this out and provide screenshots. If any IOS users would like to do so and email me the screenshots, I will add them to this IOS installation and user instructions here. SEE blog section here “How to Set up & view eWeatherr HD on IOS Devices.

April 27, 2017 Update includes:
In my April 21st update, I wrote that I thought on-screen or Task-bar Notifications were likely possible on iOS devices, not having seen the app run on an iOS device (of which I don’t own). Then on Tuesday of this week, I attended an iOS developer event to deliver a demo on the eWeather HD app. There I was able to explore the app as it appears on iOS devices, and learned why it does NOT get Alerts or On-screen Notifications. It has to do with Apple’s “Apple Push Notification” service, or APNs, for network notifications on iOS devices. My apologies for not understanding this issue sooner. I will be speaking to the developer Elecont as to fixes for this issue. I explain in more detail how the iOS version of the app is used in my section below on eWeather HD for iOS Devices.

April 21, 2017 update includes:
1. eWeather HD Barometric Pressure screenshots showing the “Notifications” I use on my Android GS3 phone in managing my headaches. NOTE: I do not use the audible alert option. From my experience, audible alerts might only be necessary in users with visual impairment who are unable to view home page Notifications. As I do not own an IOS device, I am uncertain of the specific screen Notifications available on IOS versions. However, I will encourage the developer to make my recommendations here as standard options available on all their versions.
2. Discussion of Barometric Pressure Notifications currently available for IOS versions of the eWeather HD app. SEE my discussion in the IOS section.

Jan. 11, 2017 update included:
1. How to select notifications & alerts for changes in barometric pressure related to migraine headache, with screenshots, and
2. My personal preferences for barometric pressure indicators on my eWeather app

Oct. 19, 2016 update included:
1. Screenshots and new instructions on installing the app from Google Promo codes.
2. Discussion and review of several top migraine apps.
3. Discussion and links from new Excedrin migraine and weather information.
4. Updated information on the role that sound/noise and sensory processing disorder (SPD) plays in migraine headache.

Management of Migraine and Headache thru Weather Monitoring

Migraine headache can get you out of your routine
Migraine headache can get you out of your routine

Weather changes with a sharp drop in barometric pressure can often trigger a migraine headache in pressure sensitive individuals with a history of neurological disorders such as hydrocephalus, post tumor, Parkinson’s Disease, PTSD, sensory processing disorder or SPD, and person’s with a history of anxiety attacks and migraine. The sharp drop in barometric pressure during weather change often acts as a trigger of migraine. Weather apps and web sites can provide advanced warnings of changes in barometric pressure, so affected individuals can adjust their activities and medications. I’ve found the eWeather HD app to be the most convenient as it forecasts barometric pressure both 24 hours ahead, and the past 24 hours, in a easy to read graphic format. The app highlights steep rising and falling of barometric pressure, and can alert you via its icon on the taskbar of your phone.

I am a migraine sufferer today as a result of 24 years and 12 CNS shunt surgeries for hydrocephalus. In this blog, I discuss a real migraine headache event, and how I used the eWeather HD to help me better through it. Had it not been for the Elecont eWeather app, I likely would have been down for the entire afternoon. And as of May 2016, I give away Google Promo codes from the eWeather HD app developer for a FREE app download for Android devices, a $4.95 value. To obtain a Google Promo code, email me your request to the address at bottom.

Stephen Dolle in Knots of Love Bennie for persons who have underwent brain surgery or chemotherapy.
Stephen Dolle in Knots of Love Bennie for persons who have underwent brain surgery or chemotherapy.

My name is Stephen Dolle and I am a neuroscientist and author of this blog. I write and consult on mHealth, brain health, and the disorder hydrocephalus. I also live with hydrocephalus, and regularly suffer migraines, and have been an eWeather HD app user since 2012.

My mHealth app experience spans a 1997 design of an application for hydrocephalus (DiaCeph Test) to run on a PDA, which unfortunately I was not able to get funding for. However, I continue to provide a number of FREE monitoring forms and instructions so individuals and families can do their own monitoring. Since 2009, I’ve been providing Hydrocephalus Monitoring & Consults to patients affected by hydrocephalus (link to blog & services is below). I am also a CNS shunt device scientist. I can also provide consults to mobile app developers and others wishing to develop mHealth apps. My DiaCeph Test today could be made into a mobile data app with sufficient funding and/or partners.

Hydrocephalus Monitoring & Consults

Since 2012, I’ve also been applying my mHealth expertise to migraine care and weather monitoring of migraine headaches using both weather apps and web sites. I have also evaluated mobile apps for pain management monitoring. Since 2014, I found the eWeather HD app the best mobile app tool for monitoring barometric pressure weather triggers, and in 2016 I reached out to the developer for free downloads to give away to my blog followers. Migraine headaches are also very common in hydrocephalus, which I have been living with since 1992. So these eWeather HD efforts also benefit my own health.

Drum circles help to reduce stress and stimulate the brain for optimal function in the workplace

I also put on drum circles in Orange County, California, as a therapy for medical conditions, and for events, icebreakers, and organizations interested in team-building (like drumming in the workplace pictured above). Medical conditions and organizations I’ve helped include: National Hydrocephalus Foundation, National Parkinson’s Foundation, cerebral palsy/autism, drug & alcohol addiction, Alzheimer’s disease, movement disorders, sensory processing disorder (SPD), schizophrenia, weight loss, and general health & wellness. I also write blogs on drumming and movement topics, including, drumming for basketball and football. Drumming can improve one’s intolerance to sound and stress, which are common triggers of migraine headache, and stress also plays a key role in sensitivity to noise in sensory processing disorder (SPD). Drumming, exercises, and yoga also help offset cerebral hypotension, the mechanism most often responsible for migraine headache. My blogs below detail how drumming aids wellness, stress reduction, and migraine disorders.

Drumming for Workplace Wellness

Drumming Therapy in Cerebral Palsy and Autism

Stephen Dolle facilitates a drumming for wellness workshop at a private home in Orange County
Stephen Dolle facilitates a drumming for wellness workshop at a private home in Orange County

eWeather HD Weather Images of Hurricane Irma (Sept. 2017)

I have added some eWeather HD screenshots taken of Hurricane Irma that struck Florida in September 2017. From California, I was able to get forecasts and share weather information with friends in Florida affected by Hurricane Irma. The radar images & pressure graphs are striking. The primary limitation of must weather apps and web pages is that their radar is based on land, and it can only scan out over the water about 100Km. So you have to either get NASA satellite images, or wait for the storm to be within 100Km of the mainland. Enjoy my pics.

Image shows Hurricane Irma as a massive storm covering most of the state of Florida.
Note the steep drop in the forecasted barometric pressure for Tampa, Florida, indicating the severity of the storm & timeline of its arrival over Tampa.
Radar image shows Hurricane Irma passing over Tampa, Florida, where the rear portion of the eye has weakened – thankfully leading to much less damage for Tampa.
Radar Image shows Hurricane Irma as a massive storm over Florida with many different local & regional weather alerts.

How to Use the eWeather HD App for Management of Migraine & Headache

The Elecont eWeather HD app is an excellent mHealth tool & mobile app for managing migraine headache. I have been using the app since about 2012, while also using several online weather sites. As Elecont made updates to its app, by 2014 it became my weather site/app of choice.

The app provides up to 24-hour advance display of changes in barometric pressure, which you can use to help manage your migraines and headaches. Knowing this weather data in advance, can allow you to make key changes in your schedule, medication, exercise, and hydration to possibly head off a migraine attack. Moderating exercise, hydration, and medication other tips is discussed further in this blog.

This section’s screenshots are from the app on my Android device. There are some differences with the iOS version, specifically, with Alerts & Notifications not yet being available. In my UPDATES at top, and here in my discussion sections, I detail how you can use the app on both Android & iOS platforms.

For Android devices, you have (3) ALERT options for how you get notified of changes in barometric pressure. Below are the Android screenshots for setting up ALERTS in the eWeather HD program. (For Apple/iTunes devices, you can view changes in pressure via the red-alerted barometric pressure graph in the app, and via display of the pressure graph icon on your phone’s taskbar & widget if set up).

  1. VIEW GRAPHS: View the graphs by clicking on the app or widget on your home screen. The program is configured by default to turn the barometric pressure graph “red” when there is a rise or fall of more than 0.20 Hg (I think). The default graph will look like the graph in the screenshot just further below. This shows the pressure for the last 24hr in Hg. The far right edge of the graph is current time, and the far left edge of the graph represents 24hr earlier. To see the next 24hr forecast, press the tiny round red “in” button in the top right corner of the screen. Press it again, and it returns to the current 24hr graph. Scroll the screen to the “right” to see an hourly all weather forecast, and scroll to the right again to see the 10 day weather forecast. Scroll again and it comes back to the home screen.
  2. VIEW ICON: View the pressure graph “icon” in either the notifications bar on the top of your phone’s screen, or in the lower right corner of Elecont 2×2 widget screen. I have both set up. The icon is a tiny display of the graph. When the pressure is substantially rising or falling, it will turn to red and be sloped accordingly.

The screenshot below is the default view on the opening screen of the eWeather HD app on Android devices. eWeather HD App panel displays a forecast graph of the previous, current, and next 24 hour period of barometric pressure.

The eWeather HD Android app Barometric Pressure Graph includes Current, past 24 Hours, and next 24 Hours, the data of which is a useful Health Monitoring Tool for Migraines, Headaches, Arthritis, and other Medical Disorders.

eWeather HD App panel displays a forecast graph of the next 24hr period of barometric pressure
USE OF NOTIFICATIONS/ALERTS: You have the option to receive an “audible alert” or “notification icon” when the change in barometric pressure exceeds the pre-set range within the app.
I personally do not use the audible alerts. Also, I am told audible alerts are not yet available in IOS versions. I personally use the notification icons available in three (3) places on my Android phone, which I identify below & share via screenshot:
1) Icon in lower right corner of 2×2 widget on my home screen;

Since I took the home screen screenshot below, I revised the “widget” display, weather data, and colors on my Android phone. I’ll share a new screenshot on my next update.
2) Task bar Icon at the top of my home screen;
3) List of Icons for eWeather HD & other phone functions on the Task Bar (top of phone home screen). The barometric pressure Notifications turn red when there is significant change in current, past 24 hours, or forcasted pressure. The colored Icon is readily seen on the screen. Users with visual impairment may require the app’s audible alerts. In addition, several times a day I click on the eWeather HD app widget, where a large view of the barometric pressure graph appears. Click on the “in” button in the top right corner, and the graph alternates between U.S. Provider & pressure graphs.

eWeather HD Android app home screen Icon Notifications of Barometric Pressure Graph, which is a helpful tool in Health Monitoring of Migraines, Headaches, Arthritis, and other Medical Disorders.
The eWeather HD Android app features multiple Task Bar Icon Notifications, including, of Barometric Pressure which is a helpful in Monitoring Migraine, Headache, Arthritis, and other Medical Disorders.

To set up customizable icon & audible alert notifications in the eWeather HD app, go to the OPTIONS panel. Press the “open menu” button on your phone within the eWeather HD app and scroll down to “options” near the bottom of the list. This is where you set up weather and barometric pressure alert information for both your task bar & home screen widget. First, select the “Alerts” option near the top of the options panel (not pictured in the screenshot below as it’s a long panel).

UI Panel options in the eWeather HD App.
UI Panel options in the eWeather HD App.

Click on the “Alerts” option near the top of the panel, and check the boxes like in the screenshot below.

eWeather HD App options panel to set up alerts
eWeather HD App options panel to set up alerts

Next, go to the main OPTIONS panel and select the “Status Bar Notification” in the lower portion of the panel. Select “Pressure Changes” like in the next screen.

eWeather HD App options panel status bar notification
eWeather HD App options panel status bar notification

Then check the appropriate boxes under “Pressure Changes” and select whether you want to receive an “audible notification” like in the screen below.

eWeather HD App options panel option to select pressure changes
eWeather HD App options panel option to select pressure changes

This concludes set up of alerts & notifications for Android devices. For help with the eWeather app widget, see “frequently asked questions” section under “About” on the OPTIONS panel.

To obtain a Google Promo code for a FREE download of the eWeather HD app for Android on Google Play, email your request to the address at bottom.

How to set up & View eWeather HD app on IOS Devices

New Sept. 17, 2017 Update for eWeather HD app for Apple/IOS Devices:

In this update, the Weather Alerts & Notifications feature that had not previously been operable, I am told is now available. After numerous inquiries here from IOS users, I spoke with the Elecont developer. So these features are now apparently available within the IOS versions of the app. I do not personally own an IOS device, so I am not able to test it out or provide screenshots. But if any IOS users would like to do so, leave a comment on your experience with this, and also include if you took screenshots – email them to me. And I will add them to the IOS installation and user instructions here.

While most of the eWeather HD app features and displays are quite identical on Android and IOS devices, audible Alerts & Task-bar (on-screen) Notifications were not previously available on iOS devices. I attended an iOS developer event and was able to see and understand the iOS issues with the app. The alerts & on-screen notifications had to do with Apple’s “Apple Push Notification” service, or APNs, which is the centerpiece of their network notifications, and involves additional security coding that has not yet been submitted for the iOS version. Apple has very strict requirements with their platform. Comparatively, on Android devices, I believe notifications & alerts are more “locally controlled” on the device and do not require the network security features. So, I encourage IOS users to get this most recent Sept. 17, 2017 update and explore the new alerts & notifications functionality.
As I have stated repeatedly, I do NOT use the AUDIBLE alert feature for barometric pressure changes on my Android device. I watch the on screen widget & visual icon on the top of my phone’s task bar. When a rapid rise or fall in pressure is predicted or already occurring, both the visual alerts and the barometric pressure graph turn RED. When I see this, I open up the app and study the graph. If you have been using the app – then you likely know what types of rise/fall in the graph will trigger a specific level of headache or other complaint your tracking with the app. As always, there are other contributing health factors that can worsen or less a migraine or headache. Your personal user experience becomes an invaluable part of your preparation and management of complaints triggered by the changes in barometric pressure.
You can purchase iOS versions of the eWeather HD app via the links below:

Purchase eWeather HD app for IOS devices at the Apple/iTunes store, follow the links, installation screenshots, and link to Elecont’s customer support page:
Apple iTunes Store: eWeather HD App
Elecont eWeather “Customer Support” page for Apple iTunes Installation
As of my update on 9.19.17, the developer had not updated the above forum page on the addition of Alerts & Notifications – and I asked that they do so.
Below are Task Bar & Widget Notifications available on my own Android device. I do not use the audible alerts as I explain below.
Notification icons that I personally use on my own Android phone include (SEE my screenshots of this in my above Android discussion):
1) Icon in lower right corner of 2×2 widget on my home screen;
2) Task bar Icon at the top of my home screen;
3) List of Icons for eWeather HD & other phone functions on the Task Bar (top of phone home screen). Barometric pressure Notifications turn red when there is significant change in barometric pressure. The colored Icon can readily be seen on the screen. Users with visual impairment may require audible alerts. In addition, several times a day I click on the eWeather HD app widget to view the barometric pressure graph. Clicking on the “in” button in the top right corner allows the graph to alternate between U.S. Provider &

When task bar icons notifications become available in the IOS version, I suspect it will be set up from within the OPTIONS panel, very similar to how it is on Android. On Android, you press the “open menu” button within the eWeather HD app, and scroll down to “options.” Next you look for the option called “Notifications,” and then select the weather data you’d like displayed in on-screen notifications. Again I only use Task Bar Notifications, plus a home screen Widget with Icons I selected from within the options panel.
I will post new UPDATES on this ALERTS & NOTIFICATIONS iOS issue at the top of this blog, as well as discussions here, on fixes for alerts & notifications. The program screenshots below were kindly shared by an IOS device user. The app has the same features as the Android version, except for the Alerts & Notifications. iOS users must manually open the app to monitor BAROMETRIC PRESSURE changes.

Elecont eWeather for iPhone.pressure screenshot1
Elecont eWeather for iPhone.pressure screenshot1
Elecont eWeather for iPhone.pressure screenshot2
Elecont eWeather for iPhone.pressure screenshot2
Elecont eWeather for iPhone.pressure screenshot3
Elecont eWeather for iPhone.pressure screenshot3

And here’s the eWeather Apple app screenshot of its barometric pressure graph once the app is installed and operational.

Elecont eWeather for iPhone.pressure graph
Elecont eWeather for iPhone.pressure graph

My eWeather HD App Migraine/Headache Case Study

Below, is my own eWeather App case information from an episode in 2015 that forced me to stop working, lay down, take medication, and engage the eWeather HD app as an mHealth tool to salvage my day.

And as I lay down with shades drawn, I clicked on the widget of my Elecont eWeather HD app, where I could see I was in the midst of a very sharp fall in barometric pressure (screen image below). The app showed a “9 pt. drop” in only an hour – which is a very significant drop. It is the “rapid drop” in barometric pressure that is the most common trigger of migraine headache, next to stress.

My next step was to perform a valsalva (breath pressure) maneuver – which I use in my hydrocephalus and migraine care, to test my response to a temporary increase in brain blood pressure (BP) and intracranial pressure (ICP). If you’re experiencing a (hypotension) migraine from rapidly falling barometric pressure, often times valsalva maneuvers and changes in posture (up & down) over a 20 minute period, can provide some relief.

To do a valsalva maneuver, simply hold your breath for a few seconds while straining as though you were lifting something. Then note the change in your headache during the maneuver. If it feels relieving, that suggests your headache is due to low pressure or a “cerebral hypotension” brain state. If there is no change, that would suggests either your headache is unrelated to weather pressure, or your pressure is so low that the valsalva did not counter your low pressure enough. If your headache worsens with this valsalva straining, that would suggests hypertension & elevated BP and/or ICP, and you should discontinue any further straining maneuvers.

With my migraine on that day, I got headache relief almost immediately from the valsalva pressure maneuver, and continued to perform these low pressure offsetting maneuvers. As I’ve used the app for several years, I knew today’s drop in pressure was unusual and steep. The eWeather App also changes the color of the graph to “red” during a steep rise or fall in barometric pressure. I put 2+2 together, and I concluded the sudden drop in pressure was likely the cause of my migraine headache.

I stayed supine for almost an hour, while continuing to perform 2-3 valsalva maneuvers each 10-15 minutes. Within 30-45 minutes, I was feeling like new! I also soon observed the barometric pressure to level off on my app’s display. Below is my screen image:

The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.
The Elecont HD app provides an hour by hour barometric pressure reading that can be used to help manage migraine headache.

Weather Web Sites

Weather web sites also offer some barometric pressure information. Prior to the Elecont HD weather app, I primarily used two online weather sites. Weather Underground lists barometric pressure forecast data, but only 6 hours of forecast data the last time I looked.

Two weather web sites I used in the past include Weather Underground and Weather For You. For these, you need to put in your zip code or city to view the weather panel for your area. They list a table and graph options for weather data. Weather Underground gives 6 hour forecasts ahead on barometric pressure.

The Medical Science of Migraine Headaches

Migraine headaches are typically due to cerebral hypotension, where blood vessels in the brain become dilated, resulting in low blood pressure in the brain, and then headache. During weather change, a sudden falling of barometric pressure can leave you further vulnerable to cerebral hypotension. And it is the rapidly falling barometric pressure that is often the trigger of a migraine. Menstruation, and its associated blood loss, can also contribute/help trigger cerebral hypotension and migraine.

Knowing the cause of your migraine will help you best treat it. In the case of my migraine on this day, it was the sudden drop in barometric pressure that induced my headache. My quick assessment of its cause, then allowed me to undertake swift intervention.
Valsalva maneuvers and laying down preferably in a dark or quiet room, is a common treatment in migraine. But some may also need medication. You should keep watch on the barometric pressure during a migraine to confirm that it is stabilizing.

This illustration shows how nerve fibers become inflammed during a migraine.
This illustration shows how nerve fibers become inflammed during a migraine.

Weather related headaches affect some 15% or more of the world’s population. Migraine is also common in the disorder, hydrocephalus. Migraine headaches are also passed on thru family genetics.

Much has been written about the connection between weather and migraine headache. The popular over the counter medicine, Excedrin, combines aspirin or Tylenol with caffeine (a vasoconstrictor) to offset dilated blood vessels (cerebral hypotension) which is the most common scientific explanation for migraine headache. Excedrin helps both with pain and constricting of the dilated blood vessels. For this reason, Excedrin is uniquely helpful in the treatment of weather related migraine. Below, is a web page Excedrin has published on the weather-migraine connection.


Excedrin is used to help manage pain associated with migraine headache.
Excedrin is used to help manage pain associated with migraine headache.

The Mayo Clinic hosts a nice web site section on migraine:

Migraine information at the

The Mayo Clinic web site offers an easy to understand interface & wealth of reliable health and medical information.
The Mayo Clinic web site offers an easy to understand interface & wealth of reliable health and medical information.

Self Care of Migraine Headache

Learning to use mHealth Apps to manage illness.
Learning to use mHealth Apps to manage illness.

Smithsonian Magazine: Can This App Predict Your Headache?

The above Smithsonian Magazine article primarily discusses the feasibility of whether the Migraine Buddy app can predict migraine headache. For more on this, SEE my review and comparison of the Migraine Buddy app and Headache Diary Pro and how each can integrate with the eWeather HD app further below.

I have written much about how to use mHealth apps, home treatment, and prevention of medical disorders. And migraine can be better managed by following my tips in this section.

One simple technique is to have a cup of coffee or tea right before onset of a migraine. Caffeine acts to constrict dilated blood vessels in the brain, and can also be used prophylacticly head off an onset of migraine and cerebral hypotension – before a big headache strikes. Similarly, exercises like yoga, which involve frequent changes in posture (eg. standing to lying down), can can help to normalize cerebral hypotension and your brain’s ill-fated response to falling barometric pressure.

Drinking 2-4 glasses of water can help treat migraine headache.
Drinking 2-4 glasses of water can help treat migraine headache.

Another more pragmatic remedy that helps me is rapid hydration with water (two to four 12 oz. glasses) over a 15-30 minute interval at first onset of symptoms. The water helps raise blood pressure (BP) and infuse fresh blood and nutrients into the brain. Other remedies include changing postures from standing to laying down over 30 sec to 2 minute intervals, and light exercise with short interval BP surges. This helps to flex the tiny blood vessels in the brain most responsible for migraine. Regular exercise also improves your intolerance to cerebral hypotension. PRECAUTION: Should you suffer from high blood pressure or heart disease – you should consult with your doctor before doing these physical exertion exercises.

Once a migraine event has begun, it is recommended you lay down supine for at least 15-20 minutes to raise your brain’s blood pressure and help offset the hypotensive state.

Loud/monotonous sounds, stress, other illness, and poor sleep can also leave you more susceptible to migraines. Many migraine sufferers also suffer from SPD or sensory processing disorder,” and become overly sensitive to loud ertatic sounds. It’s important during a migraine, to remove yourself from sources of light, sound, and commotion as best you can, as it helps calm the brain. The following is a detailed blog I’ve authored on sensory processing disorder:

New Insights in Management of Sensory Processing Disorder (SPD)

Brain centers involved in SPD or sensory processing disorder, courtesy of UCSF
Brain centers involved in SPD or sensory processing disorder, courtesy of UCSF

Women during menstruation are also more susceptable to migraine from the slight blood loss causing a hypotensive state. Coupled with a drop in barometric pressure, if you are a woman common to this syndrome, menstruation and barometric pressure drop can send you into a full migraine crisis. To offset this, you should drink extra fluids during menstruation.

Migraine sufferers should also limit intake of alcohol, as this can lead to dehydration, and alteration of brain neurotransmitters. Also limit foods with high fat and sugar content as this compromises healthy circulation in the brain. You will likely see a noticeable difference in frequency and severity of your migraines just by altering your intake of alcohol, fat, and sugars.

To help reduce sensitivity to changes in barometric pressure, regular exercise like yoga can help brain compliance and cerebral blood flow. Breath work and meditation also help improve blood flow in the brain, and your stress response. Drumming is an excellent exercise as it also reduces stress. Weight lifting, sports, walking, and all exercise helps improve blood flow in the brain, that can offset migraines. Below, the Mayo Clinic web site offers some info on migraine.

For many migraine sufferers, weather related triggers pose regular challenges. Here I personally have found the eWeather HP app to be an excellent mHealth tool for alerting you of coming changes in barometric pressure. Managing migraine, and its many different causes, can be a complex health challenge. So you should be discussing the eWeather HP app and other details ith your doctor.

My initial blog on weather monitoring for migraine was in 2014. In that blog, I shared my experiences on the use of weather web sites and the eWeather app. But the eWeather Elecont app has become the best tool for managing weather induced migraine headache.

With the condition hydrocephalus, which I live with, a headache during rising pressure could also indicate an early sign of shunt malfunction, signal an improperly programmed CNS shunt, or be a sign you’re not yet stable following shunting or ETV. As a significant headache [during high barometric pressure] could indicate “shunt malfunction,” you should take this up with your doctor.

The eWeather HD App can be used to help manage migraine headache associated with a number of neurological disorders.
The eWeather HD App can be used to help manage migraine headache associated with a number of neurological disorders.

How to obtain your FREE Android eWeather HD Google Promo Code

The Google Promo code for the Elecont eWeather HD App is a $4.99 value. Per the developer, no free downloads are available for Apple devices. I strongly encourage you READ my entire blog after downloading the eWeather HD app.
To obtain your FREE Google Promo code, email me at contact [at] dollecommunications [dot] com – I will email you back your code, usually within a couple hours, but almost always within 24 hours.

How to Install your eWeather HD Google Promo Code

1. Once you’ve obtained your “Google Promo code,” go to the Google Play store and search for eWeather HD app (or similarly follow the link in my email). I’ve heard mixed feedback as to whether you SHOULD or SHOULD NOT be signed in.
2. Next click and open up the app – and you should see a panel as in STEP1 below. Click on INSTALL.
3. You should now be given the option to buy with a Google Promo code. Do not select BUY if you’re signed in as the $4.99 might be billed to your Google account. You need to be at the REDEEM YOUR CODE panel as seen in STEP2 below. For some users, you may need to sign out of Google Play store in order to see the REDEEM YOUR CODE panel.
4. Next, enter the Google Promo code I emailed you and select REDEEM. Then select ACCEPT. You should immediately see the app installing.

eWeather HD android installation with Google Promo code Step1
eWeather HD android installation with Google Promo code Step1
eWeather HD android installation with Google Promo code Step2
eWeather HD android installation with Google Promo code Step2
eWeather HD android installation with Google Promo code Step3
eWeather HD android installation with Google Promo code Step3
eWeather HD android installation with Google Promo code Step4
eWeather HD android installation with Google Promo code Step4
eWeather HD android installation with Google Promo code Step5
eWeather HD android installation with Google Promo code Step5

Purchase the eWeather HD app for Android devices directly at the Android store, follow this link:
Android Play Store: eWeather HD App

Purchase the eWeather HD app for IOS devices at the Apple/iTunes store, follow these links – plus SEE installation screenshots and link below to Elecont’s customer support page:
Apple iTunes Store: eWeather HD App
Elecont eWeather “Customer Support” page for Apple iTunes Installation

Android Mobile Apps for the Home Care of Migraines & Headache

This section compares two leading Android mobile “migraine” apps I have used for home care of migraine headache, and can offer my insights. These apps would need to be used in addition to the eWeather HD app as neither provides any monitoring or alerts on changes in barometric pressure. Headache Diary Pro vs Migraine Buddy. I use the “pro” version of Headache Diary, and the “free” and only version of Migraine Buddy. They are nearly identical in application, but differ in their UI panel and usability. Where Headache Diary Pro provides all the necessary monitoring and migraine reports, Migraine Buddy charges a monthly or yearly subscription for their reports. I find the Migraine Buddy a more detailed and user friendly program. But you would need to have a significant migraine problem to spend $9 per month or $90 per year.

My recommendation as to your individual use of the eWeather HD and above apps is based on the severity of your migraine issue as to the degree that it impairs your quality of life. That should determine how much time and money you may want to spend on these.
eWeather HD app: If you are certain that your migraines are often triggered by changes in weather, then this app is a must for you. You may also want to download one of the migraine apps if your condition poses significant to quality of life. The eWeather HD app is not too difficult and time consuming to set up. And it offers many other weather features such as 10-day weather forecasts, live radar, weather alerts, and earthquake alerts, to name a few.
Headache Diary Pro: I have used this app for several years and find it very adequate for recording and storing migraine data to later print out when you see your doctor. It’s fairly simple to use. And I don’t believe there are any other additional costs to use.
Migraine Buddy: The Migraine Buddy is perhaps the newest mHealth design of any of the migraine apps I’ve looked at. I downloaded it today and ran it thru a trial headache event. While I favor its UI interface over the other migraine apps, I am not willing to pay a monthly or year subscription fee to get the results. This is a decision only each of you can make as to how migraine affects your quality of life, and what you are willing to do to possible better manage it.

If money weren’t an issue, I’d likely choose Migraine Buddy. But be forewarned, the Migraine Buddy and Headache diary Pro (and likely all migraine apps) require a significant investment of time. If you suffer daily headaches from hydrocephalus as I do, one of these two apps can be helpful. But, the more time and thought you give to your headaches, the more they seem to take up space in your mind. This goes the same for pain and pain management too. Below is the Manage My Pain Pro app I have tried and found helpful for pain management, though time consuming.

Mobile Health Apps for Hydrocephalus

Living with Hydrocephalus for most means the implanting of a CNS Shunt as Illustrated here.
Living with Hydrocephalus for most means the implanting of a CNS Shunt as Illustrated here.

As I have written about the use of mobile apps for migraine headache, I wanted to also share some more specific applications I’ve written about for persons with hydrocephalus. Two of the most common apps I use (Metal/EMF Detector, Decibel Meter) can be found on the Smart Tools web site. I’ve used these apps for several years and find them helpful in managing hydrocephalus and SPD related complaints. I also now have a special blog of apps and tips for living with hydrocephalus below.

DolleCommunications Blog of Apps & Tips for Hydrocephalus

Smart Tools Page on the Android Play Store

Smart Tools Apps on the iTunes Apple Store

Metal Detector – This EMF app is handy for measuring magnetic fields in your surroundings from various electronic devices & household appliances should you have a programmable CNS shunt for hydrocephalus. I personally have used the Smart Tools Metal Detector for 4 years and find it accurate and helpful.
Sound Meter – Decibeter meter apps measure the loudness of sound around you should you be sensitive to sounds as a result of hydrocephalus, autism, and other disorders that often lead to sensory processing disorder, or SPD. I personally use the Smart Tools decibel meter app and find it accurate and helpful.

Chosing the right mHealth App can be confusing.
Chosing the right mHealth App can be confusing.

List of Apps & Web Sites Discussed in this Blog

Android Play Store Elecont HD Weather App link
Apple iTunes Store Elecont HD Weather App link
Smart Tools Page on the Android Play Store
Smart Tools Apps on the iTunes Apple Store
Earlier March 2014 Blog on Weather & Migraine
Weather Underground
Weather For You web site
Drumming for Workplace Wellness
Drumming Therapy in Cerebral Palsy and Autism
Mayo Clinic – Migraine Answers
Mayo Clinic – Migraine Headache

Shunt Monitoring and Consults for NPH & Hydrocephalus
DolleCommunications Blog of Apps & Tips for Hydrocephalus

I hope you’ve enjoyed this blog and found health tips to help in managing your migraines. If I can be of any specific help in mHealth design, use of these apps, hydrocephalus care & monitoring, drum circles for wellness and brain health, or speaking on these topics, please contact me via the information below.

Please also email me for a Google Promo code for a FREE download of eWeather HD for Android devices (Google Play store).
Stephen Dolle
Email: contact[at]dollecommunications[dot]com
Dolle Communications